Hi Dai

Slim has already had Velcade ,!!! I was hoping the doctors ,might consider a form f maintenance ,as BMB are the only way to tell Slim has Myeloma,you would not believe how good his bloods are !!, most properly healthy than mine.

We should. Have the answer once we have results of MRI and body scan,by the time we see consultant it…[Read more]

Hi Eve,

I have to agree with you regarding sending the consultants back to school.

One of the prime objectives in giving treatment is to ensure a balance between efficacy and quality of life… apart from hospital visits for consults and treatment I have not been out of the house in 6 weeks due to being Neutropenic. I told my consultant…[Read more]

[quote]Never mind Dai, the neutrophils are just being a bit sluggish! Hopefully they will gird their logins and get a wriggle on! [/quote]

Hi Vicki,

They certainly need to get a wriggle on… I will have my bloods done in the Day Case Unit on Tuesday morning (due to no clinic on Easter Monday)and if my Neuts have managed to squeeze over the…[Read more]

Hi Jane

You will be fine just don't try and do too much during your Off days.

And I now have you on my Face Book, please be gentle with me Lol

Love Tom Onwards and Upwards xx

Hi Lesley

Never been one to shy away from "Scary Headings" ha ha.

Yes Dodgy Bones works for us but to be fair Kids hear more than we think they do to be honest, mine have seen me in a few bad days and a few times when I got "Not too well" while we had them and had to send them home, but hey ho we all cope 😎

Good Luck with your Hair,…[Read more]

Hi Richard

Well am sure you will not be wanting to do Lorry driving through your treatment, and your Insurance sounds Top Notch

I also Like you saying "Pick yourself up, dust yourself down, move on."
Am sure that works well.

Good Luck to you Both in the road to remission.

Tom Onwards and upwards

Hi Trish and Peter

Well its going to be hard keeping away from folk I remember having them in my late 30's and I had to go to Dr's and he used to check on them I asked why I could come into waiting room and sit with Pregnant woman, kids and old Folk but not go to work (he put me on sick) he just said I need to keep an eye on you?? Doh.

Hope…[Read more]

Hi Dai

Sometimes these experts forget what it is like for the person with Myeloma,and we can make up all the excuses for them,we know they have to be practical,but I do think they need to go back to school and take lessons in compassion and politeness .

I would not wish this disease on anyone,but they should show some understanding how we…[Read more]

Hi Dai

As I do I hate (though we have to) have my bloods taken every four months now I think?, then wait four days before I get confirmation that all is well, its not a good feeling.

I hope you can continue with your treatment and all picks up.

Stay Well and Fit

Tom Onwards and Upwards

Hi Nicki and Sam

Well done you two and your team, that's great news and long may it continue, hope the peripheral neuropathy stays mild.

Great news
Love Tom Onwards and Upwards xxx

Hi Sandie

Am sorry to hear about your Mum having to cope with Breast Cancer as well as MM and hope it shrinks with the treatment that she is having for MM.

My Young Bride (Elaine) was diagnosed with Breast Cancer in 2008 (Grade 3, estrogene receptive) and this summer she will be 5 years clear :-D, Elaine had a Lumpectomy and 5 lymph nods…[Read more]

Hi Lesley

I wondered why you made this ::: A question for the ladies ?? Then I looked at my photo and looked in the mirror and realized why you didn't ask me Ha ha.

Good Luck with it, our Grandkids don't know about my MM they just know Granddads got "Dodgy Bones" 😛 .

Take care and stay well

Love Tom Onwards and Upwards xx

Hi Jean and Frank

Aww Bless you two, its an uphill struggle for most of us and a bit harder than that for some, and you two are a pair of those.
Stick with it Jean you know he is getting looked after and I know its hard for you also so you must take time out to rest.

Did you get a reply from the other Dr about treatment carrying on ?.
Am…[Read more]

Hi Richard

Welcome but am sorry you had to be here.

What treatment regime are you or will you be going on?? I see you put its an Insurance that will be paying for your treatment? how will that work.
How/why did you lose your licence for HGV due to your Myeloma? how will you fail it for what reason.

Its going to be a rollercoaster of a…[Read more]

Hi All
Just a fast one.
The Itch could be your hair starting to grow I had same and when haire rerew it stopped.

Have a great day work for me now 🙂

Tom Onwards and Upwards x

Dear Ann

Am sure its hard for you, and I am sorry you are finding it difficult, rather than being on your own can you not go and visit Family and or Friends, and get them to visit you, I know you might not be up to it but one lovely Lady (Min) said on here that its better to expand your world rather than allow it to close into you.
Am sending…[Read more]

Way to go Val 😀 well done you, am pleased to hear good news again 😎
All the best for your Move and don't lift too heavy a box 🙂

Love Tom Onwards and Upwards xxxx

Hi Jan

Welcome to the site,and I am sorry you are going out of remission.

I might be wrong on this but reading present information. To be eligible forMUK. 5 I think you have had to had Revidimide ,you do not say if you have been on MX1 trials???.
I thought the criteria was you have had to have had Revidimide ,before acceptance on these…[Read more]

Hi Joanna

I am sorry you have had to join us,you are so young with children if you want to join the under 50site you have to apply look on this thread I think Deb,s up,d the post last time.

If you do not mind joining the rest of us,it would help if you went on the Newcomers bit,just introduce yourself and tell people a little about…[Read more]