Hi Jet good to hear things are going well , I never doubted your positivity would get you through it without too many problems!! Debs is home , feeling rough but at least she is with her family which helps a lot . Remember to try not to overdo it and give in when your body needs a rest love Bridget

Dear Sarah and Gordon thinking of you both love Bridget x

Hi Peggy good to hear things are going well , long may it continue ! love Bridget

Hi peggy
glad you are feeling a bit better let us now how you get on with the rest of the treatment
Love Jo

Hi Gill
I know what you mean when you say privileged ,I am not religious ,but i do thinkwe learn so much about life in times like these.
No one wants to go on this journey,but in many ways it is not only a learning curve but it puts life in perspective,and in turn enriches it.

Fifteen years ago i started another journey.My grandsons,again a…[Read more]

Hi Sarah
Keeping up with your post just so you know you are never far away from my thoughts. Eve

Well Dai

Whats the verdict !!!!! I know your enjoying the massage so much you have forgotten to tell us.LOL:-) Love Eve

Hi Peggy

Glad to hear you are up and about,sounds if you are feeling a whole lot better,Its amazing how much information you manage to absorb ,and how you get in to routine,so glad your well keep posting Eve

Hi Gill
Its in Side Effects,under Starting Therapy, I missed it completly then when I saw it realised Lara is new to forum,and no one except Bridget had replied ,could not help her just welcome Lara to the site, love Eve

Hi Keith,

The home bit threw me… rather you than me was my first reaction. Not because of any hygiene or general health issues, I am sure that you have everything covered in that respect… I was thinking more along the lines of being left alone to get on with it. Still, I can see the benefits of being surrounded by familiar things… and…[Read more]

Hi Ivan,

I think I will be the third person to raise the matter of going to work in such a variable environment re: people and bugs and germs etcetera… perhaps it might be judicious to ring your bleep holder (if you have one) or your lead nurse or failing that anyone at the centre where you attend for your MM matters.

I really would seek…[Read more]

Hello Keith

glad its all over and you are back home fingers crossed things will only get better from here
Love Jo;-)

Hi Jet

really glad to see you are coping well after you at last got a bed lets hope you sail though this looking forward to your next blog you should think of turning it into a book
Love Jo:-)

Hi Gill, hopefully mum will start to feel better soon, it is only her 2nd day of velcade so early days. She has that many drugs that she is rattling. The gp said to half her blood pressure tablet and if blood pressure stays low then to ring him back. He said that the reason he is keeping her on them is it protects her against heart disease and…[Read more]

hello Lara
sorry to have missed your post sorry to hear about your dad just to tell you I am type 11 diabetic so while on the CDT I had to have insulin as the steriod raised my sugar levels to an unacceptable level I hated this but did not have a choice just to say when I finished the treatment I was able to go back to tablets so you dad should…[Read more]

Sounds like its been a long rocky road Dai, i hope that you are feeling ok now and here is to many more years and many more miles 🙂 Gina xx

Hello again Ivan

DEX is awful we here have invented a word DEXITUDE my husband thought I had turned into a monster I think the lack of sleep does it. Its not so bad if you take the Dex first thing in the morning and the thalidomide last thing at night you then might get a bit of sleep I would be careful if you are mixing with a lot of people…[Read more]

Hi
Sorry for the delay but only just read your post. If it helps my level has gone both up and down in the past (by quite a lot) and I often thought it was when I was very tired or under more pressure at work.
Hope your getting some answers – it´s difficult to ask when they always seem so laid back but remember they know all about it and we…[Read more]

Okay – Blog On!

I have my consult on Monday, previous to starting my next cycle of Velcade = Cycle 5. Cycle 4 slipped by almost unnoticed due to the kerfuffle with my left pin but overall it was a very good cycle… by far the best regarding side-effects… its just a matter of seeing if the reduction in strength (Velcade – from 2.1 to 1.49)…[Read more]

Hi Jet

Thank you for taking the time to reply at such a time. So pleased the ice cube trick seems to be working for you so far. Sorry to hear you had such a poor time of it with Revlimid – to be honest I´m not enjoying it much either but do have the occasional good day when I wonder what I am whingeing about and feel very optimistic!…[Read more]