I cant imagine how it must be going through such a awful thing. But you are always positive Dai and you make others feel positive with your support.
You are all allowed you downsides to the treatment and you seem to have been through the mill.
You take care of yourself and hopefully you will start feeling like you again very soon
Gina xx

Hi Sarah sounds like the perfect sunday morning to me !! 2 year olds are the best company ever arent they Did you hoist her over the fence to scrump the beans> haha Whatever happened to scrumping ? I bet its likely you would be arrested now but when we were kids everybody did it and most owners were glad to get rid of a bit of fruit off their…[Read more]

Hi Marian I think you are wise to get as much info for your dad re trials to help him make his decision The trouble is there is so much info it can be difficult to take it all in beforehand but as your dad starts his treatment it will all fall into place if you know what I meanWhether or not your dad is on a trial there will always be someone to…[Read more]

Hi Marian

The myeloma x1 trials are for patients who have not had chemo.
You do not get choice of branch you go on name fed into computer my husband got ctd side other side is rcd'

1 one or two possible chemo potions

2 one or two consolidation options

3 one or two possible maintenance treatment options.

You can come off the trials…[Read more]

Hi shirls

i think you must have nine lives dont use up toooo !!!many at once, glad you are recovering well it must have been a great relief it didnt trigger the MM again

Love Jo 😉

Hi Marian

Well its been said before "Vent away" Girl

Now what to say about your problems?

What would I choose if I was 72 to be honest (and i have read this many a time) I would go for the standard treatment, as I feel that it works and I would want a Quality of life whilst going through my treatment (well as best it can be) and its a…[Read more]

It will be hard for you because 2 weeks is still raw and you will be grieving and asking what if etc. My dad died in 1989 of Stomach cancer and my grandad and uncle of lung cancer. My mum as been asked by her hemotology nurse if she would speak to a someone and fill in a questionnaire and give bloods to see if there is link between different…[Read more]

I am so sorry about your dad Linda, this disease is an awful disease, my mum has it and she is 71.
We have been told that it isnt hereditary but can run in families but to be honest i dont think it has been proven.
I know that they are looking at links with other cancers with blood relatives but again nothing has been proven.
I really am sorry…[Read more]

Thank you Bridget, i am going to ring the doctors on monday just to get her checked, i also want them to look at a lump at the top of her back, it may be just a cyst but better safe than sorry.
Thank you again
Gina x

Hi Gina sorry mum is feeling rotten and it must be very worrying for you At least at UCH they are very good at getting a plan pf treatment together quickly But if the breathlessness continues I would ring them on Monday , they may be able to ease it before she sees the consultant Please give mum my best wishes love Bridget x

Dear Shirley you poor thing !! But I must say you certainly know how to have a dramatic mishap, beats me falling down the manhole by a mile !! Seriously though make sure you take it easy let everybody else look after you lots of love Bridget xx

What a mess for you, i hope you are getting better now.
The positive thing is still in remission that is really good news.
Take care of yourself
Gina x

Thank you so much for your replies,
Steven told my mum that the consultant that put mum on the list was only there for so long, but a new permanent consultant starts on the 20th June, he said he will try to get mum an appointment for that week so hopefully we will be going very soon.
Mum isnt too well at the moment and cant even go into the…[Read more]

However good your lead nurse this is a consultancy mater and your consultant should have made sure that you were seen for a full explanation IMHO. As Eve says, its early days but I'd be pushing for a full consultancy meeting sooner rather than later, you deserve that for sure.

Dai.

What are you like. You are supposed to be taking it easy, not head dives down the stairwell. It was a good job Steve was there and I am glad you are home and recovering… just take it slow, sit in the garden and get an escort up the stairs… here I was taking your silence for an enjoyable, carefreee time. Tut, tut… and I mean tut. 🙂 :-/…[Read more]

Hi Gina

You rant all you like,I have done alot of ranting on this Forum,it does feel better once you get it off your chest,and it gives the people on here a chance to support you,it must be a worrying time for both of you.
I can only speak for myself but so many people have helped me,and I am so grateful.[ it is my husband with mm ]

At…[Read more]

Hi Eve yes you are making sense!! Thats exactly the sort of thing that happens to me usually Put us out of our misery Sarah and tell us your good news !!love Bridget x

Hi Bridget

I am curios too,Sarah posted on Off Topic,subject happy days,I replied,but got mixed up I thought Sarah was Gill,so reply did not make sense.I cancelled within a minute when I realised my mistake,went back to post,in left hand corner it says edit/delete so i did delete my post.then received post from Sarah looked and whole thing has…[Read more]

Dia

dont give up, never has a truer song been written 😉
Lots of love Jo