'Should get all you musicians together to cut/burn a record…Tom'.

Its something that has played on my mind for some time Tom.. the possibility of a fundraiser/awareness raiser… with performances by MM patients and a few well chosen presenters and guest musicians… recorded 'Live' and the concert put out on CD/MP3's from this site and…[Read more]

After re-reading Pat's argument I have something to offer.

Personally I'd love to have the option of another SCT (the benefits, not the process) but I only scraped enough SC's for the one shot and for myriad reasons I got 10 months, not the hoped for 2/3 years… but hey! It took five days on the combine harvester and two midnight visits back…[Read more]

Hi John

Yep it looks like you have it sorted, and you are correct having what we have every little twinge is treated as "Its Back" when it aint 😀 but safe thing to do is get it checked out, but continue to play. should get all you musicians together to cut/burn a record

Good Luck with it

Tom

Hi Gina and Mum

Sorry to read Mum has had to go into hospital. but am also pleased that Mum is now on the mend:-D

Its a bugger this MM we need to drink more than we can (well i find it hard to drink 3ltr a day) know when I was in hospital i asked to be put on the drip cos I found it hard to drink what they wanted/needed me to.

And Gina…[Read more]

Hi Gill and Stephen

Sorry to read Stephen is a bit rough :-/
Yes its a great thing how we forget what we went through on the first lot of treatment, but we did it, I am fortunate enough not to need a 2nd one (touch wood) but I can understand Stephen's and others trepidation when it hit them:-(

Good Luck to you both love and hugs sent8-)…[Read more]

Hi Dai

Well looking good 😀 am pleased your body is exuding that thing you wrote:-/ (you know me and my words:-/ ) but it sounds like its a move on the good side 😎

as I work on the trent I know all about the antics that flow through and pass it 😀

Pleased you and Janet had a great time:-D

Tom "Onwards and Upwards" 🙂

Hi Jo

No sorry am not IN ward 18 😀 but that is who now look after me since I was discharged from "Castle Hill"

Been there today for my Zometa infusion 🙂 and am doing great Ta (sorry hope I haven't worried you :-S

Still One Fit(ish) "Onwards and Upwards" Tom xxx
and still running free:-D (lord knows what my young bride thinks…[Read more]

Ta Jo,

I treated Janet to a romantic lunch after the V show. A New Orlean's Special Mac Meal and strawberry milkshakes for two – took them to Holme Pierrepont Water Sports Centre and faced the river Trent. Janet took half a loaf and we fed the ducks… and then we were entertained when a couple of magpies raided the party only to be driven…[Read more]

Dia

I see chickens on the horizon lets hope the beast has been kicked into touch all the news sounds positive so fingers crossed
Much love JO;-) xx

hello Gill

so sorry stephen is feeling rough but lets hope with everything crossed that this works then it will be worth it give him all our best wishes we are rooting for him:-)

Love Jo x

gina

so sorry to hear about your mum I hope the hospital sort out her infection pretty quickly It must be frightening for her and so worrying for you keep your chin up
Love Jo xxx

Hello Vicki

I was 61/2 when I was diagnosed had four months of CDT which I managed
very well had a bit of constipation and of cause DEX mood swings which I think most people get I am under Lister hospital in Herts and UCH london
I have been in remission for just over two years I could not have an SCT as MM caused me to have serious kidney…[Read more]

Tom

Are you ok why are you back in ward 18 i hope it is nothing to bad
onwards and upwards;-)
Love Jo:-) x

Well, that was the week that was, that was. 🙂

Had my 4th and final VJab of this, the 2nd Cycle… one dose of Dex tomorrow, a few down days and then hopefully a week of building up and feeling good. 😀 😎

I'm back for the 3rd Cycle on Monday, 20th June… with a consultant's meeting first, where I will hear of any interim results. I…[Read more]

When is Peter's SCT scheduled Min?

Dai.

Glad things are going better and wishing you well
Take care
Gina x

Thank you all for your replies, you are a great support.
Been to MAU at the minute, her chest xray is clear and no problems with the ECG. Her temp is 41 so very high and her blood pressure still low. They said there is definitely an infection. She is on a drip and has fluids, paracetamol and antibiotics so hopefully she will start to feel a…[Read more]