MeikeWhite

  • Dai as always you have found the beautiful words to say what so many of us would like to . I hereby nominate you as our resident wordsmith, I would have said poet laureate but I think someone else got that gig love Bridget x

  • Good morning all, it is a fine dexless day here in sunny South Notts.

    My thoughts were with Kevin, Patrick, Patrick and Michael this morning and with the lives being picked up around their leaving… parting notes, priorities, sense of loss, lesions of love, little surprises, numbed moments, long numbed moments, longer numbed moments and…[Read more]

  • Hi Dai
    I loved the lyrics ,now we need the music,so enjoyed your last piece,we are not going to let you slip off with any angels Stay with the angels on this site,we need you.:-)

  • dear Ali
    Sorry you have had to start this journey,As time goes by the medical side gets easier to understand,and you will find this site helps with a lot of the general stuff that comes up with mm.,there will be someone ahead of you in this journey,who knows what you are going through,and no matter how good family and friends are,its the person…[Read more]

  • Hi Marian

    Your welcome.

    I hope when you read these post to your Parents it helped them at this difficult time.
    Stick to this site its the best honest and true with few scary bits.

    I take no notice of the "life Expectancy" as we have new drugs popping up these days 😎

    Catch you Lata

    Tom "Onwards and Upwards" xx

  • tom replied to the topic Whasssaatttt???? in the forum General 15 years, 3 months ago

    Great news Dai 😀

    And for those that are or might go onto that drug regime am sure it will put them at ease 😎

    Once again Dai Well done:-D

    Tom trying to sing:-/

  • Thanks Mari – I blame it on the dex – two lyrics, progress on my synopsis and I've tried to flog my publishing company to my sister >:-(

    Busy, busy buzz.

    Dai.

  • brocho replied to the topic sorry in the forum Newcomers 15 years, 3 months ago

    Hi Eve brilliant news I am so glad Slim is home where he belongs . Now he can start to get better and you can relax knowing he is safe with you looking after him Dont wear yourself out though , make time for you as well love Bridget x

  • DaiCro replied to the topic Whasssaatttt???? in the forum General 15 years, 3 months ago

    Thanks all, it gives me hope that velcade might be a working option that's for sure.

    I naw aboot t'warm – Cushie Butterfield tawd me.

    She's a big lass and a bonnie Lass she likes her beer
    They call her Cushie Butterfield and I wish she war here. 🙂

    Dai. – singing softly.

  • BADGER replied to the topic sorry in the forum Newcomers 15 years, 3 months ago

    Wonderful news Eve

    so glad slim is home you can build him up now you can feed him on all the things he likes, you really do find out true friends in times of trouble dont you, sounds as if you have some really good ones
    Keep us posted

    Love Jo 😎

  • tom replied to the topic sorry in the forum Newcomers 15 years, 3 months ago

    Hi Eve

    Am pleased Slim is home, and his food intake is on the up, If slim is anything like me al say not to worry if the weight does not come back as fast as it left because it took me months to gain mine back (but it came back with a vengeance He he.

    Not forgetting Eve you yourself got yourself through this difficult time, and I say a well…[Read more]

  • eve replied to the topic sorry in the forum Newcomers 15 years, 3 months ago

    Hi Everyone,
    21 days and Slim has come home,All 9st 8lbs of him,walking on two sticks.but its wonderful ,sleeping a lot food intake has improved also.back to hospital Friday will find out about chemo.
    Just so glad to have him home.
    A friend came round to help me clean house as 12 to 14 hour day in hospital finished me off,another friend took…[Read more]

  • Hi Ali

    A warm welcome to this great site, Am sure with time you get used to all the tech stuff? (well i hope so then you can help me he he)

    We have some great folk on here that have been a great help to me over the last year and a bit(ish)

    Tom "Onwards and Upwards" xx

  • DaiCro replied to the topic Quietly Panicking! in the forum General 15 years, 3 months ago

    😎 😀 🙂

  • brocho replied to the topic Quietly Panicking! in the forum General 15 years, 3 months ago

    Hi Everyone just thought I would share my good news After discussing me and reviewing my mri images my nurse rang to tell me there is no evidence of any new activity or lesions !! I must admit that is a huge reief I had been very anxious the beast was on the way back!! So now they are referring me to the palliative care team to change my pain…[Read more]

  • brocho replied to the topic Whasssaatttt???? in the forum General 15 years, 3 months ago

    Hi Dai I am so glad you showed that critter who is boss!!! Its amazing how quickly these things leave when faced with a nice dose of poison !! You could always buy a chest wig Dai haha love Bridget x

  • Hi Ali welcome to you and Guy as others have said we are all here for each other so if you need answers ask and if you just need to offload when things get too much this is the place to do it! It really will get easier as Guys treatment gets underway and you will get some normality back in your life before too long .I hope Guy gets home soon love Bridget x

  • DaiCro started the topic Whasssaatttt????. in the forum General 15 years, 3 months ago

    I kept back a small shot of hope that my light chains might back off a little and give me a bit of summer before the Velcade had its shot but… I developed a tumour on my sternum… and

    'It grew'd and grew'd, it grew'd and grew'd, it grew an awfy size…. with great big mouth and great big teeth and great big googlie eyes'. Just like a…[Read more]

  • DaiCro replied to the topic Velcade- subcut in the forum Treatment 15 years, 3 months ago

    I have only had 3 infusions so far Gill (3rd yesterday – Thurs) and I have not had to take a single Movicol yet…. unheard of, I sniff them for a high when I've nothing better to do… I'm not in Stephen's league but I'm… chilled… laid back… incredibly loose.

    Dai.

  • Don't listen to that guff from Gill Sally – she is a rock… immovable, enduring and wonderful. Gill and others on this board have maintained and sustained me from a distance more than they will ever know.

    Dai.

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