Hello Peter
This method is widely used in America it sounds a much better system
I have a friend who attends a local clinic with me in Stevenage she is on velcade at the moment she asked the consultant she sees who is the head heamotogist about having this method she said that she had never heard of it!!! thats a big worry,as it happens we are…[Read more]

Min

You are brilliant dont know how you cope especially with not much sleep you must feel you are going up the wall at times I know what you mean about 4.30 in the morning if I wake up then my mind goes barmy well perhaps I am barmy!

Love Jo 😛 xx

Dia

what is a good night sleep since I have been diagnosed with renal failure I have to get up twice some times three times a night can get off again some nights but others its tossing and turning for hours I get three hours good sleep then it all goes to pot but at least I am not on dialysis, keep drinking "THE WATER!"
lOVE jO 🙁 😉 X

Good luck with the Velcade Kay,

I have just finished Cycle 3 and now have a week or so off before starting Cycle 4 a week on Monday (following a consultation).

The main side-effect for me has been fatigue and exhaustion.. the smallest thing seeming to knock me off my feet… but if you are willing just to lie still, read, watch Tv etcetera…[Read more]

Hi Vicky

Well as for the CDT I was on that and got weaker and weaker as the cycles moved on so much so I had to pack in work:-( but hey its not all bad newa a year later after a succesfull Stem Cell Transplant I am back at work (still on light dutie.s) but hey its work and Money 😀

I got better with the CDT as my cycles went along and was…[Read more]

Hi Carol

Great to read about your remission:-D I have ben in remission for some time now, but it never made me want to get on a horse? yep am over 5'10 and the scare me to death ha ha, gosh they are so big and scary.

Am also with you Carol if you love it this MM cant stop you doing it and as you say its just at a differant pace :-D…[Read more]

Hi claire

Sorry I cant add to your post cept to say

Good Luck to your Mum in her treatment regime, and am sure some one will know a bit mmore about it.

Godd Luck

Tom "Onwards and Upwards" xx

Hi Meika,Christin and of course David

Like all the others above I also welcome you to this wonderful site.

You all have had some great advice fromthe others that at the moment all I can add is:::; take it one step at a time, and when David want to rest let him and not forgeting you two Mum and daughter you both also need to look after…[Read more]

Hi David
That is wonderful news,you must be feeling so high,and its great for us to see someone turning that corner,Champagne is the order of the day,I can see you now cruising up the Rhine sun setting sitting in the stern with a glass of champagne with your lovely wife,thinking isn,t life great,just wish it was me in my moterhome on the bank…[Read more]

Hi Gill

Glad to here Stephen managed his 2nd SCT
It is awful when you are stuck at home,first the hospital,then home I felt Spring came and went with out me knowing,and Slim has not got to the hard part yet,on 5th cycle ctd.

Sleep is the worst thing my body clock woke up if Slim moved!!!!!then in the day it just went on,bath toilet,fetch…[Read more]

david

great news keep up the good work 3 months off wonderful and the para result is good too enjoy your holiday and lets us all know what it was like on the Rhine;-)

Hi David lovely to hear your clininc had good results for you Even better when you dont have to go back for 3 whole months !Yippee!!! I agree with Dai dont apologise just get on with enjoying yourselves you both deserve it ! love Bridget x

Don't you worry too much about the support bit David my friend… you are well in credit on that score… just drop us a note every now and then telling us about the wizzes and the whatknots… all the good stuff… and we will see you you in 3 months… enjoy it and we will Vasbyte while you are away. 😎 🙂

Dai.

Hi Christin
So sorry to hear about your dad. I am 46 and started velcade this week as Thalidomide did not work for me. I have heard a lot of positive reports about velcade, but also know that this illness and its treatment is so individual. It is so important to get your dads pain in order. I do wish your dad well and also to you. It is very…[Read more]

How is John doing Angelina? Any change? Back home or still at the hospice?

Dai.

Yeah, well… pick on the plums not me… 😀 🙂

I bet you are just a great big softie Lancastrian really… I often find that when the scousers and mancunians and suchlike drop their local guard the sweet natured lancastrian comes shining through… and the Crowther bit of me came down to work on Fishguard Harbour 1918 from Collyhurst,…[Read more]

Dai

How can you say that,I am a scouser,born and bred!!!!! warm hearted,lovely person and if you don,t agree i will do a Margaret Thatcher on you,I will hit you with my handbag:-P

PS got a plum in my mouth now stuck some were between my wisdom tooth!!!!

Hi Min,

Please excuse me for treading water in the carer's section… and I'm a little bit frightened of Eve… [i]so I'll keep this quiet and down to a minimum…[/i] I just want to say how much I admire you (yes all carer's of course) but you in particular… because I have followed your journey from the start and realise just how much you…[Read more]