[b][i]'But by the time you buy the 12 inch hot dog and giant popcorn they get it bac[/b]k!'[/i]

Its a good job you didn't have one too – it would have cost a fortune! :-0

Seriously though Min, its good to see Peter taking an interest (in the weights) and showing a willingness to get out and about (the cinema). It would be so easy to say…[Read more]

Hi Jet,

[b][i]'I've had different responses from different medical staff regarding how I'll actually feel in terms of energy, weakness, appetite, etc.

One nurse gave me the impression that I'd be completely wiped out, have no energy, need to sleep a lot, lose interest in food and not want to see anyone or do anything for quite a few weeks…[Read more]

Hi Min
I could not get in to the link,my brainy laptop will not let me access it.
How are things going with you.?
Eve

Hi Jo and jean and you Bridget
Nice to hear from you jean,
Jo I know that area so well,Tyne-E-Pull,spelling not good,use to be outward bound centre for waives and strays like me.:-P lol thats going back years.
Colamundy nr Mold another place.loved Betsy coede,Dai will be able to spell those names correctly. Climbed snowdonia many times I…[Read more]

I agree with Gill… good news is in short supply at the moment so your news is most welcome.

I think that sometimes people are reluctant to post items of good news, remissions, successful treatments etc in case it is deemed to be crowing or being insensitive when others are going through the mill or just starting their journey.

Personally…[Read more]

Bara-Brith is basically a Welsh fruit-loaf (literally 'speckled (or mottled) bread'. It is delicious on its own but much better with butter. Janet has her own prize winning recipe but Delia's is also very nice. Janet won't pass hers on 😛 – so here's Delia's. :-)…[Read more]

Very, very interesting. It works in a similar way to Velcade… I'm wondering if this is in trial somewhere in Myeloma World… if not why not? Is it a novel agent or does it need a pal (Dex/Thalidomide etc.,) or is it a genuinely new agent that just needs letting loose?

I'll watch this space. 🙂

Dai.

I lost 1.5 stones initially but nothing since. It was good to be able to fit into trousers and shirts comfortably but since starting CDT 2 years ago I have put a stone back on… >:-( :-0

We eat healthily, with lots of fruit and vegetables and although we enjoy the occasional take-away and some of Janet's wonderful home baking it is always in…[Read more]

Thank you to all,

I am feeling considerably better today, the one fly in the ointment being the PN in my left leg which is affecting my walking… I don't believe I could drive at the moment and I'm not having that! I have managed without a stick since I finished CDT and I don't want to start now… not through side-effects from treatment I…[Read more]

Hi Gillian
Good to see your getting there,take any equipment they offer you,as you will need most things for a short while,and you can send them back,when you do not need them.
Slim did 22 days in hospital and was so so so glad to come home,progress was slow but little by little he is much better,and it does take it,s toll on the carer,it…[Read more]

Hi Min
I am the same,if i do not eat Slim will not eat,hence the weight gain.
Three dogs seems like a good idea,eating waste and all that walking!!!!

Previously to this illness,i shopped once a week,now its every day,it is something that Slims taken over,spending more money and wasting a lot of time,but he enjoys something he has control…[Read more]

Hello Eve

we are going to conwy taking our grandson so not much rest for Geoff as they are best buddys hope we can get him on the beach for a bit but we are taking our waterproofs and there are plenty of castles which he loves , we hope to go up snowdon on the train Regards to Slim
Love JO8-)

Hi Dai
In a positive way its good there was a reason for you being so down, but it must have been pretty rough for you with the needles. So glad they got you sorted. Everything crossed for good news on Monday.
Kay x

Happy 60th Gill 20

I hope you had a celebration and had a good day
Love Jo:-)

Hi Gill
I have put on 2 and half stone in weight and gone from a size 8 to a size 14-16 (closer to the 16 :-)) I was on CDT now on Velcade. I found it hard putting on the weight in the beginning, now I am going with the flow. Its going to be the only time I can eat what I want so I am going to enjoy it. I know it will come off once I have my SCT…[Read more]

Blimey Dia
And we thought you were on holiday, you have been through it lets hope this is the final fling for this horrid disease just before you get CR:-) ALL fingers and toes crossed. We are off the sunny Wales on monday for a week taking our grandson I will say hello to snowdon for you8-)
Take care and keep well
Love Jo x:-)

Hi Eliz
I know it is unbelievable,nearly said some (miracles do happen) but thought better not.Called Slim in with bag of drugs in hand,saline drip first then Zomita,and while that was working,went over drugs with me,gave me blood results asked if any problems,even had a cup of tea!!!!!.that,s what i a service.
it took us both by surprise.eve

Hi Jo
Thanks for asking after Slim.
Bloods,kappa light chains all going in right direction,on 6 cycle of ctd.
So why am I not running round in circles cheering!!!!do not understand it myself,considering the position we were in a few months back.Slims slowly getting stronger.
Appointment end of July with consultant,bone marrow test will be…[Read more]

Hi Everybody
I agree ,go with the flow,but what do you do when,you are a carer???
Slims lost so much weight with being so ill,it is very hard to feed him up,I buy all this lovely food,the fridge is so full with tasty morsels and he eats a bit and says (I have gone off this),I think to myself I cannot waste this and eat it,tried giving it to the…[Read more]