sheff
This is to you personally ,I need to Know more,I do not know if we can post are email address on here, but I do need some facts on this.
My husband was diagnosed in January on myeloma x1 trials ctd side.

He is in hospital at this moment in itu.getting better slowly from infection but what concerns me,is the mental state,I do not know if…[Read more]

Hello chucky and Hubby

I was diagnosed in Jan 09 with double pnuemonia renal failure and as it turned out MM the first treatment I was give was idarubcin which made my kidneys even worse they were preparing me for dialysis I had a wonderful renal consultant who put me on sodium bicarbonate tablets along with the steriods my kidneys improved a…[Read more]

Oh gill I am soooooo pleased. That has made my night. My very best wishes to you both Kay x x

Hi Gill I too just wanted to say how sorry I am to hear of your news. You have been a great support for people here. I hope that you can vent all your feelings out here and we can be supportive of you in return. I agree with others, keep fighting the fight. Love Kay x

Mary and Theresa,

I am so glad that your Dad found both peace and the grace to go surrounded by love in a loving environment. I am sorry that you did not get a longer time together, mm seems to have no rhyme or reason.

My thoughts are with you and your family.

Dai.xxx

Hi Bridget

WHAT A WEIRDO :-S but hay it must help I think this is a werdo club at least it has got you noticed which is the main thing and it looks like you will get special treament so glad about that never mind the cost so much is spent on wasteful things you deserve the best

Lots of love Jo 😎

Hi
thought you all might like to know,low blood pressure,indication of infection,it was not picked up on at a&e on Saturday,as dexi managed to hide the infection.Sent home what happened to this extra care for taking part in trials !!!!IF I had not phoned for ambulance Slim I dread to think what position we would be in,I would never have forgiven…[Read more]

Dear Mary thankyou for your post you really are an amazing woman , full of compassion for others I am so sorry your dad has gone but reading your post helped me understand how important it is to be with loved ones and to hear he was pain free and comfortable and able to talk to you all made me think thats about as good as it gets Sending lots of…[Read more]

Hi Kay yes I think you are right about a new name , that will keep me amused for awhile !!Perhaps others would like to add their suggestions . Kay I am really sorry I havent posted your hat yet , I have the memory of a goldfish , I will post it on Tuesday promise How are you feeling ? Hope you are enjoying the mini summer love Bridget x

Hi there. I agree with the others. My PP was 29 when I was diagnosed and rose to 36, but the reason they started treatment was because I became quite severely anaemic. I think they start treatment only when, as you say, the other bloods or bones are affected. For reassurance I would phone the Myeloma helpline they are so helpful Kay x

Hi Bridget
I always think it is nice to have a 'label' although I think I would have to laugh too at 'weird'. Im sure they ment it in the best possible way 😀 I was really worried when I had my MRI as I am claustrophobic, but I loved it. It took 1 hr 45 mins and I ended up tapping my foot to Frank Sinatra (which I got told off for). Hopefully…[Read more]

Belated Happy Birthday Bridget. xxxxx

It was Janet's Birthday yesterday too and after three hours at the hospital we drove to the National Water Sports Centre at Holme Pierrponte, Nottingham with a couple of MacDonald meals (her choice) and sat in the car park overlooking the river. Instead of boats and canoes she was treated to the sight of…[Read more]

Hi Min good to hear Peter is feeling better and great that his back pain has eased up too Theres a lot to be said for sunshine, recently I read about a couple who moved to Italy just to get the relief the warmth gave them from their bone pain Not sure I would do so though , far better to take lots of holidays in the sun, I am not so tired all the…[Read more]

Hi Chris I am so glad to hear you have got the all clear at last!! Bet it was driving you crazy especially with the weather being so nice My chest infection did go but I think there may be another on the way , possibly something to do with loads of mucus and I blame Revlimid Still I dont feel too bad adter the first week of the course now and…[Read more]

My mum is on monitoring bloods at the moment, as her other bloods are ok they are not treating her. She goes to hospital every 8 weeks. Her pp is 33.5 at the moment and this has steadily risen from 18. They are not overly worried as the myeloma is not in her bones at the moment, they say her cancer is low scale. We are very positive about this and…[Read more]

Hi I am not sure I can offer any useful advice really but a count of 12 pp is not too high .I am sure your mil doctors will be looking at the right time to offer more treatment, they were probably waiting till after the radiotherapy As far as I know radiotherapy does not affect the paraprotein levels . It might put your minds at rest if you ring…[Read more]

Hi Dai good luck with the velcade issue , if we all ask about the sub-cu then maybe they will hurry it through here ! love Bridget x

hello Dia

Good luck for your next appointment hopefully you might not be at that stage yet:'-( I had a clinic appointment today and saw a nice new registrar He was Italian and we discussussed various things they are more advanced in Italy and have been giving velcade as a first line treatment for ages he said they also have had success with…[Read more]