DaiCro replied to the topic Struggling to cope in the forum General 11 years, 8 months ago
Hi Tanya,
I appreciate your stand in not taking your children to see your Dad… and I also feel sorry for Ron for having to deal with the demons brought on by alcohol on top of the problems presented by MM. But I am also quite sure that he knows what effect his behaviour has towards those that are only looking to help him. It becomes a…[Read more]
tom replied to the topic new arrival in the forum Off topic 11 years, 8 months ago
Hi Pat
Aww am pleased Beatrix is home I bet you are all over the moon.
Face time is great but getting some of the grandkids to sit back a little is bloomin hard work ha ha, lets get thos other 5 out of the way and get yesen off to canada.
And Jean am sure you could never look like you have been dragged through a hedge 😀
Love to you and…[Read more]
tom replied to the topic my mum has myeloma. first time post in the forum Newcomers 11 years, 8 months ago
Hi nerys and Mum
A warm welcome to the site, as you know its got great people on here.
You have had your Q answered by those great folk, your Mum's Journey like most here has been a difficult one, most Dr's dont know what and how to tell its MM.
I went in December 2008 with a problem on ribcage and was told it was a "Pulled Muscle or a…[Read more]
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hi David
What a great post 😀 yes my family and friends (not all though) cope with my MM in a good bantered way and throw the jokes in 😀
am sure am due an update of photo's David? and the pillow looks great your young lady wife did a top job on it.
Am pleased you say you are not rushing into useing the coffin for many a year to come but…[Read more]
tom replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 8 months ago
Dear Nola
I am sorry to hear about your Loss in Jan.
Stay strong and think of the good times you had before MM came into the scene.
Love and Hugs Tom xxx
tom replied to the topic New on here in the forum Newcomers 11 years, 8 months ago
Hi Rob
Yes sometimes when i am sat down for anylenth of time i find myself "Stiff" and difficult to get of the chair some days, but hey that could just be my old age hitting me sooner than most Ha ha.
I still work (light duties) company gave me a portakabin with everything in it and stuck it near the gate and said just book lorrie's in and…[Read more]
tom replied to the topic Struggling to cope in the forum General 11 years, 8 months ago
Hi Tanya
I can honestly feel for you as I also was brought up in a household that revolved around drink as a child, Both my parents have now passed away Dad first then Mum, I never used to take my Sons (all grown up now) to "Scot Nanna's" due to her drinking habit.
That said to show you you aint on your own 🙂 xx
That said I wish you…[Read more]
tom replied to the topic Shaving head in the forum General 11 years, 8 months ago
Hi Jean and Frank
I had mine cut in Hospital by a kind nurse and when I got home i shaved it to the bone with my Electric razor and kept it like that for some time, just used to swith electric razor on and sit wathcing telly and running it over my bald head, did same with eyebrows when they started to have bald bits in them.
Tell Frank to…[Read more]
tom replied to the topic First post! in the forum Newcomers 11 years, 8 months ago
Hi Norma
A warm welcome to you 😀 this group is a great one as and when you need it to ask or even rant and rave.
I had a SCT in December 2009 and am now Drug free and in remission, its a bit of a haul am afraid but a Doable.
Good Luck for Monday and you know now we are here for and with you all the way.
Tom Onwards and upwards xx
eve replied to the topic Shaving head in the forum General 11 years, 8 months ago
Hi Jean
I did not need to shaves Slims head,but he did look funny with tiffs string out,in the end just cut them down to nothing,then it just went by itself down the plug hole.if you have the nerve you could do it yourself .Slim would not let me near him with a razor for his head or face.
Even in ITU a nurse offered to shave him,but would not…[Read more]
tom replied to the topic More Personal Information Please in the forum Off topic 11 years, 8 months ago
Hi Gill
I will do that this week end see how i cope with it?? but if it gets lost in Cyberspace dont blame iccle ole me Lol.
And some one told me its your Birthday 😀
Happy Birthday Gill have a good One
DaiCro replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 8 months ago
Hi Sandie,
I have followed your thread throughout but these good people seem to have everything well covered… excepting one thing which I think has slipped through the net (forgive me if it has not and I am repeating advice already given). :-/
Liquids intake – 3 litres a day minimum… your Mum definitely needs this. MM sufferers are…[Read more]
eve replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
They should let me in the under fifties,then I could really let rip,and I feel like it after the day we have had,people seem to think because you have grey hair,you should not have an opinion ,and being 5 foot nothing does not help.
Just so angry,have had a few beer,s to relax me,but its not working.will have to try vodka,works for you…[Read more]
tom replied to the topic Some sad news in the forum End of Life and Grief 11 years, 8 months ago
Hi Debs
Well said, that young lady was my inspiration through all my treatments first up with good advice and not short to give that comfort as and when you needed it.
Reading Pamela's Post when she was giving advice I could feel her arms giving me comfort also.
You made me Happy and you made me Believe I can do it and for that Young…[Read more]
tom replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 8 months ago
Ps R/T is Radio Therapy the tell me its good for the bones 🙂 xx
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Well Done Garry you have beat my 16 days of "Lockdown" stay well and in a few months you will be in Top(ish)Form 😀
Even when you are home Garry you are still recovering so take it easy and sleep when your body tells you.
Well Done and Good Luck
Tom Onwards and Upwards
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and pete
Yes early days but its gonna be Ok 😀
Do you know when i was off I dint like the telly on nor radio I used to sit and read or go on Commie in between sleeping lol.
You should try and borrow a "Shooting Stick" for Pete I was given one and i carried it when out and when my back was bad or I felt tired ext I popped it open and…[Read more]
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Lol Eve am sure only you could get away with this one Lol al probaly get told orf lol xxx
Love Tom xxxx Lol
tom replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 8 months ago
Hi Sandie
Am pleased your Mum is getting better and hope the next round of Chemo is good for and to her 😀
As for the steroids well we all differ in what and how we cope with treatment but am sure am safe by saying a weight gain is civen on steriods (i did but i had lost a lot of weight due to MM (and I thought it was my diet ha ha) as for…[Read more]
eve replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hi Tom
His pubic hair never came back. Lol.Eve