Vicki,

Remind me, where is Colin at the moment… post SCT but for how long etc… and is he on any treatment, maintenance etc.

Regards 🙂

Dai.

Hi sue

Only do it when your ready!!

Matty's ashers have not been scatted yet and it,s coming up to a year.
They have been remon
Ved from the thing from the undertakers,my daughter bought a beutiful globe,I told her if she gets burgled that's the first thing they would take,the family are. not ready and have not found a resting place for…[Read more]

Rebecca

I think the person who told you that was talking about all cancers,
For example myeloma if caught early there is less damage to bones nothing to do with age,but a younger person is fitter and healthy than a 70. Year old.

My husband is 69 this year used to be very fit ,so was able to have SCT but at his age will not be offered…[Read more]

Hi Wendy

Loved your blog;-) 😀 🙂 😎

Keep going ,I admire the way you keep going.Love Eve

Hi Andy

The surgery should help with pain so bring it on.
Thanks for news on Keith,funny we never met,but you do find yourself wondering are people alright 🙂

You have been through an awfull lot of treatment s,I have alittle in sight to how you feel,I hope a Donna comes forward soon better than a doña as in one of my post to you:-P…[Read more]

Hi Dai

That is sound advice8-) 🙂

We have just had a problem and rang up Mac Millan . We were both amazed how much they helped us,and you know me,it takes a lot to please me. Lol

Slim rang because mu daughter and friends asked why we were not claiming VAT off are new vehicle ,truthfully I did not know we could.!!

Any way we rang…[Read more]

Hi Andy,

Is Keith married? Has he got any family close by? He never mentions his support network and I sincerely hope he is not going through all of this on his own.

10th March was his last post and he had managed to get home at that point… here's wishing him all the best and hoping that he is fighting his MM on an even…[Read more]

Hi Ozzy

Would like to know more,as when I approached the subject of Velcade again it was. not recieved very well. I just think Slim did well on Velcade,and he is starting to use options up quickly without much remission or in the case of CDT,it was in affective.

At the moment my feelings are that I am angry the way our questions were…[Read more]

Hey Peter
Well done you 😀 ( oh is it wrong to advice folk to drink??) Life as you say is Great and am sure you will soon be on the red :-).

Vickie
I think my Vodka goes ahead of me I think Lol, am pleased Colin has got his white back (don't do white) 3 glasses then sleep sound darn good to me ha ha.

Take Care you all

Tom Onwards and…[Read more]

Hi Nikki

Sorry Nikki I seem to have missed this post 🙁 and am sorry for the late reply.

Good Luck to your dad in his road to remission, I assume you looked through other post on here re do's and dont's through SCT for advice?

love Tom Onwards and upwards xx

Hi Gill

Well you are doing good and 7 months is still a very short time yet.

I have over the years lost many a friend/family, and I talk to one of those often, Ian was an old workmate of mine for many many years, he was also a drinking mate of mine for many a many a year, as was his Family.
Some time I well up when we talk about him with…[Read more]

Hi David
Hope your doing well with the treatment and this "Sun Thing" isn't too much of a bother for you.

I recall now that you had your SCT about 11 months after me.
Stay well and Fit

Vasbyte and Onwards and upwards
Tom

Hi Mohammad

My husbands Amitriptyine was increased from 5 m to 25 m.by consultant in Kings Hospital London for PN,see consultant!!!!

Also I used a coco based buttermilk cream which I massaged his feet and legs,I still do this as it helps circulation plus helps with dry skin.
Eve

Hi Gill

Two steps forward ,one step back, you are taking little steps!:-)

I cannot help you with the grief of Stephen.but grief of anyone takes time and it has to be done individually .
My daughter and I talk about Matty her son,my first grandchild all the time,some times laughing,some times tears. 16 is no age to die.

I hope you find…[Read more]

Thanks again for everyone's good wishers,

We go to see consultant next Friday,for more results,that they have known the results of for over. 2 weeks,never mind about Slim he,s just the patient!!!

At first we jumped from positive to negative ,now just preparing for more treatment ,Slim more positive,one because he has the mentality of a…[Read more]

Hi Billy,

I can only imagine that you are either on megabucks in your job or you believe that the difference between your wage and all possible benefits makes this suffering you are going through seem worthwhile.

Put it this way… your insurance firm gets a claim from you saying you have got a terminal illness and you wish to make a claim…[Read more]

Billy

A number of people on here,had problems with private insurance,one I can think of is Gill,her husband was at deaths door,and insurance still would not pay,I do not know if they ever recieved the insurance. Before he died.

The insurance make it hard to claim,there is only one way to go, Name and Shame to a national paper.Eve

Hi Eve,

Thank you for your kind reply on my post. I am looking through the forum and I am sorry to hear MM has reared it's ugly head again for Slim and yourself. As I'm sure you are aware there is plenty of support on here for you both.

Sending you kind wishes and support,

Clara x

Hi Mohammad,

My Dad also suffers with PN, there is info from a Professor on Myeloma Uk Tv (look at bottom of the page). Has your mum tried Capsaicin cream or Vicks on the soles of her feet? Capsaicin cream is only available on prescription here. Perhaps you could get this in Iran.

Best Wishes
Clara

3.2 in 2 visits, is that right? Why didn't they try for 3 or 4? Or do you mean 2 actual visits… different weeks etc.,? :-/

I know that I got the same as Colin… 2.1 million and that after five days x 5 hours a time for 5 days and 2 midnight returns to the hospital for 2 shots of Plerixafor… it was a long week and 'someone' was supposed…[Read more]