Rant, chat, gossip and surmise away… you are not going to upset me with either conjecture or facts… not this side of my holiday you wont. 😎 😀 🙂

To tell you the truth Eve, my primary involvement in this whole kappa/lambda/ratio mystery is one of fascination. I'd like to get to the bottom of it as much as anyone… and anyway, I woke…[Read more]

Hi Susan thankyou for your kind words.I have stopped ranting now, and feel much better for it, and waiting for my clinic appointment to know what the plan of action is How are you feeling? Are you still in remission? love Bridgetx

Hi Cathy welcome to our merry band of people from all walks of life! I am the pateint and my partner is Jeff, I dont like using the word carer, we are in this myeloma journey together There are so many lovely people on here who can help when you need it and the helpline is brilliant too. I was diagnosed 5 years ago and I can remember the fear and…[Read more]

Hi Cathy
My names Eve and I am a carer,6 months ago i was standing were you are now!!
I can only tell you this site is full of nice people,who will try to help and keep you positive as much as they can,they will be there for you in good times and bad.
Some people sail through this treatment go in to remission,and we all cheer
Some people do…[Read more]

Min
You are right,Slim made me Laugh the other day,he now worries something will happen to me,he said to me "you do realise if you get ill i will not be able to look after you" I found that very sweet. I promised him I would not get run over by a bus. LOL
Eve

Hi Bridget and Min
Just what i need,informed fact with a bit of humour,thought i might be upsetting Dai before his holiday and i would hate to do that,have been sitting thinking consultants just do not have the time to explain,we should all get these results without having to ask for them,and as you say Min an idiots guide to help us.
I do get a…[Read more]

Hi Eve I may be able to answer part of your query Blood tests give overall readings but bone marrow can form little pockets or cumps of myeloma. If the sample is taken slightly to the left or right for instance the result could be much lower In the beginning my paraprotein readings seemed to accurately reflect what was going on butafter a short…[Read more]

Hi Dai
I am not being stupid am I???
If Kappa light chains results are correct!!! bloods are correct!!! why is there 80% Myeloma in marrow!!!
If I new the answer!!!

After the last results in may we had a telephone call to say bence jones kappa light chains were down,but Slim did not ask how far,since then I have been waiting on results,when…[Read more]

'22/2/11— 258.458 – [b]264[/b]
15/3/11— 239.611 – [b] ?[/b]
05/4/11—- 121.425 – [b]13[/b]
31/5/11— 14.672' – [b]11[/b]

3 of my first 4 readings compared with Slim's (Mine in bold).

My consultant tells me that the measurement for CR (Complete Response) starts at 18… so we are both in the complete response zone – I have…[Read more]

Hi Dai
This is getting interesting!!!! I know that the results come from birmingham university.I have some results.i was told that Kappa/lambda was the important one and they read as followed

22/2/11— 258.458
15/3/11— 239.611
05/4/11—- 121.425
31/5/11— 14.672
I have not yet been given June /July/August results I have asked…[Read more]

Hi Min,

So it seems that Slim and i have exactly the same myeloma – light chain/kappa. Do they not have access to the 'Freelight' test at your hospital? My consultant started using the freelight because it is just as, if not more, accurate than the urine and/or the bone marrow biopsy… I know that each test is expensive but if they have the…[Read more]

Hi Dai and Min
Slims on Meloma X1 trials,he has Kappa Light chain MM.After the first Stage of treatment,24 hr urine bottle and bloods every cycle,they did another bone marrow biopsy and to there surprise found his mm had increased in bone marrow.
I think what they normally assume is urine kappa light chains down,then you are in remission,not so…[Read more]

[i]Hi Dai[/i]

Hi Eve, follow me down, we'll do this in stages…

[i]Its about the Velcade,Slims on 2.3 at the moment 2 shots one Tuesday and one Friday, 9 oclock bloods then although told to come back at 1 oclock did not get jab till 3.30 .left home at 8 got back at 4.30. (screaminggggg) poor dog desperate for a leak. Will not do that…[Read more]

Hi Dai
if you can,i would like to ask you a few questions or if anybody looking at this post who could answer them,
Its about the Velcade,Slims on 2.3 at the moment 2 shots one Tuesday and one Friday, 9 oclock bloods then although told to come back at 1 oclock did not get jab till 3.30 .left home at 8 got back at 4.30. (screaminggggg) poor dog…[Read more]

Min
Why an earth are you running yourself down,i know how tired and shattered you must feel and how worried you are,but to think you are not a good carer against the professionals!!!!!!,
You are for getting you are married to an ex service man who,s form of defence is to attack ,and the sad thing about this in a few months he will not remember a…[Read more]

Thankyou so much Debs and Lorraine it never ceases to amaze me just how lovely you all are When this bloody illness throws c**p at us a message on here can make so much difference lots of love Bridget x

Hi Min as awful as it is for Peter to be away from home , and you I am sure you are right about him needing to be there I do understand how he feels about not being in control and its always worse when you are feeling c**p Hopefully this depression will allow him to be more honest with the professionals and let him build a better relationship with…[Read more]

Haha Mavis no hard stuff for me I am afraid , today I just decided life is too short to be gloomy all the time and have been in a very silly mood all day! I hope you have had a good day too love Bridgetx

Hi Dai your answer gave me a good laugh thanks, Of course the simple answer is I am just barking mad!!Tee-hee Mind you morphine is the stuff of dreams or so they said love Bridget x