Hi Keith it does sound as if it could be neuropathy I am sure the hospital wil put your mind at rest though It must be very frustrating though and not pleasant I hope it goes soon love Bridget

Hi Sarah you will get loads of suggestions for this one .Heres a couple ofcan think of , a packet of moist toilet tissue wipes ( hospital loo paper is not nice when you have to keep going!),a pillow if the hospital allows it best to check,perhaps a digital photo frame with pictures to keep your mum cheerful, a radio If your mum enjoys reading an…[Read more]

Hi Roz lovely to hear from you love Bridget x

Hi Tanya glad to hear your dad isnt doing too bad Low platelets and blood counts are typical with these drugs and easily remedied so dont worry .I am so shocked they havent given him proper pain relief nobody should have to put up with painWhen I see my doctors pain relief is the first thing they ask about and others have the same treatment so…[Read more]

Morning Tanya

Well sounds like your dads doing well 😀 and its amazing where we find the strenth to cope with these things:-S but it always comes to the forefront.

Good Luck on Monday and I hope he gets the OK for the infusion's.

Tom "Onwards and Upwards" xx

Thanks everyone!

Yes so far so good, however Dad has complained today of his feet being very cold but they are hot when touched, perhaps this is a side effect? He's feeling slightly queasy but hopefully the anti sickness pills will help.

He got an appointment in for the hospital for his Radiotherapy on Tuesday, typical I'm away with my work…[Read more]

Hi David you have started something with this game!! My husband is now a total addict who is dtermined to get the maximum score !If only I had paid attention in geography lessons I might have a chance of beating him love Bridget x

Hi Clara I am so glad things have got off to a good start and I hope your dad continues to feel fighting fit for a long time . As long as he doesnt feel he has to keep going through the tired times and rests when he needs to he should do fine It must be a relief for you to see him doing so well love Bridget x

Hi Jet interesting topic I must admit its not something I am prepared to take a risk with Nothing I have read so far has convinced me that using herbal remedies alone could deal with cancer , if that were the case it would have been proved beyond doubt a long time ago . Vitamin supplements to deal with by-products of cancer have been useful for…[Read more]

Hi Min congratulations you must be walking on air!! I have had to give a few presentations in my work so I know how scary it is , you should be very proud of yourself . I hope to get to an info day soon I could use some inspiration at the moment !!My neutrophils are rock bottom too and I have a blood test Monday to determine whether I can take…[Read more]

Hello Jet
i have not tried any alternatives for the myeloma but i have had accupunture for pain relief which worked quite well

Regards jO :-/

hi everbody

I have decided to come out in the open;I have kept my partner low key because of family circumstances.

I am eve aged 62 originally from Liverpool ,have lived in Deal KENT FOR 40 Years.My partner who is 66 was diagnosed February the 11 this year.He is known as Slim only his mother called him by his birth name.

We have been so…[Read more]

Dear Gaye I am glad you have finished your rt now I hope you start to feel the benefit very soon . I have been feeling a bit blue myself lately and I am hoping the lighter days and spring weather will make us both feel happier . I hope you have a lovely pain free weekend love Bridget x

Hi Sandra thanks for making me giggle today !!From another oompah-loompah who also has the round face , awful pot belly and stumpy legs !! Shame we dont all live closer we could put on a very authentic production of the show !! Seriously I hope its not getting you down too much sometimes it depresses me more than others( usually when I try to…[Read more]

Hi Eve

When you say its a bit complicated well dont i know it, and am sure she would want to know? but you know her better than I.

The main thing is for you Both to stay strong and fight this bloomin MM and try not to "Store Problems" I know its not as easy as that :-/

And the comment you made bout cheering you up has left me feeling…[Read more]

Hello Henry

welcome to the site sorry you have had to join the club I was diagnosed Jan 09 age 61 had the CDT which worked well for me although I did end up
with numb feet due to the thalidomide this is a common side effect my toes are still fairly numb but small price to pay as the treatment got on top of my Myeloma I have a monthly infusion…[Read more]

HI jo

Interested about going on holiday,how do you manage insurance wise? We have been told once my partner gets use to drugs we can go off in motorhome,but he is on morphine ,and only 10 days supplied at a time,so France looks out although for us France is nearer than most counties,and I am happy to drive in France.The customs might have…[Read more]

hello tom

It is a bit complicated with his daughter,in February she knew he fractures in his back,Then he was told he has mm and decided he would tell her h/term when she said she would travel up.She did not come,and no phone calls since,

My own daughters know and are there for both of us.I feel she should be told but will not go against my…[Read more]

Hi Henry
Well a warm welcome to you 🙂

Sorry you had to join though, but seen as you/I or we need something when we have MM cant get a better support group 🙂

I was Diagnosed in January 2009, and since then I have had stem cell harvest and transplant, and now back at work (light dutie's)

All went well but as we all know we have our Off…[Read more]