Hi Mary lovely to hear from you How brave you are to do a sky-dive I cant even stand on some steps!! Good luck with it I bet your dad would be very proud of you Have a wonderful tile in Ireland and although wont be there physially he will be there in your hearts and memories so raise that glass for him love Bridget x

Hi Dai what a nuisance but thank goodness they did identify it in the end. I really dont envy you the stocking and injection routine , just remember not to rub your belly when it stings cos thats what makes it bruise I only found out after several days and my stomach was one big bruise!! love Bridget x ps it will save Janet going to the gym too as…[Read more]

What a nightmare for you Dai, i do remember the stockings and injections after having an operation myself quite a few years ago. Its not a nice thing.
I am glad that they know what it is and are sorting it.
I do hope that you feel better in yourself soon.
You take care
Gina xx

Ah well (Mk XCCVIII),

I finally got Doppled and the Doctor was very thorough. Its definitely a DVT and quite a large one by all accounts. I had a nervous moment when he decided to track up into my stomach… but all clear… the DVT is in my upper leg (my bet was nearer down but what do I know).

So continuation on Enoxoparin until my…[Read more]

Hi Sarah,

I'm banned from driving (by Janet) until they sort my leg out. I was completely and utterly surprised on the way to the hospital, via the scenic country route, when Janet burst into tears saying 'poor, poor Sarah, what she must be going through'. I had to get her to slow down (she wouldn't stop) to wipe her eyes and she followed up…[Read more]

Hi Mary,

You and Theresa are often in my thoughts and much more so over this week-end when we lost one of our own, Gordon,,, to this damned disease. Like Patrick we never had direct contact and received all his news from our dear friend, his wife Sarah.

Please raise a glass of the black stuff to your Dad on holiday and I hope you thoroughly…[Read more]

Hi Jill,
We spoke to the gp about them and he asked us to half the dose,when mum went to hospital on monday her blood pressure was ok so you may be right. The good news as they told is her protiens have gone down from 107 to 97 so the velcade is working.
The bad news is that mum only had 2 days treatment but when we went on monday they said she…[Read more]

Hi Mary, hope you are ok. Am sending lots of positive thoughts to you on doing your skydive,im sure you will love it.
Take care
Gina xx

Hi Pam

So sorry to read your Dad Passed away,Hugs sent (((()))))))) Condolences sent to you and your Family

Love
Tom xxxx

Hi only me! Great to get an update on your mum, hope all goes well going forward. Dad is still on CTD on cycle 8 and still levels are dropping nicely. We have been told he is suitable for SCT and had no suggestion of velcade etc as an option, Dad feels really drained but it would be another few months before he gets his SCT should he want to go…[Read more]

Dear Pam I am sorry your dad did not have longer with you, but as Eve said he was spared having to go through treatment which would have been hard for him . He will always be with youso treasure your memories Take care Bridget

Hi Craig
Do you see what i mean about Dai,i hope you have signed him up.sorry no pressure Dai!!!!:-P .I think he would be ideal!!!

To Dai,boffins are no different to me and you,i have a good friend who use to be a boffin,and on a social level you would not have known it,
no pressure Dai.Eve

Hi Pam
So sorry about your dad,I know what you mean,when you look at other postings and this mm has no age limits i think the youngest is 29 on this site,also young mums with very young children.:-(
To me a life is a life and does not have age barriers,you still loved your dad and cared for your dad and did not want to see him with any more to…[Read more]

Hi Helen
Glad to hear your feeling a bit better slowly and congratulations on the 5 mile walk – you must feel as if your getting somewhere now.
Do you know what causes the stiffness in joints etc. – mine is so bad I walk like a penquin if I have been sat down for longer than 10 mins! Even my finger joints are stiff and painful.
I think Tom…[Read more]

Hi -whinge away! sorry your having such a poor time of it. I am nearly at the end of month three of this latest round and am on 25g and feeling pretty fed up. Regarding the sweating no I don´t have that but do have rashes and sheer exhaustion – I am now only managing 4 hours before I have to lie down again for a few hours rest and trust me I`m…[Read more]

Hi Laura

Sorry you have joined us – I`m sure you must be so worried about your Dad. I didn`t have thalidomid but other chemos give similar side effects and they gave me some smashing tablets that really helped with the sickness – please do ask for them. As mentioned already I too found that taking the chemo at night helped a lot.

Take care…[Read more]

Hello Mavis.
I also chose not to have an SCT I dont regret it
I go to the EUCHARIST every week at St Albans abbey I pray for everyone
of my cyber friends
God Bless Jo

Min has hit the nail on the head IMHO. We are subjected to a 'one size fits all' and, thanks to NICE, we also have to have certain treatments in a certain order – for instance:

When I started treatment the order of play was:

CDT – SCT – Velcade – Revlimid

+ various experimental treatments at differing stages of development…[Read more]

Hi Helen I hope your mums doctors will help you feel less anxious after her appointment today Unfortunately once myeloma appears it does change things , especially in the beginning when everything is new and scary. I promise you it really does get easier as you see your mum coping with various drugs and you start to know the names of all the…[Read more]