Hello Eve

So sorry to hear about Slim I agree with Min and Jean contact your local paper and what about the daily mail also could myeloma uk help you
my thoughts are with you
love Jo x

Dear Eve its heartbreaking reading your post and the last thing you need when Slim is so ill is having to worry about his basic care. Although Slim is on a general ward surely his own consultant must be responsible for his care!! What sort of response have you had from the consultant or specialist nurse? I found out many years ago that when a…[Read more]

Hi Min
The news is not great I am going to try to keep this reply short

After being discharged from A&e,then readmitted 2 days later on easter monday Slim spent 9 days in itu with septic pneumonia in both lungs,care excellent,
sent to general ward,as cancer ward would not accept him,hdu was not given as alternative.
First complaint wrong…[Read more]

Dear Roz lovely to hear from you. Sounds as if you have been busy with yoiur new kitchen etc , I bet its great now its finished. The council are fitting me a new kitchen and bathroom soon , trouble is they are doing both at the same time so the mess will be double!! I hope tomorrow is a day full of lovely memories for you Take care of yourself…[Read more]

Dia

I thought your song was brilliant and the singer was pretty good to

Have you any more tracks

Love JO X8-)

Hi Angelina,

Thank you so much for your post,

You are right in a way we are now getting to grips with AA and MM, as with John my Dad posts bloods down to the Royal Free every month and so far the levels are coming down nicely and at a good rate, we will be going back down in August again for 6 month scan. Dads AA is on his tongue, nerves…[Read more]

Hi Dai thankyou your words are so poignant and moving love Bridget x

Hi Angelina roller coaster it certainly is , I suppose it stops life being boring though!! Like John I lost 3 vertebrae and had surgical reconstruction , walking is difficult some days worse than others As for the pain you just learn to live with a certain level of pain controlling it as best you can. It must be very hard for you with your…[Read more]

Hi Angelina what a tough time you are both going through but reading your post its obvious that you and John are fighters to have got through such a hard time in the beginning Although your husband has mm I am sure your strength has helped him to get back on top and hopefully it wont be long before he is home !It is definitely better to be on…[Read more]

Hi Sharon good luck but you will be well looked after on trial I am sure Try and put it all out of your mind for a few days and do something nice and luxurious! love Bridget x

Hi Liz great to hear Kev is doing well and normality is just around the corner!! Make sure he is careful to cover up in the sun though love Bridget x

Hi Liz

I also have not been on for some time 🙁

But am pleased Kev is doing good 😀 I also (like many more) had a rash as well, but like all my other bits it all worked out great 😎

Good Luck

Tom xx

Thankyou Amie its very humbling to see the effort all those lovely people go to raise funds , especially the children Bridget

Hi Jet

I get my sodium bicarbonate from the docter on perscription I think a tub of 56 5oomgs capsuals is £17.00 you might get your docter to give you some I have also read about them having anti cancer properties although my consultant said he had never heard of it I also take an 800mg vit c tablet and a pure allicin tablet I have read about…[Read more]

Hi Min yes weird in many ways and probably always have been !! They seem to think the rise in klight chains is significant but to be honest I think they are fuessing really , who knows! What a shame Peter had a few bad days when you were so looking forward to the grandchildren coming. I agree thought the unpredictability is hard to live with , if…[Read more]

Hello Eve

CONGRATULATIONS lets hope you can have a small party or even a big one once Slim is up and about fingers crossed it sounds as if he is over the worst good job you sent for an ambulance to bad if he moansed he will have to agree now you did the right thing:-S

Lots of love Jo 😎

Hi there I am so pleased your sct went well. I understand being kind to yourself and taking it easy for a while is the key to getting well. Keep us posted. Kay x

Dear Eve congratulations to you on your marriage and to Slim for turning a corner!! I hope he makes it out of itu soon . As you say it will take time to get his strength back and he will need that if he restarts chemo . How are you? You must be exhausted I hope someone is giving you some tlc even if its only a nice cuppa when you need it. Onwards…[Read more]

Thank you every one for all your Help

Had a tough week and a big learning curve,we got married on 26th of April instead of 28.th The hospital did us proud,cannot thank them enough,good job we did it then as Slim was a bit off his head the next day,and I am sure the Registrar would have said he was not of a sound mind.
Only managed one daughter…[Read more]