Hi Everybody
My little fix it was on prescription,I can only say it has worked,:-S 😛 🙂
just taken one heee that made you laugh.it does help.
I can honestly say normally do not touch tablets,but you cannot keep crying or raging,it worked for me!!!
Love Eve

Hi Jet
I wish you all the luck in the world,it is good to see someone doing so well,
as you know from post some people struggle, when you are in this position it is not very nice!!!!!.
There is an old saying (who wants to live till there 90,the person who is 89) so I do not think it is different what ever your age,I think you are very lucky!!!
Eve

Hi Gill
So glad your out of hospital,do not worry about the emotional side .
Just take things slowly and try to do a little bit more each day,if you feel tired give into it your body knows best in this case,you will get on your feet again,just takes sometime.:-)
Make sure your wonderful sister takes a break,she will find it takes a lot out of…[Read more]

HI Sarah
Missed the post on Yorkshire did not show on emails either!!!!
Well at least Gordon tried it is very hard for them to admit they can no longer do things,i think that is why we have these battles with them,but it does show they are fighting this b—d Myeloma .

I take Citalopram 20mg,It does work stops you dissolving in tears,or…[Read more]

Hi Sarah poor Gordon not much of a break for either of you! Is the damage to his hip due to myeloma or is it steroid damage ? My right hip was destroyed by the huge doses of steroids but thhe hip replacement sorted it out and I have not had any problems with it The Blue badge is easy to apply for , its usually your local council, give them a…[Read more]

Hi Helen,

The muscle pain should be the residue from the GCSF and should go pretty quickly – I am so glad your numbers were good, hopefully enough for 2 SCT's (usually 5 million or more but 4 million will be enough).:-)

I hope you get your dates sorted out soon – there are plenty of back posts that give you information in that regard and…[Read more]

Hi Helen,

I had the Stem Cell Collection from h-e-l-l … 5 days on the m/c including 2 late night return visits to the hospital for very expensive Pleriaxafor booster injections which scraped 2.1million cells… the bare minimum for 1 SCT… and I wasn't 'wiped out' at all. Apart from needing the week-end to recover from a busy week I was…[Read more]

Hi everyone thankyou again for your best wishes Jo I hope you had a great week with your grandson , I bet he was excited!! I am still plodding on , but my macmillan nurse is back from leave and its been agredd she will make any changes to my drugs It was a real pain being prescribed something only to have it completely changed by the next person…[Read more]

Thank you Bridget,

You are right of course and the voice of reason as always.:-)

I have every reason to be happy and I know that I am… considering what I have achieved so far. I have said that I can't complain and to that I should add that I am very happy to be where I am… and hoping to be happier still as my treatment progresses.:-)…[Read more]

Hi Pam
I can´t add any more to the comments you have already received. Just wanted to say how sorry I am that you are going through this awful time and wish you all well in the weeks to come.

Very best wishes

Carol xxx

Hi Dai congratulations on your good news and it is GOOD NEWS!! You are within the range and there is a high probability your numbers will drop even more by the time you have finished . I have heard good things about the once a week dose and if it does the trick it might be worth taking it a slower . I have no doubt you will achieve CR in the end…[Read more]

Hi Scott & Gill.

I had my consultation yesterday followed by Velcade Cycle 4/1. My Kappa Light Chains reduced from 13 to 11 and although I was slightly disappointed my consultant was happy. She explained that CR starts at 18 and goes down to 0… so both 13 and 11 are well within the technical range of CR. On hindsight I am happy because I…[Read more]

Hi Pam

Am sorry your Dad is having problems and might have MM.

Your Dad will be treated for his illness whith his other ailments in mind, bearing in mind your Dads Pain there is loads of pain relief that can be given to help its just finding the one that works best with little side effects.

Love and Hugs sent to you all.

Tom "Onwards…[Read more]

Hi Debs your dinner sounded awful !When I was in having my sct all I wanted at first was jelly!!My mum made some and brought it in but you can also buy it in individual pots too Get someone to get you a couple Fingers crossed the next bit isnt as bad as you fear it will be Keith good luck with your sct , it will be over before you know it and…[Read more]

Hi Pam so sorry your dad is having such a rough time , it must be awful for you watching him go through it . It sounds as if your dad is being well cared for in hospital which must give you some peace of mind If it does turn out to be myeloma I am sure they will be able to manage treatment to suit your dads health , they wont give him the strong…[Read more]

Hi Gill C,

Hope you get out of hospital soon, my dad was diagnosed in January and had Radiotherapy which has helped with pain, he has a mass of myeloma at the bottom of his spine and hip. He is on CTD and other than tiredness is doing ok. We're all rooting for you on here and here to help!

Gill re:constipation, make sure you take all the…[Read more]

Hi Jet,

Loving your new profile pic it suits you! My Dad is being considered for SCT so I am finding it great picking up all the comments on your question. He has been told its not something to go into lightly as the blast of chemo is likely to make him quite ill for a week, however he is 62 so they are having a meeting to discuss. So far he…[Read more]

Hi John I do hope you remain symptom free for a very long time yet The treatment can be demanding , although consultants are generlly very good in working with you to find the right treatment to keep some quality of life balance The other thing in your favoir is the time to research all treatment options Provided you are generally fit and after a…[Read more]

Hi Jet I love your pic , you really suit having no hair it shows what great bones you have ! My sct was 4 years ago and I was petrified going into hospital , like most of us going into the unknown. I had the sickness and diarrhoea but I was lucky not to have too many problems with my mouth or gums . I had absolutely no energy whilst in hospital…[Read more]

Hi Gillian its good to hear you are doing well and I hope you can get home next week, there really is no place like it Your new house sounds exciting , even if it is a big undertaking !!You will get some normality back , probably sooner than you can imagine right now ! The main thing is to rest when you need to , dont try and rush yourself to do…[Read more]