Well I went in today at 11am and had my blood taken… my Neutrofils were 1.17 which meant that Thunderbirds were Go… but very slowly, in 1st gear and with a hill start, on a 1 in 3 hill. The Bendamustine was ordered at 12pm or slightly before. It arrived in the Day Case Unit at 3.50pm and I left the unit at just gone 5pm. It made for a long…[Read more]

Hi Suzanne

Sorry you had to join us 🙁 but a warm welcome you will find in here great bunch of folks 😎

You will find a few blogs on here with people going through or have gone through the SCT, I did not do a Blog wish I had as you soon forget (well I did) the SCT is an uphill struggle at times but its a "Doable" I done mine in December…[Read more]

Hi David

I see you are quoting me, At the time I ask Slims consultant about possible maintenance ,with Velcade I explained Slim had had CDT then Velcade then SCT and wanted to know if there was the possibility maintenance. As at the moment it is 10 percent in bones. I was just putting a possibility forward rather than possibil round of…[Read more]

Thank you Andy and Sue

Andy at least we got SCT stage,will be your turn,a doña we hope..xxxxxx

Sue how are you doing,now the rush is over,I hope you are managing to sleep,give yourself time to recover.

I am off today for afternoon tea,( Mother's Day present from one of my daughters ) I have invited Jenny who has become a friend,her…[Read more]

Hi Helen

Just thinking about you,it's worst second time round.

First time you are just grateful you at last know what is wrong,second time round used up CDT. Plus Velcade ,the options reduced,It is a shock,we thought Slim might get a couple of years,but 10percent in 6 months,that's not a bit in the bum,it's a shark attack.

As I said…[Read more]

Thanks again everyone

It is nice to have your best wishers.

Tom sold the van today,exchanged it for a smaller one,which will be easier for me,cost me money,but it will be easier to take out for weekends plus the odd weeks ,the other one was made for staying away for long periods, the last thing I want is for Slim to be stuck in doors ,he…[Read more]

Hi Jean and Frank

Aww bless you two, you are having it hard but it will come right its took a bit longer than mine and I was drained so I can only guess how tired frank must be (and you jean) .

I have nearly everything crossed that Fran soon turns the corner and is allowed home.

Love to you Both

Tom Onwards and Upwards xxx

Hey you two
Hey am real sorry its came back on you Slim I do feel for you both.
As for feeling Sorry for yourself? well you have every right Eve to feel like that, but am sure you will soon turn round and face it head on and you know you have a few big shoulders on here that is more than willing to help you give that MM a shove.

If you are…[Read more]

Hi Eve,

Keith's last post was on the 10th of March, a reply to me when I asked him about his latest treatment (below).

Being home is good although he is still neutropenic with very low platelets. I am hoping that this latest treatment is working and that he will let us know of any progress as soon as he can. 🙂

Dai.

[quote]Hi…[Read more]

Hi Baba and Jean

We have known for a month now,it is just getting you head round it and getting over the disappointment ,we have both picked are selfs up again,plans changed and ready for the next round,stopped feeling sorry for myself,given myself a kick.(and that's just me) .Slim deals with it differently than me.

Selling large…[Read more]

Hi Jean

Good to know Frank got home,it does take a lot out of them Jean,when Slim came out the idea of going home gave him energy,I wanted him to have a wheel chair to the car,he refused,we made it from Kings in London to Kemsing Sevenoaks,had to stop as he could not go on,had a rest,then rushed like mad to get him down to Deal took 3 hours…[Read more]

Hi Maureen

I never realised you had difficulty getting diagnosed,what did you doctor say about it???

How are things going,are you managing to get any rest.Love Eve

Hi Baba

Well 1year on,and lots of years in front of you,congratulations .

I know you go to Canterbury ,so is it just Zometa now and a visit to see consultant every 3 months??

Let me know your next appointment,it may just fit in with one of Slims,I think we will be on the old route again.
Have a nice Easter.Eve

Hi Babs

You have every right to feel good as am sure your post will be an encouragement to those just embarking on the SCT and or other treatment for MM.

As for the Picture that painted at the start of all this well it is/was scary to be honest but the more I read about Good news the better I feel, and as you know i am an Onwards and upwards…[Read more]

Hi Jean

Sorry to hear Frank,s still in hospital,did not realise as I do not look in on here a lot at the moment, I thought Frank would have been out by now,kidney,s leaking,that's a new one on me,is he in any pain!!! I use to shower Slim when he was all hooked up,some times I ended up wetter than him,he had a shower but a wet room would have…[Read more]

Morning Dai and Janet

over reacting NO,looking silly Certainly Not, paranoid I say a big Fat No to that one, neurotic ? well another big fat No from me again.
But what you are Dai is :::Sensible and making sure you are top of "The Job" as you and all us others should be, while you keep that up you will all being well stay out of hospital…[Read more]

Hi Dai

You have just reminded me were I was 2 years ago at Easter and it was not avery good time with Slim.

I think you are asking are you being a little bit neurotic,well the answer is NO,any one who understands your position knows all the possibilities ,and the thought of going to any hospital during a holiday period, is worrying. Yes…[Read more]

Hi Jean and Frank

Well that four weeks has flown by (but not for you two am sure) well doing a few laps is good but the loos bowels ain't too good but to be fair I had that for a couple of months .
Am sure the light at the end f tunnel isn't too far away.

I had a femoral line fitted and I could shower with that, I just eft the drip outside…[Read more]