Dai
i have to say it,you have a wonderful way with words.eve
P S. Slims done 22 years of yomping in Marines just told him to go and join up again, lol

OKay,

Velcade Cycle 3, infusion 4 over and done with. In at 10:30am no time to even sit down… My favourite lead nurse Jenny, whipped me straight in, a bit of kefuffle finding a vein but then it turned out that Bob was my uncle and I was out into the pouring rain by 11:40am… course record.:-D

So its a Dex day today and then 10 days rest…[Read more]

Thanks Stuart
Done and dusted next has to be photo,still learning promise not to say naughty words.lol

Hi Meika & Christin,

It is always awkward to say welcome when you would rather be saying anything else but you know what it means…

On to David… (that makes 3 active on the board… I'm a Welsh David… so therefore Dai.:-)) he is bound to be in shock… the pain and discomfort will not be pleasant but they are manageable and they are…[Read more]

Hi Min
You sound about were I was a month ago,and it did not help people telling me to get some rest,
I lost the plot a few times,had to go to doctors,saves money not buying gin, lol . It did help to pop pills kept my temper under control,tears stopped flowing,saved a bomb on tissues.Only take them when my demons rise to the surface.
I have to…[Read more]

Hi Min

Where are you on the roller coaster!!!!,at the moment I feel i am on a nice level bit!!!! feels like heaven.
Bridget seems to have gone off the radar !!!
I think every ones gone on holiday and left us behind LOL

Glad to see you jumped the hurdle, love eve

Hi Christin

I found i had to ask questions,information was not very forth coming,I think they try not to bombard you with lots of information. i felt if they were keeping information from me,but it is just that they do not know you and do not know what your reaction will be.As time goes on this will get easier,
Your dad has a right to see any…[Read more]

Hi Bellis
Just thought I would pop in and say hello,and offer you a welcome

I cannot help you with your posting,
I am assuming your mums twin will donate stem cells!!!!!.
If it is ,it sounds wonderful to me,I hope it works out for your mum,and someone is able to give you some help,Any advancement on treatment,is something we all like to…[Read more]

Thanks for all your lovely encouraging replies its really great to hear! We finally have a little progress, the pain team changed the doses in dad's syringe driver and today he is much more relaxed and has gained a little more movement, tiny but its progress! cycle 3 of velcade starts tomorrow so its dex time again >.<

Its crazy how things…[Read more]

Hi Andy
I have a slight problem,and do not know who to ask so i have come to you handy Andy,

Do not know how to change my name on this site,as I now have a different surname,can you help.
kind regard Eve

Hi Min I am so glad things are on the up now ! Enjoy the next few weeks without thinking too much about the next stage You and Peter are such a great team you will get him through whatever comes next!! love to you both Bridget x

Hi Eliz

Thank you for taking the trouble to write. I still can´t quite believe that I am in remission myself! Yes, my first ride was a real triumph, not just for me but for my horse who has never quite understood why mum wasn´t out and about. He was really cross whilst I was away having my transplant and made sure that I new exactly how u…[Read more]

Thanks Eve

I'm hope that's the case for dad, although he's been feeling poorly with this first cycle, but it's not been nearly as bad as i expected when i thought about him having chemo. He said something similar himself, which is reassuring, cos i think he was very scared about starting the CDT. He's just super tired at the moment, and back to…[Read more]

Dia
songs in the key of D sounds like my kind of CD get Janet to hurry up and edit
PS i am sure you have loads of fans
Love Jo xx;-)

Just finished watching Sharapova stuffing the Bulgar 6-1 6-1 poor girl.

Weight loss? I should be losing weight, eating very little really… but I have developed a beer belly from whatever. wherever? Dex I imagine, I just feel bloated all the time, regardless of how many poo juices I drink… its frustrating because I have several really…[Read more]

Hi Jo,

Roz has got to be strong for her own good IMHO – she has done so well up to now, I just feel she needs closure (said with love and support if you are reading Roz). xxx

I have got 3 CD's to Bring out before Xmas Jo:

'Country Bound' – Mixed genre Country style songs.

'King For A Day' – A chronological account of my Folk Songs…[Read more]

Hi Wendy,

When you get your profile picture up you should be given the opportunity to 'crop' the picture… as you do it should make the picture smaller… just click on the photo until it fits into the 'copped' square and then we should be able to see you.

If this fails we will call in one of the big tech names – Tom & David spring to…[Read more]

Quick update for those following the Velcade/Dex treatment plan.

I had my Velcade Cycle 3 Infusion 3 yesterday and apart from exhaustion (no doubt helped by the heatwave) and general fatigue I seem to be holding up well. My PN is manageable but there is definitely a tighter, compressed feel in my feet… it sometimes threatens to turn into…[Read more]

dia
i agre with what you said to Roz wise words.
When is your cd going to be issed
Love Jo

Hi VIcki
We were told if have little side effects on first cycle the rest are usualy the same but everyone is different.
You do not say what type of Myeloma your dad has,they take bloods and get 2 cycle within days,Once your dad starts on bone infusions the pain will easy but in the mean time make sure you tell the clinic it is very important…[Read more]