Hi, only just read about your situation and was horrified. So glad you seem to be getting the right attention now but sorry that you have all been through so much just to get to this point.
Congratulations on your wedding – who needs money if your together?
My very best wishes to you all and prayers for your Mum that her strengh improves a bit…[Read more]

Hi, I had my transplant in February of this year and have not had "achey legs" (but still have a lot of back ache etc.) However, I too am very tired but suppose this will improve when I finish my current round of chemo. Has anyone retuned to their "normal" energy after transplant? – Suppose its asking too much but it would be lovely to think we…[Read more]

Thank you so much for your replies. Mum started her first treatment today, she was given an anti sickness drug which more or less worked straight away. She was then given fluids before the velcade. Mum was also given tablets anti inflammitories, something for acid reflux,. She was also given an injection in the tummy. The nurse who looked after…[Read more]

Hi Ozzy

Well I also went back to work Light duties after 6 months post stem cell transplant, yep i was tired but no probs with the legs, but have to admit I still get tired but am sure I will have to cope with it 🙂

I would see the Dr re your discomfort and am sure some one else will pop in and might have an answr for you

Good…[Read more]

Hello Eve

I was dissapointed to hear about Slims result do you think they have given you the correct information as it seemed he was doing so well it really cheers you up doesn't it! when some consultants say such callous things what Slim needs is positive things not negative I think you have drawn the short straw in what they call the post…[Read more]

Hello Gill
I really glad Stephen is a bit better and home again it nice when someone looks after you and cooks tempting dinners I hope he enjoys them
As for the Thalidamide my consultant told me of the costs when I started which I thought was a huge cost as it has been around for the last fifty years but I was grateful to have it the funny thing…[Read more]

Hello Ivan

I think some times alternatives are as good for the mind as the body I see no reason why you could not take some cumin along with the regular chemo as long as they dont fight I have also seen that cinnamon is another good spice that might help fight cancer if it helps do it the medical proffesion guess it half the time anyway as you…[Read more]

I remember asking my consultant about Curcumin/Tumeric a while back… it was a parting aside about diet and supplements in general following a quite positive session… and I caught something I can only describe as pity in her eyes… almost as if she was saying that 'despite our conversations about medicine and science you still want to hang…[Read more]

So sorry to meet you like this – we all understand how shocked you and your family must feel. I don´t know if this helps but I was diagnosed in 2005 in my early 50´s and remained very well until last year. Even when they decided we had to start treatment I was still working full time although I did feel very tired by then. Anyway, here I am, j…[Read more]

Thank you Sarah and Bridget,

I don't want to give the impression that I am going to raise a brouhaha when I go in tomorrow, I understand that the vast majority of the staff are dedicated to delivering a first-class caring service and that applies especially to all the staff that I meet on a daily basis… most of who I know by name and many…[Read more]

Hi Jet good luck for this week I m sure you will be home in record time just hang in there !! Remember not to try and rush things too much , your body needs time to get over it so rest when you need to !! love Bridget x

Hi Dai like Sarah I am blooming well gobsmacked at the date you have been given for a minor procedure that could save your life!! Good luck tomorrow , give them what for! Well at least my local has got a good system for DVTs and when it was thought I had one the scan was immediate even though I was brought in late at night !!Mind you they fall…[Read more]

Hello Jet

i also cannot give you any info about SCT as i havn't had one either but I will be thinking about you with fingers crossed for monday

GOOD LUCK and a big (((((hug))))

Love Jo xx;-) 😉

Hi Min,

You are spot on regarding the Doppler treatment. God forbid that I croak over something as stupid as a DVT because a medic couldn't be fished waiting for me to arrive for what is nothing more than a 5 minute procedure… and in truth I don't believe that that is going to happen… but I'm sat here watching the Grand Prix, stuffed with…[Read more]

All the very best for Monday Jet… once it is under way you will find your rhythm and measure and your coping mechanisms.

Internet connection is free, you just ask for the current code (the network in Fletcher is 'Netgear'). You will be well settled… post mephalan, stem cells returned etc., before you have to start 'coping'… I know it…[Read more]

Hi
Looks if Apprehensive was the right mood for me,came away feeling what a waste of time,and lots of conflicting information,when I asked for statics ,information not forth coming,on another point told bone marrow results had not improved,asked % wise damage,did not have that info but file was on desk!!!.Told all the way through everything…[Read more]

Hi Gill so pleased Stephen is feeling better . I am sure he will soon get his appetite back now he is back home with you looking after him Please make sure you look after yourself too though !! Hows the puppy? I hope she has learnt to perform in the right place now!! love Bridget x

To moaning Min
absolutly!!!
xx:-S

Dia

10th of august well I really call that an urgent appointment I think its a docters duty to treat ill people even if it makes them a bit late did they join the profession to care or what!:-/ it makes me so angry, my bother in law has had a scan and they have found a suspicious lump in his stomach that was two weeks ago his first appointment…[Read more]

Hi Ivan

Good luck with your CDT it really worked for me the only other thing I would say is its much easir to take the steriods with a yogurt in the morning and you will need a laxative as thalidomide can cause constipation.
Did you know how the discoverd that thalidomide worked for myeloma, they were treating someone who had…[Read more]