Hi Jane

Well am pleased your Bloods was Ok 😀
And I hope its soon when you start your CTD, Hope your Daughter and Son in Law have a safe move and weather keeps dry.

Yes Elaine and i have the grandkids often we have six :-0 not often we get all six together its a scatter here and their but we do have days when we know we will have them…[Read more]

Hi Maureen and Ian

Am not shocked nor surprised by the way you both feel, as its been said many a many a time its hard bloomin work and i think its harder to be the "Carer" than the patient.

I hope you all have a great Birthday,we all know its not going to be a great big lets get this party started day, so a little bit less is more (as the…[Read more]

Hi Peter,

Thanks for that, I would have found it interesting as an article anyway but more so now that I started on Zometa last month after four years of Bonefos (apparently I slipped through the net). I will have my Zometa with my 2nd infusion of Bendamustine for as long as the treatment lasts and then as a stand alone after that.…[Read more]

Hi Sarah and Henry

I can tell you I had them as a child, and got spots again when I was in my late 30s and told Dr my wife thinks its chicken pox ??? He said You should listen to your wife more as she is correct. But be grateful it's not shingles ? So the answer is yes.
Hope he stays well from it.

Love Tom onwards and upwards xxx

Hi Ali,

I agree with Eve, ring MUK and speak to Ellen or one of her colleagues regarding the complete rundown of the test. I have done about 10 of these tests, including one early on where, like you, I flooded my body with liquids and filled the bottle before midnight… actually it was before 7:30pm (I was listening to 'The Archers' 7pm to…[Read more]

Hi Ali

You would be better you rang the myeloma help line t speak to Ellen or another nurse.!!!,

Every one on here can tell you there story but it will not help you .Go back to y our GP and keep pushing until you find out why your white cells are low,the problem with Myeloma is a GP. Might only come across 1 case in a life time and people…[Read more]

Hi Maureen

Well what can one say,it's one thing after another ,this is we're the family have to help out,even if it is just for an hour to give you a break.

In Ian,s defence he most properly does not realise how everything. Is taking its toll on you,but it does not mean you have to sit back and take it. You do have to find you own way of…[Read more]

Mari
As I explained to Nettie I am about to undergo my second transplant and your experiences and knowledge have encouraged me greatly to go ahead with a bit more confidence.
Many thanks and good luck to you both.
Carol xxx

Hi Nettie
I too am having to make the decision to go ahead with a second transplant – I was in remission for about 18months followin the first. Having read your very helpful personal experience I feel so much more confident in going ahead with my second procedure. I struggled greatly during and recovering from my first transplant which is…[Read more]

Hi Ian

Thats Good and i hope that you dont have problems with your legs as am sure you have enough to contend with.
They say the Subcut is best way? am pleased you are confirming that.

I have fingers crossed for you Ian, keep well and hope your legs stay solid.

Tom Onwards and Upwards

Hi Jane
Your welcome.
Dont forget during SCT you wont be alloewd out till your fit (ish) so I would suggest patches before you go in to wean yourself off them 😀 that said you will be near a coma anyways as Elaine told me i slept most of the time Lol.

Easter? well no plans but am sure we will be babysitting some time over that week end 😀 ,…[Read more]

Hi Billy
Sorry you had to join us but welcome anyway.
Its hard to keep your savings when you get ill let alone when you get proper ill 😐

I and my Young Bride (elaine) has seen our savings not only dwinndle but go the lot :-S as Elaine got breast cancer in 2008 and i with MM 2009 🙁
BUT I am pleased to say I dont have Bone damage and…[Read more]

Hi Jean and Frank

Well am sorry to say I cant help re the Leak from Franks Kidneys :-S but am sure the Dr's are on it with the Anti B's .

Its a long haul andf am sure it was longer for my Young bride (Elaine) than I ??. you know you will have to stick with it Jean but it has been said before "Make sure you Rest also" as the work realy…[Read more]

Hi

Just something might be of interest to DAi and Jean,if I am correct you both have children on the isle of shep who both wrk in the prison service,Am I correct?????
Small world.Eve

I got it first time jean Lol xxx
😀

😉

Hi Jean and Frank

Well I had a fair bit of Platlets and blood given whilst in Hospital and to be fair when I dropped I didn't feel well untill the day before i came home (was in 16 days) I had the rash but the think I worried more about was the sickness and still running to the loo, but it all came togeter slowly, I know its Hard to sit and…[Read more]

Hi Jane

You will be fine (ish) and yes i uised to smoke,, stopped just three weeks prior to my SCT in 2009, I was just using Patches to help me while i was in Castle Hill having SCT and thought when i am out I would start again 😀 , but it all fell apart as after SCT I couldn't be bothered or want to Roll me Fag so i didn't nor did i have the…[Read more]

Well as if we dint know it would work on you 😀 but that said a very well done Peter and long may it continue 😎
Great to hear Good news

Tom Onwards and upwards

Aww Tanya Gi Ower or yel mek me blush 😉
Well we are through the upbringing stage and have moved on broke the chain am pleased to say.

I do hope your dad sorts himself out for him as well as the family.
Your dad is in for a rough ride with the mix that he is in so you must brace yourself as you know you will be the whipping girl to shout at…[Read more]