That's the way to go Andy… we are so pleased for you and Steph. Another decrease like this one from the next Cycle and you could be in SCT country… if they still have that on the agenda that is… I certainly hope so. 😎

Janet has bought me a bottle of double chocolate stout and I aim to enjoy it… perhaps over 2 days after next Tuesday…[Read more]

Hi Wendy

It is the only way to do it

Remain positive and get out and do as much as you can!,
Have bought new Motorhome scaled to a small one,we always said we would do the UK when we were older,but it looks if Slims health has bought UK near.
A moterhome. Floats are boat,not one for hotels unless its some were like St Lucia.
So glad…[Read more]

Hi Maureen,

Thanks fie your good wishes, yes we live in Lanarkshire in Scotland. Dad is going to have his stem cells harvested and then make a decision on whether to go ahead with SCT once all his results are in x

Hi Andy

I think the reason your not on here often is that you are always out on the Razzle Lol.

Good Luck on Cycle 14 and with "Chemo Brain" soon you wont remember how bad it was Lol.

And listen Folk it isn't Eve's I Pad it is the GT 😉

Tom Onwards and Upwards

Yes I also am hopping Keith is ok and its just a rest he needs from the Forum thing and shove the MM to the back of his mind.

Tom Onwards and Upwards

Hi Richard

I might be wrong?? but the medical for HGV is to check heart, Eyes and BP ?? as has been said the combination of drugs might put you on a fail?? I drove (car) all through all my treatment CTD and SCT no problems
All the best with it.

Tom Onwards and Upwards

Hi Maureen and Ian

Well the only people that can look after a loved one is a loved one am afraid.

Its so tiring being a carer more so than us that have the MM, please look after yourself as well as Ian, I hope the treatment is soon started

Love Tom Onwards and Upwards

Hey well done Jean, Frank and his team Now that an Onwards and Upwards result 🙂

Franks count is good and yes it happens fast 🙂 but he will still need to take it easy and before long Frank will be Spot on.

Now Breath xx

Love to you Both

Tom Onwards and Upwards xx

Hi Sandie
Not a problem am just pleased your Mum is not as sickie that was one of the things I didn't Like.

Give my Love to your Mum.

Love Tom Onwards and upwards xx

Hi Gill now what a great find, Lovely Photo, I bet its now in pride of place (hole or no hole)

Love Tom xxx

Hi Sue
Am sorry but pleased you never scattered the ashes as you knew it was just not right for you, wrong place or just too early only you will know.
I wish you luck on your choice because as and when you choose the girls am sure will be happy.

Love Tom xxx

Hi Eve and Megan,

I had my second infusion of Zometa today after my Bendamustine infusion. I asked about the regime and I was informed that I will have 8 monthly infusions, followed by 8 bi-monthly infusions and then stop.

So that's the Nottingham regime. 🙂

Regards

Dai.

Hi, (name?)

Ellen is the administrator and specialist nurse at Myeloma UK, the hosts of this forum… the contact number is in bold orange at the top of this page but here it is: [b]0800 980 3332[/b]

The nurses at Myeloma UK will answer any query concerning Myeloma for you on the phone. 🙂

Regards

Dai.

Hi Gill

It's lovely to hear from you,how are you getting on,??? When do you go to France,the first year is hardest,I hope to hear you have a smile on your face thinking of all the good times you had with Stephen.

Slim looks great curly hair and has put on weight!!!,aching bones bad back,and co ordination a bit off,good job we have plenty of…[Read more]

Thanks Mavis and Babs

I have seen what they offer at Cancer Club plus Hospic,I have all ways thought it was for the patient not carer.
If I tried to get Slim to go he would not want to know,stubborn is his middle name.

Thank you Mavis I know are believes are different,but I do have a lot of respect for people who can hold there faith,…[Read more]

Hi Maureen

You are learning fast,keep you eyes open only way to get good care.

Sorry you are so tired have you tried catnapping I use to come home from hospital take phone of hook and go straight to bed, before that the phone rang just as I was dropping off,I cannot repeat what I said to who ever it was.

You do need to recharge your…[Read more]

Hi Sue,

Perhaps Scarborough is a little too impersonal, as well as being far away, even if it was a place you both enjoyed visiting. The cricket pitch sounds really good for you, because you will be able to visit easily, walking and talking as you traverse the ground… although you might want to talk internally if there is a match on… ;-)…[Read more]

Hi Dai

The way they work it you begin with Zometer once a month,but it becomes less effect as time progresses,by the time you haveSCT or remission you attend hospital every 2 months so they fit Zometer in with your hospital regime Eve

Hi John,

After 4 years I had my first infusion of Zometa tagged on to my 2nd infusion of Bendamustine Cycle 3 last month. Tomorrow will be my 2nd infusion of Zometa with my 2nd infusion of Bendamustine Cycle 4… I had the symptoms described by others as 'Zometa Flu' last time but nothing too unpleasant… I will monitor and report over the…[Read more]