Hi Ted,
No you are not the only man on here,if you look at the average person to have this diseases its,men of black race age 70 years,???? I know but thats what facts and figures say.:-P
I think,we see more younger people on this site,because the average age on people who use computers are younger.
We have 2 Davids and a smiley Tom,plus are…[Read more]

Hi Bridget,

I am angry for you… angry with your tumour for forming just when you seemed to be finding a little breathing space… angry because it is one step froward, two steps back… but not for long I am sure.

You say the tumour is deep… I suppose they now have to identify if the tumour is myeloma related or a secondary, unrelated…[Read more]

Hi Liz
sorry you have had to join this site,but you should find help here.
I think the section that might be more help would be related conditions,
I have no knowledge of anybody with this condition,but i do know mm attacks the soft tissue sometimes.
You could also try the myeloma nurse on this site,phone or send e mail,she helped me with some…[Read more]

Hi Sally
I am a carer for my husband,If I am honest as much as my husband use to be a very capable man,this mm has taken an awful lot from him,and he would be the first to admit ,he does not know what he would have done without me,saying that my husband had septic pneumonia and ended up 22 days in hospital,he has always been a fit man,ex royal…[Read more]

Bridget you swear as much as you like. You know your own body and like you said its a good job that you asked them to check. I really hope things start to go right for you soon, its just not fair.
You take care
Gina xx

Great news Jet !! There really is no place like home and a spell in hospital certainly makes you appreciate it all the more . I hope your throat heals quickly , it is horrible when you cant eat or drink Dont forget take it slow when you get home ! love Bridget x

Hello Sally

so sorry to hear about your dad and your mum it must be difficult for you to see the people you love suffering in one way or another if mum is mentally ill there is not much can be done for her until it is recognised
as for your dad the main problem with the treatment can be for some people extreme tiredness it seems to take all…[Read more]

hi Eve

At UCH they offer the injections which go just under the skin subcutainsly
(sorry wrong spelling i am a terrible speller) I know two people who are having it that way it has much less side effects and much easier to administer you should look it up I know you are good at doing that

Regards to Slim
Love Jo x

Hi Everybody
Min the problem with dex is we do not have it to take,in the morning,trial day one take vcd,will not give us dex until blood results come back .so 9 for bloods 1 oclock for injection then,rest of meds sent for got out at 3-30 in afternoon.Stupid i know,were did commen sence go!!!!!!
Bridget I asked about picc line after reading…[Read more]

Roz that garden and bench is gorgeous! i'm sure that Michael will be there in spirit sat on that bench and looking out at your beautiful garden.
Hope that you are ok.
Take care
Gina xxxx

Hi Min I hope everything is going ok so far How disappointing that they dont have an isolation room for Peter , I would have thought that was the highest priority for sct patients I agree with Mavis its a good job Peter has you to watch out for him , but it saddens me that you should have that extra burden at a time when all you want is to help…[Read more]

Hi Gaye,
Just following on from Dai, its sunny at the moment in Ashton under lyne, and my washing is out(for now):-). Hope that you are enjoying that garden and keeping comfortable.
Take care
Gina xx

Hi again Ted, happy belated birthday, hope you had a lovely day. I also hope you have many more birthdays free of treatment. Hope you are ok.Please keep in touch to let us know how you are doing
Take care
Gina xx

Hi Eve I just read your post and am now hopping mad , alright I am on a dex comedown too!! How can a nurse come out with such a c**p comment about the PICC line and really what is her opinionin the scheme of things!!! I thank goodness the team at UCH look at my overall welfare first and foremost , whether it is side-effects or the extreme…[Read more]

Hi Eve,

Quick question… what strength of Velcade have they started Slim on?

I started on 2.79 for the first two Cycles… 2.1 for the third and 1.49 for the fourth and fifth… each reduction being necessitated by side-effects… something to watch out for and to consider. I'm glad they started high because it obviously worked in…[Read more]

Hi Ted
Never forget you are 80 years YOUNG,happy birthday,A life is a Life and you make sure you enjoy every minute of it.:-)

As Bridget say Gp come across Myeloma may be once in there life time,I changed my gp to another one in the practice who had a little bit more knowledge and was willing to learn more about it!!.
Please,do not feel,a…[Read more]

Hi Gaye,

Just in case you look in… today's weather (Wednesday) is better this morning in the south but has the promise of showers later, so if you are venturing in to the garden get out early. 😀

I imagine you are now limited to your normal medications… plus any extra needed day by day… I hope that you are both comfortable and stable…[Read more]

Thanks Everyone for your replies
We got there at 12.30 for a one oclock appointment.As the bloods were taken previous day ,Saline drip first injection into it then more Saline sounds easy.left hospital at 3.30.Slim had to take tablets on same day so dex taken on the way home,he has been up most of the night and this morning more dex.so full of…[Read more]

Hi
So sorry things have not gone as smoothly as they should have done.
RegaIrding the Myeloma 11 trial I have been on it for the past year. I can only tell you that in the main I have been very well looked after and the only time when I have not felt quite so confident was when I went for my sct and was not under the direct care of my own…[Read more]