Good old gallows humour. I have a bunch of old friends… good and close friends… and family… who can't abide to even talk to me, never mind make gaffes or find ways of laughing it off (which I thought most of them would do).

They are sacred stiff of their own mortality and to voice mine would mirror theirs.

I think I prefer the honesty…[Read more]

[b]'Accio myeloma disappearus'[/b] – that's the spell but my peripheral neuropathy is making it difficult to work it properly.

get your wands out people… flick and swish: [b]'Accio myeloma disappearus'[/b] 😎

Dai.

(We went to the Cinema on Wednesday and watched the final Harry Potter film in 3D – 9.5 out of 10)

I know the feeling Min and I fully understand Peter's position…. but he has to seize control… he has to demand a sit down with his consultant and lead nurse and list his concerns. Its no use him fighting you over his treatment… you know when to act as an intermediary concerning practical health matters and you have a clearer idea than him…[Read more]

Thank you Roz… I missed your garden post but I like the simplicity and clean lines of japanese gardens and yours looks very similar… a rake and some weedkiller and you are away. 🙂

Hi Bridget… I was amazed at myself by how easily pleased I was. Janet stopped off at a petrol station mini-supermarket and I bought smoked cheese, sausages…[Read more]

Come the time and I'll be their Huckleberry!

I have only ever tried drugs the one time… I was a mature student (about 23) and I shared a room with a London Brickie and Poet (one and the same person). He was into cannabis and knew his stuff… I preferred 'Bonnington's and Robinson's Bitter… I have never smoked cigarettes, not then or…[Read more]

Me? I'm lost for words at the moment… I feel close to him but more later.

Lots of love to you and yours. xxx

Dai.

I would recommend backing off a tad on the Oramorph at night Bridget… but I'm so intrigued by your dreams that I think I'll actually encourage you… and trying upping a couple of mls to see what occurs. 😎

Good morning Gaye… four days of good weather forecast for the east Midlands…. that should please all the farmers around here (ratio…[Read more]

Hi CN thankyou for this it certainly sounds promising and shows you shouldnt ignore things just because of their previous application Heres hoping it doesnt take as long 10 years to reach patients . Take care love Bridget x

Good Morning Gaye if you are popping in this might make you smile ! Last night I had a restless night full of strange and very vivid dreams Guess what you turned up in one! I dreamt that you were looking out onto a lovely garden from your room But each shrub and tree wasblossoming with bras of all shapes sizes and colours !! You and I then had a…[Read more]

Hi Eve thanks for that made me chuckle ! That woman probably didnt even realise what she had said!! As long as we can keep laughing we will be ok love Bridget x

Yippee ! There is nothing like a good day at clinic to lift your spirits Even better when you manage to get out of there in record time!! Your post made me smile becauseI think we are all probably the same in being cheered up by something as simple as not hanging around clinic for hours on end !! Enjoy the breakand by the time the next cycle…[Read more]

Hi Min how crazy to expect Pter to make an arduous journey like that let alone the risk of others bugs etc Having only recently seen how much authority the Macmillan nurses have I agree they probably have more chance of finding a solution thats best for Peter It does seem unfair that those who shout loudest get the best care but thank goodness…[Read more]

Dear Sarah it shows how many people cared about Gordon to have such a good turnout , it must be a help for you to know that . I bet Gordon would be pleased his red tractor is sitting idleand I am sure he watches over your son. What a wonderful family you have Sarah , to raise such a fantastic amount of money , especially as it must have been a…[Read more]

Sarah, it sounds like Gordon was loved by many. Im glad that he had a good turnout. I hope you are ok and make sure you look after yourself
Gina xx

Min you shout loud, we have learnt to do it and it works. when mum is at home and needs bloods the nurse from our surgery comes to the house to do it now. So it can be done.
I really hope things get sorted for you and peter and they start to listen.
You take care and keep us updated.
Gina xxxx

Hi Gina good to hear your mum is feeling better It is so frustrating to be stuck in hospital when you start to feel better but I am sure she realises hospital is the best place for now .I hope the results were good its about time your mum had some good news love to you both Bridget x

Hi Nettie, Jo and Dai I dont know for sure what comes next as clinic isnt until next week , hopefully I will have had the ct scan by then . Jo its funny but I had completely forgotten about Thalidomide and as I havent had it before it may well be my next treatment either on its own or with something else . I am assuming that as Revlimid hasnt…[Read more]

Good for your Dai
Life is for the living and its your duty to live it to the best of your ability,,even with one leg bigger than the other.:-P
Janet must be a very brave lady letting you drive,Slims on the Dex and once more has been band!!:-)I love driving LOL don,t tell Slim any excuse to get behind the wheel.
Tomorrow is another day.Eve

Start shouting… make demands… get guarantees that Peter will receive the same level of treatment and care at home as he would in a 'best condition' ward. I recall my SCT and I would have hated to have been at home without the proper support of healthcare professionals… be they MacMillan or the District Nurse team – co-ordinated by a lead…[Read more]

Well I woke up tired this morning… but with a determination to remain positive and forward looking. Its all in the head I am sure but I felt very positive as we set out for the hospital and even drove for the first time in a while… it felt good and my left leg…( which was looking grotesque just over a week ago..). is looking more or less…[Read more]