Hi meeuu

i needed that joke at five this morning still lol,have you any more ?

Hi Jean

Frank is so like Slim!!!!!,If Slim new about me talking on this web site he would,go off on one.He was a commando marine for 22 years,use to being obeyed the only good thing about him being so stubborn is it just might be the one thing that helps him on this journey.He is a fighter with the believe he can do it and in my own way admire…[Read more]

Hi Jean

Is a holiday going to make any difference to treatment?

I have one of those men,who would not listen to me,So he has stage three MM. he has all ways been like this,you are not going to change him End of the day his body his choice.
You must make your choice,do you go to Spain,and have a holiday may be the last for sometime or phone…[Read more]

Hi Jean please dont apologise for letting off steam we all need to do it at some point. I am glad Frank is going to get his pain checked out , if there is one thing I have learnt in the last 4 years its not to ignore a persistent pain Could you phone his pecialist nurse about it or would that upset Frank? My husband is equally stubborn where his…[Read more]

Oh Gaye
You have just made an old (ish) man very happy, you put a smile on my face that before reading your post didn't know I could smile that wide Ha ha.

As for My Dr well he is normal and I have met him while out shopping and he pats my shoulder and asks if its all going Ok, he once put both his hands on my fat belly and shook it saying…[Read more]

Hi Nigel you have just got to go with the flow! Have a nice day chilling on the sofa tomorrow is another day love Bridget

Dear Gaye I had to smile when I read your post as I have done something very similiar. Unfortunately mine was a complaint e-mail!! It didnt do any good either. I hope you are having a nice weekend , the sun is trying to shine here yippee love Bridget x

Hi Debs I am so glad they put you on the revlimid and you did not have to make the decision about going straight to SCT or coming off the trial. As you know I am on 3rd cycle of CDT on the trial. Not going too bad except for the Dex cheeks and going up by two dress sizes 😀 My PP went from 36 to 29 in the first cycle and she believes I will be…[Read more]

Hello Gill

I wasn't told what my paraprotien levels were on diagnoses only my Bench Jones figures which were 22% after my CDT treatment my para's were in a band to fient to measure and still are I stayed on 100mgs of thalidomide for twelve months stopped because of PN not had any treatment for a year now except a monthly infusion of…[Read more]

hI gaye

I think consultants are human to you may have cheered up her day She will be thinking you really appreciate her
Love Jo x 😎

HI Jean

I am a new be to this site and also to mm,my partner is on his 29 day of cdt.He has had pain in his right side for a long time,he originally thought he had broken ribs.When it was first diagnosed the damage to the large bones were in shoulder blades and skull plus spine,these showed on skeleton exray and mri scan. ct scan has not been…[Read more]

Dear Gaye you have been in my thoughts a lot lately , I am so sorry to hear you havent yet hsd any relief after your rt You must be exhausted . Heres hoping you dont have to put up with it too much longer lots of love Bridget x

Hi Jen well after last week this week is so much better The soreness and tenderness lasted all week though .I am convinced it is dex in combination with revlimid that is the culprit .I am also on a reduced dose now ,15mg and the tiredness is less of a problem I know what you mean about the shakes , it really is annoying Still hopefully next month…[Read more]

Hi Sandra I was 52 when diagnosed and I was told that an allo was too dangerous for me , mind you it wasnt just based on age but rather the amount of damage already done. I was surprised as UCH London is a major teaching hospital and my local docs had suggested an allo as a possibility. David it was Shirley who had her allo recently love Bridget x

Hi Edo I suppose they are checking your dads blood results regularly? Last year my father-in-law became extremely confused and it was because his sodium levels were very low, it might be worth double checking they are watching out for that .I do hope things improve soon love Bridget

Hi Nigel sounds as if you are doing well on velcade long may it continue !! love Bridget

Hi Edo its possible your dad may just need a little longer to get used to the idea of having myeloma , the other infections etc must complicate things He does sound like a very strong minded person so hopefully the anti-depressants will be the jolt he needs. It is always hard to see our loved ones going through something like this and feel…[Read more]

Hello amanda

I know it must be hard for you if you love your mum, have you tried the
Local hospice or Mcmillan I am sure they would help with some concelling

Good Luck JO

Hello Jill
I had shingles last summer terribly painful I am really sympathetic for your mum I think she was a bit late for the antivirol but the doctor could have offered her some aciclovir cream I tried an old treatment which was dabbing the pustals with cider vinegar you smell a bit chip shoppy but it worked better than camomile and dried it up…[Read more]

Hi

I travel every year in motor home making are way through France then Spain and on to Portugal 'we have needed a doctor once in France and a dentist no problems just paid are 20euro,s and then paid for tablets.In Spain you can take your repeat prescription in to chemist and you can get it over counter we do this all the time as doctor,s are…[Read more]