Hi Eve, my name is Clara, thank you so much for your reply Dad is going to have his stem cells harvested and then take some more time to decide whether to have SCT x

Hi Jane

Only 31 not to bad lol, some one on here use to put Dex tablets in yoghurt might be worth a try..

Hope things go well for you Eve

Good luck with the Velcade David, I had mine in the bad old days of Cannulas and my veins are a bugger to find at any time so finding a suitable site included a lot of fun and games… so sub-cut sounds like heaven (I have been taking Clexane daily – self administered at home – for20 months, so I am used to moving them about. 🙂

General…[Read more]

Hey Peter I had a femoral line in don't do Hickman's as the get infected easy, and I am on glasses now femoral line has been removed Ha ha.

Eve now don't you go blaming the Ipad as it has a spell check with it Lol, and I know you could never run out of nerves Lol.

Love to you Both

Tom Onwards and Upwards xx

Hi Mohammad

The Consultant I mean is the one that is dealing with your Mum's Myeloma and or the nurse in his department.

I am sorry I cant add anything else Mohammad as am sure this should be left to your Mothers consultant.

Good Luck and give my regards to your Mother

Tom Onwards and Upwards

Hi Jacquie and Geoff

Well Done, I got enough for nearly two but they put them into three bags instead of two 🙁 so they used them all 😎 av none in reserve 🙁

Good Luck with it in June and go and enjoy your holidays

Tom Onwards and Upwards x

Hi David
Sorry to hear about your relapse 🙁 just remind me how long was it since you had SCT (me brain has gone??)

Good Luck with the Journey with the "Velcade" and I hope its gentle with you.

Vasbite, Onwards and Upwards Tom

Hi Peter

I was ging to say that about Tom bu ran out of nerves,he keeps an eye on my post in case I take the mick.lol
Sorry about spelling this I pad has a mind of its own, Eve

Ho Jean

I am so happy for you,they are good bloods,and I am so happy you have a first class consultant who knows there is no way a man who has had a SCT should be waiting three hours in clinic

Tell Frank if you cheese on toast is not good enough,he can make it all the time and give you a rest. love Eve

Only 3.5in one go!!! That's great.

I know you tend to want to get this over and done with,but you are wise to have that holiday . Good luck Eve

Hi Mohammad

Sorry your Mum has got MM but a warm welcome to you both.

As for PN it is a side effect am afraid I suggest she talks to her Consultant they might reduce the drug dose that she is on and the sooner the better I think.

Tom Onwards and Upwards

Hi Billy
Well done on getting that news 😀 I know how good that feels (still remember it lol)
Good Luck with your Transplant its a bit uphill sometimes but well worth it 😎

Eve I never said my buds are back I just like the "Feeling" Lol, and trust me you can take my name anywhere it will stand you in good stead :Lol hope your both doing…[Read more]

Hi Peter

Very good news,you must be feeling on top of the world

Was interesting what you said about not likening alcohols Slim is the same and he loved his wine. He even tried a G&T yet other people enjoy drinks wonder why taste buds do not come back with some people.
I will not take Toms name in vain ,!!! Lol Eve

Hi Jean and also you Frank.

You so look forward to coming home,then it flops and becomes scary,no support .!!!! We all had it Jean,but your an old hand now,Frank will go in for blood checks,any problems, will be picked up only when they are completely happy with him,concerning bloods and platelets,it will become less visits for hospital. The…[Read more]

Hi

I cannot advice you,but I know someone who can,ring the Myeloma Nurses on here,there are also video s in the library part of genuine people who have treatments,when you have two disease s it complicates things.

I will say no one can guarantee what remission. Anyone can get,they can only hope for time,and if doctors valued patients…[Read more]

Hi Maureen

I am not surprised by your story,as Slim and a few others have gone through a similar path,I actually sent a letter to my original doctor asking for an explanation ,thinking he might just have the guts to admit,the mistakes he made,but it was a waste of time.I phoned for a referral ,you need them private or not,another doctor phoned…[Read more]

Long day for you two Dai and Janet 🙁 but it looks like it was worth the wait 😀 albeit am sure it can be done faster, it cant be good sat up in hospital waiting.
Keep well Dai and hope you stay on treatment till it sorts it all out.

Tom Onwards and Upwards

Hi everyone

Andy I think Velcade is around £ 750 per phial,but the makers of Velcade have some form of agreement that if it does not reduce the Myeloma. by 50 percent the health service do not pay for it plus it is a trial drug unobtainable,as not passed by NICE,,that's the way I read it any way,don,t quote me David. Lol

To give my local…[Read more]

Welcome home Frank indeed. 😎

You are not on your own regarding that feeling of fear Jean… Janet had it too and in a way so did I. Don't get me wrong, I was glad to leave hospital and get home but I was aware it was just the 2 of us with me as weak as a kitten and with a long, slow recovery ahead of us.

I get a small version of that…[Read more]