DaiCro replied to the topic This diagnosis is such a shock in the forum Newcomers 15 years, 3 months ago
Hi Ali,
Welcome, I am glad that you have found us. This is a wonderful site and we sit in our corner of it and try to support, succour, inform, befriend and.. well, just be for the most part.
You will find a great mix of people on/in different stages of the Myeloma 'journey', a good number are carer's like yourself, willing to share…[Read more]
DaiCro replied to the topic Feathers Of Angel (Lyric) in the forum Off topic 15 years, 3 months ago
Don't worry, not quite yet. ๐ ๐ ๐
Dai. xxxx
DaiCro started the topic Feathers Of Angel (Lyric). in the forum Off topic 15 years, 3 months ago
Well there you go.
Janet brought me in a cup of tea at 10:32pm. she asked how I felt (Velcade treatment day) and I said 'Tickety Boo'. She smiled, wanly… so I decided to write a wan song.
It is now 10 54pm. I finished the lyric, I have read it to Janet ( she loves it) and posted it here. Never mind the quality, feel the speed.
Dai.…[Read more]
BADGER replied to the topic My Wonderful Husband Patrick in the forum General 15 years, 3 months ago
Dear Tina
I was so sorry to hear about the loss of your husband Patrick
My thoughts are with you and your family
Love JO
BADGER replied to the topic My brave husband Kevin has finally lost his battle with myeloma in the forum General 15 years, 3 months ago
Susan
I was so so to hear about Kevin my thoughts go out to you and you family
I followed Kevins story from all his post on the old site he was an inspiration to us all and yes one of the good guys
God bless Jo
gina45 replied to the topic My brave husband Kevin has finally lost his battle with myeloma in the forum General 15 years, 3 months ago
I am so sorry for your loss, my thoughts are with you and your family xx
tom replied to the topic Need to offload in the forum General 15 years, 3 months ago
Hi Lorraine
Yep throw all your worries and stress in here (( :'-( )) we can take it am sure ๐
Hey even I wobble at times and I am the original "Onwards and Upwards" and My young bride Elaine copes with it all:-D
So keep em coming ๐
Love
Tom "Onwards and Upwards (with the occasional wobble)" xxx
tom replied to the topic Great News in the forum General 15 years, 3 months ago
Great news David, thats the way to go:-D
I also thought (still am) of getting a Bike to help build up my energy levels.I seem to have got fit (ish) then its stopped so might get a bike but looking at them the saddle's :-/ dont look too comfy :-S what happened to the big wide saddle with big springs ๐
Keep on the "Upwards and Onwards"…[Read more]
BADGER replied to the topic Great News in the forum General 15 years, 3 months ago
Brilliant news David what a relief your other reading sound ok to so no more treatment yet Keep practicing on the bike the numb bum gets better
or put a cushion on your seat:-) You can now relax for a bit and enjoy life ๐
Love Jo x
brocho replied to the topic Great News in the forum General 15 years, 3 months ago
Good Morning David what brilliant news to start the week !! You must be so relieved to have got the all clear, now you can relax . I hope the niggle in your neck is just that love Bridget x
DaiCro replied to the topic My brave husband Kevin has finally lost his battle with myeloma in the forum General 15 years, 3 months ago
Dear Susan,
Like David, my memory of Kevin is one of grateful acknowledgement for his help, advice and willingness to share. He was definitely 'one of the good guys' and for you so, so much more. God bless you and I hope that you have much love wrapped around you at this time.
Dai.
brocho replied to the topic My brave husband Kevin has finally lost his battle with myeloma in the forum General 15 years, 3 months ago
Dear Susan I am so sad to hear Kevin has gone, my thoughts are with you and your family. I can fully understand his decision to have some control over this wretched illness and his bravery does not surprise me one bit . I am sure you have a lifetime of happy memories to get you through the hard times and it was a privelige to have known even a…[Read more]
tom replied to the topic Velcade- subcut in the forum Treatment 15 years, 3 months ago
Hi Dai
Thanks for your post:-D and yes we are always LAST in the fight against anything Medical:-( why oh why cant we be at the forefront of things like this:-/ hope the lord knows cos I dont :-S
Regards
Tom
BADGER replied to the topic sorry in the forum Newcomers 15 years, 3 months ago
Eve so glad slim is starting to recover my thoughts and prayers have been with you both, he must be a very strong man to be able to come through all that has happened I hope he will be home with you very soon
Love jO:-)
tom replied to the topic My brave husband Kevin has finally lost his battle with myeloma in the forum General 15 years, 3 months ago
Dear Susan
I am sorry to hear about the sad loss of Kevin.
My prayers and Love are sent to you all.
We know that Kevin fought a good fight with this dreaded illness.
Much Love and Hugs
Tom xxxxx
tom replied to the topic My Wonderful Husband Patrick in the forum General 15 years, 3 months ago
Dear Tina
I am so sorry to hear that Patrick lost his brave battle against this B dard Illness.
My thoughts and prayers are with you and your Family.
Love and hugs at this sad time xxxxxxx
Tom
tom replied to the topic sorry in the forum Newcomers 15 years, 3 months ago
Hi Eve
Am pleased Slim is getting better ๐ I know its been hard to wait but honest the wait is worth it ๐
When I was poorly then got better I used to count the Good days that had no bad ones following it and Lord was it Good, as for now I am Months and months of Good Days ๐ and Slim will do same ๐
Love to you Both
Tom…[Read more]
eve replied to the topic sorry in the forum Newcomers 15 years, 3 months ago
Thank you ever one for all your kind thought ,min I do not know what I would have done without all your help,you do tend to forget that people on this
sight have been in your position.
min you gave me hope,Slim is starting to recover its the first day in 21 days that I am not in the hospital by 8-30 am.I am amazed how quickly he has turned…[Read more]
DaiCro started the topic Velcade- subcut. in the forum Treatment 15 years, 3 months ago
From the Home Page:
It seems we will be last again.
[b]Subcutaneous injection of Velcadeยฎ is just as effective as intravenous injection[/b]
Share
26-04-2011
Although intravenous injections of Velcade have been effective in treating relapsing myeloma, two major drawbacks have been the need for patients to go to hospital to receive it…[Read more]
gina45 replied to the topic My Wonderful Husband Patrick in the forum General 15 years, 3 months ago
I just want to say how sorry i am. I am thinking of your family at this sad time x