Hello Tanya

Sorry to hear about your Dad 🙁

But you know your Dad and am sure you know he will cope with what this darned MM throws at him.

Bridget is correct can your Half sister help out, have you tied the Social Service to see how they can help.

Good Luck and not forgeting yourself as it is too easy to forget about you and your…[Read more]

Hi Clara
Well you have had some great advice on here 😀
And that only leaves me to say
Good Luck to you and your Dad with his forthcoming treatment:-)

Am sure it will run smooth

Love
Tom "Onwards and Upwards" xxx

Your More than Welcome Sylvia, and I also am waiting to have some proper sun on the back of my fat neck 😀

Not be long before we can all sit outside 🙂

Love Tom xx

Hi only me glad to hear your mum has got started, it does get easier You could ask the specialist nurse if they do a drug chart to help manage all the tablets , I usually do my own so that I can tick off when I haave taken something I hope things go smoothly and please give my best wishes to your mum and dad love Bridget

Hi Tanya your poor dad is having a hard time and of course you as well When myeloma is first mentioned its always a huge shock and it takes a bit of time before all the information starts to make sense, so take it one day at a time and be wary of searching the internet as information is very often out of date This site is brilliant ,if you have…[Read more]

Hi Min I bet that feels great now its more official and the time will fly!! Before long you will be having leisurely lunches and long shopping trips , dont forget spa days too Sorry just teasing Icant imagine you are the sort of person who would enjoy that sort of lifestyle!! You will love being retired though and I bet Peter is looking forward to…[Read more]

Hi Tanya,

Sorry I am unable to give much advice as I am new also to this site and trying to understand Myeloma, what I will say is there are lots of friendly helpful people who will guide you along. Best Wishes Clara xxx

Hope all went well with your Mum today xx

Hi Gaye/Min,

Thanks for all the info I think I am going to give Ellen a call. Unfortunately Dad didn't start his CTD today as they felt best to wait another week until his chest is better, I will take your advice Min and perhaps seek another form of antibiotics if required. We have been down to the Royal Free who were most helpful and diagnosed…[Read more]

Hi Jo. That's interesting about anti biotics mine are co trimoxazole forte but the rash is like german measles. Great to hear CDT was a success for you.keeps me positive Kay x

Hi Bridget thanks for reply. I did not have gout thank goodness. I was put on a tablet for one cycle to stop it. My consultant said that when myeloma breaks down it could cause gout!!!! But they took me off it because of the rash. Although it's not pleasant for you it's nice to know we seem to have the same symptoms a few days after the Dex.…[Read more]

Hello Bridget

I am well at the moment get PEP results on the 1st of march so fingers crossed I next go to UCH on thursday 24th Feb when will you be there.I
have a support group meeting this friday I believe we have a speaker from McMillan so should be interesting I will let you know all about it I am so glad your pain is getting a bit better…[Read more]

Dear Gaye of course you are entitled to feel sorry for yourself , you have been going through h**ll lately!! Tomorrow I will be willing your rt department to get you sorted as quickly as possible , all my fingers and toes crossed too Mind you they must have decided you were a lady not to be messed with today if they are sending your meds out by…[Read more]

Hello Kay

good luck with the CDT it really worked for me I also had a rash we diScovered it was the Anti B they put me on ( CIPROFLOXIN)it looked like a german measles rash

Keep Well love jO X:-D

Hi Kay glad to hear treatment is going ok. Poor you gout is very painful isnt it, the last thing you need. I am fairly certain it is dex that makes me feel sore and tender, but it is my first curse of revlimid too. I finished my dex pulse last Thursday and the tenderness was at its worst on Sunday, so the timing is right. I think your description…[Read more]

hELLO Gaye

so sorry you are feeling so unwell at the moment you have every rite to feel sorry for yourself I hope the RT treatment goes well and it will soon help with your pain

Love JO XXX

Hi Bridget
I have started my CTD now. On the second week. I have had the sandpaper mouth but been lucky with, up till now, no other effects. However, today, I have a rash which the nurse has said is due to the gout tablet and has taken me off of it. But I was interested to hear about you saying how tender you feel. My back feels like it is going…[Read more]

Hi Jo that image set me off with a fit of the giggles!! Perhaps we could record the dex song ? Then they would have to interview us all on breakfast tv, trouble is none of us would have the patience if it was a dex day !!! Haha Radiotherapy certainly seems to have done the trick for me , the pain does come and go but for only a few hours at a time…[Read more]

Hello Bridget

I did laugh I could imagine Dai conducting us in a chior I would be the one he would tap on the head a say mime it. Dex Dex Dex we should write a song perhaps Dai could, I know what you mean about fat face I am only on a small dose but still have a fat face! hope you feel much better soon have you had any relief from your RT…[Read more]

Hi Debs be interesting to hear what your docs say Have you noticed a need for saltier foods? I realised last night why peanut butter wasnt right , couldnt taste the salt . Have you mentioned the bruising feeling to your doc? I dont think it is that common I mentioned it to my consultant once and she looked at me as if I was nuts!! Just had a…[Read more]