I was in the Day-Case Unit at City Hospital, Nottingham this morning and just missed Jet leaving for home.

So that is Keith and Jet home… with Debs hopefully hot on their coat-tails… good luck on your journey's to recovery peoples… take it easy but take it… trust your instincts, listen to your body and good health. 😎 🙂

Dai.

Time out!!!

That's it… infusion No.4 of Cycle 5 complete… I now have my 10 rest days (first 4 usually grotty with a gradual build up to feeling pretty good by day 10), with platelets, neutrofils and HGB on the up towards the end…

Only this time I will not be starting Cycle 6 because it would mean a break mid-treatment for my holiday…[Read more]

Hi Bridget,

I am glad that the tumour is myeloma related.. and that the radiotherapy is lined up to nuke it. I am however sorry that this means the end of Revlimid as a frontline treatment… as Jo says, perhaps thalidomide on its own or in a combination as a maintenance therapy might be the way forward.

The Americans, led by Dr. Berensen…[Read more]

hello bridget

swear and cry as much as you would like this b*****stared disease gets you on the edge of madness you where right about the pain you said it was something different this time again.Have you spoken to them about thalidomide you didnt have it first time round look at Peters results it seems to have worked for him when the other…[Read more]

Dia

you always manage to put into words what many of us are thinking and are not able to put into print as well as you do. There will always be dark days but we should be able to put our shoulders back and face the world never give up,we must fight to live not give in and die;-)

Reards Jo

Hi Gina

glad your mum is feeling a bit better I really hope this is the last of it I can understand her wanting to come home as there is no rest in hospital your own bed is always best but convince her if they think she should stay she must

lOVE jo x

Dear Julie
Thank you so much for your promt an informative reply.

I do understand how difficult it is to compare the two lifestyles as our house in Spain is also mainly on one level but rather big. Basically I can do what I want when I want there and my husband is proposing that we take our horses on holiday with us as we have facilities for…[Read more]

Hi Dai, your posts always make me stop and think. I admit i do come on here and its mainly when things are going wrong for mum and i need the support on here from you lovely people that understand.
My first port of call in a morning used to be facebook but now its here, its like picking up an newspaper and reading what is going on in your lives,…[Read more]

Hi Dai
At least you have explained to me why I am always laughing,Never looked up the Wilki for meaning of Gallows Humour just thought it was me,always have a weird sense humour,some times i find myself laughing at the weirdest things, I just thought it was the scouser in me,plus the pills [magic].As long as I am laughing and not crying,that,s…[Read more]

Thankyou what would I do without my lovely cyber friends to keep me going Sarah thank you so much for your post I have been thinking of you this week . Dai it is definitely a myeloma tumour , the mri showed an increase in myeloma apart from the tumour . I think the plan may be radiotherapy , hence the ct scan to get precise measurements, possibly…[Read more]

Hi Min
Just here to send you good wishers,Eve

Hi Bridget
So very sorry to read of your rotten news. You are most certainly allowed a good long rant because I know having read your posts over recent months that the minute your short lived (by my standards) rant is over you will brace up, buckle down or whatever expression suits and once again face whatever you have to with determination and…[Read more]

Thank you Dai – perfect.
Do you think it would be good to hear from people who are enjoying some of the ·good new· times or perhaps setting themselves a goal, big or small and how they get on? It would certainly help keep me motivated in trying to achieve my own little ·daily/weekly etc. goals. It can´t be all doom and gloom or this stupid ill…[Read more]

Hi Sally
As usual all the lovely people on this site have given you some excellent advice but I just wanted to say a quick hello. All I can say is that I thought I appreciated my husband before I started treatment last year but having got through the transplant and a slow recovery I have felt so sad for anyone who has no one to support them…[Read more]

Hi Meera
I don´t have any knowledge of plasmacytoma I´m afraid but I did see a mention of it under one of the other topics. I´m sure you will get plenty of response from people with experience of this as soon as they see your post. I´m sorry your struggling with the tiredness – I am very tired and stuggle to even do the housework let alone loo…[Read more]

Hi Bridget
Instincts are a wonderful thing,and we all need to listen to them,as you say you know your body best,better to deal with it,!!!.
Min i thought you have been too quiet,I know what you mean about so much bad news,but that,s what people are here for to help to laugh and cry with you,you yourself made me realise,there is someone out there…[Read more]

Hi Julie
Glad to hear you are stable.
I am curious to know if you feel spending a lot of time in a sunny climate helps with some of the effects of MM? We lived in Spain until three years ago when we had to return to England as we had an elderly mother who was beginning to need care. However, we are now in a position whereby we could spend…[Read more]