Hi Alco

You can not base having Myeloma purely on urine,other factors are taken into consideration.it is not worth going into unless you are diagnosed with myeloma,low white blood cells can open up many problems,so do not go scaring yourself thinking you have Myeloma it is uncurable.

Go back to your doctor or speak to a well qualified…[Read more]

Hi Dai

It is good news,I hope if the medication you are on does not work I hope you get this one 500 people only,as you said it has to show in urine,

I worry that as Slim did not respond to thalidomide how well will he do on Revidimide ,and if the same conditions apply,he will not qualify for the new trials.

Any one heard from…[Read more]

Hi Jackie

I am so sorry you are finding it difficult to cope at this time my heart goes out to you.

I am fortunate to have never been in this place that you find yourself in so I cant say "I know how it feels" as I cant.
I am doing good but that said Like Dai I talk about it not only to my wife but my Sons also that way their will be no…[Read more]

Hi Nerys

Your more than welcome, and as you say its good to hear about remission and long ones at that 😀

And just to add to the Good news I have been in remission since 2009 and drug free since 2012, and am selfish as I am asking for a longer remission 🙂

Good Luck to you Both

Love Tom Onwards and Upwards xx

Hi Maureen and Ian

That's good news as you say I bet it was the Cake that did it. well done and good luck stay strong.

Love to you Both

Tom Onwards and Upwards xx

Hi Dai and Jean

We are suppose to be getting all these new people to tell us about themselves plus post a picture!!!!!

Dai Slim has had CDT plus Velcade next should be Revidimide,!!!!!! We though we might get 2 years !!!,,the only way we new it had returned was I asked for BMB as it does not show in blood or urine!!!!!!!?. We do not know if…[Read more]

Hi Maureen

Take everything they offer you it will help in the long run,I look back at the first time and thin how an earth did I do it,things also had to be changed at home,a shower instead of a bath,wooden floors in stead of carpet,the list went on and on,and some how I managed it.

This time I will not have all those problems but I am…[Read more]

Hi Eve,

I am so sorry that Slim has relapsed so soon, I was hoping and wishing for at least a couple of years for the both of you… but there you go and Velcade will most probably be next. It is an effective treatment and much easier now that it is delivered subcut… no more cannulas.

Did Slim get enough cells for a 2nd SCT? I know that…[Read more]

Hi Jackie,

There are quite a few people who still visit this board regularly who I am sure will be able to offer advice based on their experience of grief and loss… but it is the weekend and they may not be around for a day or two.

In the meantime all I can offer is sympathy (rather than the empathy that you need).

I can understand…[Read more]

Hi Leedslass

Sorry but I do not know you name,I see this is the first time on this site,how you ave managed without it,I do not know.
You need some form of help,but only you can decide,as good as family and friends are,they have no idea,what or how they can help unless you tell them.

This illness brings depression with it,not just for the…[Read more]

Thanks to all for reading and commenting… your comments are much appreciated. Looking back I can see that I did indeed have a rough ride during that first year but while the lack of treatment and care was terrible it was the amount of bone damage that occurred during the last 6 months of that period that has caused so many problems for future…[Read more]

Hi Jacquie
Well done in getting it sorted, I wont tell you not to worry as you still will, I will just tell you, Take one day at a time and let it run its course its a doable.

Now go and put some weight on first.

Tom Onwards and upwards

Hi Babs

1 year it soon passes,enjoy your holidays ,after last year make this year count. I envy you going to Australia ,we always said we will go there and hire a motor home and do the figure of eight.

Best Wishers Eve

Hi Jacquie

Congratulations ,just go with the flow,as every one says it is doable,harvesting stem cells is a bit of a haul,let's hopeitjust takes a day,things just fall into place from then on,all hospitals are different how they deal with SCT.

The only advice I can give you is,do not go out and buy new night clothes,plus take in you own cup…[Read more]

Hi Everyone and Dai

My name is Eve I use to be Slims partner for 31years,no intention of marrying felt we did not need it,how wrong could we be.
We married in ITU on the 26 of April 2011.

In Febuary 2011 my husband was diagnosed with Myeloma.

Slim and I are both retired,and have had a wonderful life are last 15 years have been spent…[Read more]

Forgive me Peter, I am not trying to be glib or make light of your points which I fully take on board but if I have to take paracetamol for ten years I will be the happiest man alive. 😎

As a matter of fact, right now, I'd settle for 2 years.;-)

Dai.

Hi Jacquie,

That's dates and a plan… and a comprehensive plan at that. 😀

I can only wish Geoff the best of good fortune at every stage of the plan and hope that your nerves hold out, especially as the SCT grows nearer.:-/ 😀

Remember that we are here to help explain and share experiences of each of the processes and…[Read more]