Time for a quick update…..

Dad is coming to the end of his first 21 day cycle of CDT, and is back at the hopsital on Wednesday for his tests. I'm trying not to think about it, as i don't know what to expect. DOn't want to get hope's up and then see nothing! Do you normally see improvements in levels after 1 cycle???

His pain was managable…[Read more]

Christin
I'm so sorry to hear your news. I'm 32 and my dad (60) was diagnosed with MM 5 weeks ago too. As a family we're still struggling to come to terms with it, and have good and bad days, but it sounds like you're a very close family and are giving each other lots of support. Dad started CDT and is nearly at the end of his 1st 21 day cycle.…[Read more]

Hi Gate,

I appreciate that you may be exhausted by the treatment… but if you do 'pop' in… just take note of our love and support… and when you are ready, if you are able, please let us know how you are. 🙂

Much, much love…

Dai xxx 🙂

Hi Min I am so pleased Peter is feeling better, it must be such a relief for you to see him improving Hope you get a good nights rest and they let Peter come home tomorrow love Bridget x

Great to hear positive outcomes although it´s plain that a huge effort and a mouuntain of determination has gone in to this. Well done – you must be so proud. Another example which spurs me on to grit my teeth and keep horse riding even if it´s at not quite the level I used to have – just good to keep moving.
Congratulations.
Kind regards Carol

Thank you to everyone for help/advice. Changed pain relief and so am feeling much better. Just had my first proper hack out with my horses since last summer helped by my super husband who built a special mounting platform for me which my horse Harry has taken to like a duck to water. Whatever your passion is try not to loose it – you might have…[Read more]

I am so sorry that you have had this awful news. I hope this helps. I was diagnosed in 2005 at the age of 50 – then considered quite young for this awful disease. I had my first transplant in February of this year after a year of quite difficult times. Anyway, despite fearing the very worst, and having a fairly worrying and slow recovery time…[Read more]

There is all so a good side for example I changed my gp within the practice because i felt I needed someone who would listen to me.The new gp is a lady and talking to her,she told me on mondays she does her home visits in her own time before she starts surgery,i bet not many gp do that.
When Slim was going to ITU he was rambling on about getting…[Read more]

Its allowed Roz,

Everything is allowed when you are grieving… I followed every second and every word of Michael's passing and I know that he never got that one chance to recover from the infections that would have given him a chance with the treatments. I also remember how much you struggled to keep connected with Michael with little to no…[Read more]

Hi Meika and Christin. Im so sorry that your dad has this awful disease. My mum was diagnosed with mm in 2009, she is 71 yr old and a fighter.
Its really upsetting like you said to see your loved one go from a very healthy outgoing person(my mum was the same). to someone who is in constant pain and cannot do what they used to do. My mum is…[Read more]

Hi Eve Jo and Dai your posts just highlight the problems when health professionals become so arrogant it makes them more than negligent bordering on criminally deficient In your grandsons case Eve one woman has ruined his chance of a normal life , you must have been heartbroken and to not admit it was their mistake until the very end is truly…[Read more]

Hi Min
It makes me so mad when I read about some of the things that go on in hospitals,but glad Peter is eating,a good sign. Its all just awaiting game hoping every day he will get a little bit better.
It will get better Min,look at us,2 months on slowly Slim is feeling better every day,and does not remember much of the bad times.At times i…[Read more]

Hello Meika and Christin

Just to say a welcome to you,
May i suggest you look at the post[ a ray of hope ]then go back over the old post,you can do this by clicking on photo.
It might give you some hope and encouragement.
best wishers eve

Well done Steve,

That sort of energy and mobility is a testament to good medicine and Steve's iron man will.8-)

I have come to terms with the fact that 'that' Dai Crowther has been confined to history and that this one is just happy to be able to walk around unaided… although I must admit that I have been 'banned' from trying to recapture…[Read more]

Hi Sue sorry I cant help with any info on Bendamustine but I just wanted to wish Michael good luck with the trial From my experience I would say you do get very well looked after when you are taking part in a trial Fingers and toes crossed they get his pps down very quickly love Bridget x

Hi Meike so sorry you have found yourself dealing with myeloma but you will find this site a great help for answers but also support for you and Christin as well . I can remember very clearly what a rollercoaster it was when I was first diagnosed but it does get easier as you get used to all the treatmentand life does become more normal. Its good…[Read more]

helloo! thanks so much both of you ^__^

badger – dads rash was cause by an antibiotic too but its starting to go down now which is good.

michelle – thats just like my dad, he was so fit did extreme sports we were surfin buddies and now he cant do anything.

hes found the information here very reassuring knowing that there are other…[Read more]

hey my dads just started 3/4 of velcade and just came out in a rash they found out its an antibiotic he has taken to prevent shingles maybe check out some of the oral meds shes taking? dads rash sounds very similar