Hi Roz thankyou it means a lot when all you lovely people on here cheer me up I dont feel sorry for myself very often ( not much point !) but its great to have friends when you do I am hoping to be able to bear my clothes touching me at least tomrrow , otherwise I will be sark naked not a pretty sight Hope you have a good weekend and you are…[Read more]

Dear Min bless you , it really helps to know Peter is feeling better . I have stopped feeling sorry for myself now , till the next time !! I dont have the runs but my tummy isnt right , I think I read before that Peter is on Lanzoperale so am I Interesting that Zometa has made a difference to the water retention , I realised mine has been…[Read more]

Hi Chris I am glad to hear you are doing well after your transplant A trip to Australia sounds wonderful at this time of year , I bet your daughters were happy you made it Do you have grandchildren as well? I am not sure my tale will be much use as everyone of us is different but here goes— I was diagnosed in 2006 after almost a year of…[Read more]

Hi Min what a pain these neutrophils are I am having the same problem!! Is Peter on the GSF injections ? I have been told its likely I will need one or two a week to keep my neutrophils up. what joy !! I really hope you can get some sun soon love Bridget

Hi Thanks kwilson for the advice on insurance I will look for that.

Hope everybody is enjoying this lovely weather or is it just south of the thames that has it?

Great news Min heres to many happy hours doing all the things you want to do !! love Bridget x

Dear Dai I am so sorry to hear you have lost your dog Its hard to say goodbye to them like that , our 16yr old mongrel put to sleep a few years ago , as you say it happens so quickly. People who dont have dogs in their lives often cant see what a big gap they leave , just the same as any family member . love to you both Bridget x

Hi Susan,

I am almost exactly a year post SCT and my consultant has had to explain/reassure me that most of the pains I get are from the residual damage caused by the original myeloma and not indicators that mm is back. She has told me that because I am on eight week cycles of consultations it is far more likely that mm will be picked up by…[Read more]

Hi Sarah its always scary to be told you need to start treatment and at first all the information on side-effects etc is just too much to handle .Please tell your mum to take it one step at a time , life will be different and sometimes its a struggle but it does get better as you get used to the treatments and find what works best for you Its…[Read more]

Thanks Bridget,

Thats given me some peace of mind, I'll give the nurse a call tomorrow,

Cheers clara xxxx

Hi Clara it sounds like fluid retention which is fairly common with a steroid mix.I have had it quite a lot , you need to get a prescription for diuretics tomorrow and get your dad to elevate his ankles and drink plenty .It does go down fairly quickly , not sure about the rash best check it out tomorrowIf the rash gets worse have you got the ward…[Read more]

Haha Roz this one cracked me up very clever thankyou for the giggle .How are you getting on ? I hope you get to spend time with your daughter and granchild , children make the world a much better place dont they love Bridget x

Hi Andy I would definitely reccomend going for the sct ,it is worth the chance of at least a lengthy remission from heavy duty treatment and more people seem to getting complete remission lately too . As Gill suggested talk it over with your consultant as to whether you can delay , most treatment plans are worked with you so tell them of your…[Read more]

Hi Ruth so sorry to hear your husband is having a rough time . It takes a bit of time for everything to take effect and for the doctors to get test results to help them understand the best treatment .I agree with advice you have had dont delay in phoning the specialist nurse or even the consultants secretary if the pain is bad , its only by…[Read more]

Hi Ruth

My partner is on his 10 day of chemo,I can only tell you he should not be in any pain,if you do not ring the hospital to find out why,go to your own doctor,My partner is on very strong pain medication and is in pain when he does to much.

Normal exrays show up lesions on large bones mri scan for small bones eg spine;,no matter what…[Read more]

Hi Min thankyou these made me laugh out loud ,just what I needed . Hard to believe we put our trust in doctors though!! loive Bridget x

Hi Tanya its fairly common to have bone pain with myeloma , for this its log term pain relief The bone strengthening infusions such as Parmidronate or Zometa do help pain as well I take slow release morphine tablets twice a day which works well for me .There are also patches which release a controlled dose over 24 or 48 hours .If the pain killers…[Read more]