Hi
Just a quitck note to say welcome to you and your family and sorry your Dad is having such a rough time of it.
You and your Mum are doing a smashing job and I am sure your Dad must feel so grateful to have the support of such a lovely family even if he can´t always show it when he has to take some of the medications – they do make people…[Read more]

Hello
So sorry you have all had such a sad and difficult time – and indeed still are. Even though you sound to be coping bravely you must be worried sick yourself whilst trying to be reassuring and positive for your dad. I´m glad you came here to talk as there are lovely people here who understand how much of a help it is to get things off your…[Read more]

Hello Eve

thats awful news you were quite right to be apprehensive it must have been a gut feeling you had I really hope velcade works this time for him have you asked if he can have the via injections instead of having a line fitted I know some hospitals are offering this now regards Jo x:-P

Glad your home at last Keith do try and keep well I feel sea air always does you good deep breaths and lungs full of the stuff
I really hope things go well for you

Regards Jo

Hi Eve well at least you have a plan now and the waiting is over I always find waiting makes me more anxious Velcade is a great drug and works well for a lot of people The first time I was on it constipation was a big problem but the dose was lowered and I took 3 forms of laxative every day Unfortunately the second time I was on Velcade it was…[Read more]

Hi Eve i can only go off my mum, although she isnt on any treatment at the moment because of fluid on her lung. Mum only had one week of velcade and her proteins went down 10%. The only side effect she felt was fatigue. She went in and had fluid put in and then the vecade. The reason they put of mums velcade is because her kidney function had gone…[Read more]

Good morning Ted I hope you have a wonderful birthday celebrating !! I think it doesnt matter how old we are we all want to have the best we can out of life! The trouble with myeloma is very few doctors who havent treated myeloma patients will have come across it and they read up on the bare facts without realising all the different elements to…[Read more]

Hi Eve,

My Velcade experience has had its drawbacks in terms of side-effects but to be fair it has worked very well… spectacularly well in fact, in the reduction of my kappa light chains… which is the primary purpose after all. I went from 246 to 13 after 2 cycles and 13 to 11 after the next (under 18 is the Complete Response marker so the…[Read more]

Hi Keith,

I am sure that there is relief all round that you have moved through the sticky bits to home-base.
Take your time with your recovery… but you know that.:-)

I have enjoyed quite a few good walks over Loftus and Saltburn Cliffs in my time, having a good friend who lives on Loftus Cliffs… the air along that coast is bracing…[Read more]

Hi Keith good to hear you are home where you belong and you conquered another obstacle with style!! Your wife and family must be pleased and relieved to see you getting better too Enjoy the lovely sea air just dont overdo things this is one time in your life when it is better to ignore any chores or things you have been putting off , they will…[Read more]

Hi Keith,
glad to hear that you are home again, hope you are feeling well in yourself.
That sea air will do you the world of good.
You take care
Gina xx

Hi Keith

glad to hear the good news,so nice to hear someone is doing well,The sea air is wonderful,I do not think I could live far from the sea its in the blood,i actually need to be near the sea.
best Wishers eve

Thank you Jill, its the not knowing why she has got this fluid in her lungs, but hopefully the results will come through soon.
Thank you for that it puts my mind at rest a bit. lets hope its the same for mum fingers crossed.
Gina xx

Dai, you keep your chin up. you always keep us sane on here. you are entitled to down days. I hope you start to feel better soon and take care of yourself Gina xx

Dear Dai you have had the rottenest luck with Velcade , no wonder its getting you down! I d hope your leg and ankle continue to shrink being unable to get about as you normally do is so frustrating Over the last 5 years and countless treatments there have been several times when I had thought a problem was solved following logical thought…[Read more]

Today (Monday) and Thursday for infusions of Velcade and then 3 weeks off (including rest days and holidays). I am going to have to whinge and bear it because unfortunately the first two infusions of this cycle (5) have left me feeling awful… which is strange because the strength is the same as Cycle 4 and that was a breeze (apart from the…[Read more]

[i][b]'You have to understand that those people who are currently undergoing treatment cannot make plans as far ahead as November! Because with the best will in the world they simply do not know if they will be well or undergoing a treatment which makes them feel like sh**[/i]* '[/b]

Min has hit the nail on the head in my case.

Which is my…[Read more]

Hi Roz wow the garden is lovely you must be very pleased with it The bench is so unusual did you have it made? You will be able to enjoy sitting out there and I am sure Micahael will be right there with you Hope you are doing okay love Bridget x