Morning Sharon great news !!Bet you cant wait to get home Take it easy love Bridget x

Good Morning everyone thankyou for your support , it always makes me see the better side of things. I am going to ask why there seems to be a delay in my finishing the dex pulse last week and feeling so rubbish 4 or 5 days later. Debs my money is on dex for the crappy taste thing , it always does it to me!! Pam I really admire how you are so…[Read more]

Thanks so much only me, I extend a best wishes to you and your mum tomorrow and hope she has a relatively straight forward course of CTD with as little side effects as possible, I will keep up with your journey and hopefully we can offer support to one another as our parents progress with treatment, Clara x

Thankd Bridget,

Yes I did mean Thalidomide just not spelling it correctly so many new words to learn however Thalidomide is one I am familiar with but just can't spell it!. Hopefully Dad will get started tomorrow on CTD and I'll keep you posted. Thanks for your help, I think Dad is to get the Parmidronate as I think that was what was mentioned…[Read more]

Hi Gill

I got two out of three pepperpot skull and Dexatude this word should make its way to the oxford dictinary
Love J0 x

Hello Sharon

I am sorry to hear about your spine I hope things get better soon could you please let me know what the nice guide lines are forwarn is for armed

Thank you Jo

Hi Min and Gill the article on steroids which was in the press last week said that steroids deposit body fat in specific areas These are the base of the neck and the tummuy area I know I now have a humpty tumpty tummy now whereas before I had a waist no matter if I was overweight What joy !! love Bridget x

Hi Clara how disappointing to hear your dad wasnt given his results, you could do without that sort of mix up I am sure .Sorry but I am not up to speed with AL but I am sure you will get answers from others who do know Most of us with myeloma have weakened bones and it is standard treatment to give monthly infusions of drugs such as Parmidronate…[Read more]

Hi All,

Angie I hope I'm not gate crashing your thread, it does sound like my Dad and your Mum are at the same stage, My Dad is also due to start CTD on Tuesday, don't know whether this will happen as he has a chest infection. I see your Mum has been on steroids and perhaps my Dad might need some of these also. I do know that we have been told…[Read more]

Hi Angie,

Another voice saying "it's the dex!". However, after a while you do get to know what to expect and everyone can then plan accordingly. For me, days 1 and 2 after the dex were when I was particularly low. But it's also good to know that the dex lows do pass and you can then look forward to several good days. Oh yes, and while…[Read more]

Hello min

My name is Josephine but I only answer to Jo I live in Hatfield in Hertfordshire I retired in December 2008 aged 61 1/2 diagnosed with MM Jan 2009 went into AE after my docter sent me home with paracetamol my husband insisted I went to AE I had double pnuemonia renal failure and as it turned out MM
what a shock five months of CDT…[Read more]

HELLO angie and clara

Welcome to the site it will not halt all your worries but really helps you will find out most things here but you will definatley get support which is so important as most people have not heard of myeloma you can feel very alone David is very right about DEX so bear with it, it does get better and your mum and dad will…[Read more]

Hi Elizabeth it was that clever Min that started this post I am so glad she did its lovely to hear about everyone !I am so pleased you still like your hat and even more pleased my sewing has held up!!Have a good weekend love Bridget x

Hi Sharon well if you do go there you will be in good company !! 5 sessions sounds promising , I hope they let you home soon afterwards . I have been impressed with the results of my rt , the pain isnt constant now and can disappear for a couple of days at a time , I can cope with that! There was an excellent piece on radio4 the other day( see I…[Read more]

Dear Sharon thank god you knew to insist but what a heck of a shock!! I was in the same position when they eventually diagnosed me and its so frustrating not being able to move independently , I feel for you. I remember them coming round and checking the reflexes in my legs every few hours as they couldnt understand how I had been walking around…[Read more]

Hi everyone, great idea Min ! My name is Bridget I was diagnosed with mm in 2006 after 3 vertebrae disintegrated. I had a spinal reconstruction and am now known as metal micky!! I had an sct in 2007 which gave me 18 months partial remission. I was then on the Myeloma X Trial which gave only a short break This time round I was on velcade for 3…[Read more]

Hi Colpot what a brilliant post , very encouraging for people like me who have just started on Revlimid. thankyou . Long may it continue perhaps you should go for a world record!! best wishes Bridget

Hi Gavin thank you for letting us know . In my experience you get very well looked after on these trials so fingers crossed it will be trouble free and you can have your sct and be free from major treatment for a long time . I have just started on Revlimid and the lovely dex !! A few unpleasant side-effects this week but I am hopeful it will…[Read more]