Thank you ladies

It has been along time coming 3 engagement rings,in 30years the things we do for a diamond lol.

I have always felt married,so it has never bothered either of us.It is the easy way to get everthing in some order.Two of my daughters can make it the other one is in nz,and my step daughter cannot take time off teaching.

The…[Read more]

Hi Eve wow that may well be one of the longest engagements ever!!Congratulations on setting the date, the sun will be shinig and I am sure your daughters wouldnt miss it for the world After all what could be more important than your parents wedding!! Enjoy the planning and all the retail therapy that goes with it too! love Bridget x

Thanks for the link Jet and a big thankyou to your friend too Wishing him lots of luck and no blisters!!!!! love Bridget x

Hi Kay I think my pps were about 14 ,but I am not certain they might have been higher Unfortunately melphalan will definitely cause your hair to go so it would be a good idea to ask for a referral for a wig now If you have a good hairdresser they can style it as you want. I didnt have a wig because I am such an untidy person and I just knew it…[Read more]

Hi Gill I understand why It really is a small world though and thank goodness there are lovely people in it !! love Bridget x

Good Girl!! She must be very persuasive and what a lovely man too!! love Bridget x

Hi Min and Peter

Pleased you have an answer to the sweats its a bu%%er all these side effects.

Enjoy your Holls

Tom xx

Hi Tony

Sorry but you are way ahead of me so cant add anything apart from saying good luck in the treatment you get?

Tom

Hi Liz

I can say that when i was in and had my transplant I found it hard to drink enough and they put me on a drip also (it was easier)gosh its hard work to drink that much when you aint feeling too good as it is:-S the drip was the best for me plus I drunk when i could ((water Pamela Lol))

Me I think i had two bloods and two platlets in…[Read more]

Hi Tony
I am on the MX1 trial. I got the CDT arm and had three cycles, just started my fourth. However, they believe I have plateaued and will probably be radomised for either velcade or straight to Barts for STC. Looks like they are in no rush for you which as Bridget says can only be good news.

Good luck Kay

Hi Liz

Hey you take no notice of "Tinkerbell" as she is a little tinker ha ha, I have nearly stopped drinking these days only a bttle of vodka a week now 😎

So you dont have to rush to catch up he he.

Love Tom xxx

Hi Liz I hope Kev gets to come home soon it sounds as if he is over the worst so the only way is up now!! Just a word of warning though its not a good idea to sit out in sunshine after an sct , a lot of the drugs they give us advise against it, so make sure Kev covers up in the garden We bought my father-in-law a gazebo so that he was protected…[Read more]

Hi Liz

Your both more than welcome, and it wont be long before he is up and about, and there is no rush one day at a time and it will work out, I must have been 8/12 before I felt better and trust me the wait is worth it 🙂

Tell Kev to keep on the "Upwards and Onwards"

Tom xx

Hi Tony

Wish I could be of some help but your are in front on this journey,the help line can most help you here its worth a call,she can also put you in touch with some one who has had the same treatment.

My partner is on MX1 trial he has the ctd side,what the trial offers is if ctd has little effect it is next round of drugs not on nhs…[Read more]

Hi Tony well you certainly didnt have to rush into treatment which can only be good ! I was on the Myeloma X Trial last year and on the Cyclo arm It was ok , the usual side-effects but manageable However within 3 months I had relapsed again so needed more aggressive treatment and came off it Have you checked out the Myeloma XI Trial , there are a…[Read more]

Hi Liz

It sounds like its looking good and on the way up now, still one step at a time though, give my best regards to Kev and tell him its an "Onwards and Upwards" that he will now be having.

Good Luck and hugs to you Both

Tom xx

Hi sarah

Kate Humbel hasnt got anything on you she mostly watches and make silly comments:-D
Bridget I always am doing silly things I do wonder at tImes

Love Jo xxx:-S

Hi eve

its good to get these things off your chest when I go to see my consultant he is always an hour over time as they double book him we waited four and a half hours once and then when i needed Thalidamide I had to wait two hours every time for the drugs we used to go and have lunch in the cafe in the hospital also the blood test clinic can…[Read more]