It took me a few goes to post my reply to Ron because of inappropriate content!! Eventually realised it was the very hot place some bad people go to when they die !!Haha how much more succinct a four letter word is !Bridget

Hi Ron sorry but Dexatude is a made up word to describe the awful creatures we become sometimes when we are on dex!! It can make you very short tempered at times and impatient ,not very nice for the people around us Hopefully your wife wont have these side -effects though In my case the higher the dose the more likely it is I will be not very…[Read more]

Thank you. Look forward to the journey with you.

Kay xx

Hi Kay I am glad your doc didnt keep you waiting all day Hopefully you wont have any problems I start Revlimid in a couple of weeks so you wont be alone love Bridgetx

Hi Keith thats a strange one ! I didnt have anything like that on velcade , mind you I wasnt on it as long. I always find dex is the main culprit for taste changes but I would have expected that to be from the outset . Hope someone else can help love Bridget x

Hi everyone
Well my consultant called and I am to begin treatment on Tuesday!!!! Bone marrow was 13% now 30% but more worried about my anaemia. I have dropped from 10.3 to 9.4 in 5 weeks. She has told me I will be on lots and lots of tablets but she is lovely and I trust her completely. Will not know until Tuesday if I am on Revlimid or…[Read more]

Dear Jenny what a terrible time for you all I am glad your dad is in the hospice where he and you will get the best possible care . I hope you do take up the counselling when you are ready to it will help you come to terms with your dads decision I am sure My thoughts are with you love Bridget x

Thank you everyone your support makes everything more bearable. The pain hasnt gone yet but I have had a few hours respite over the last 3 days. I wasnt expecting an instant cure so I am not disappointed Gaye your journey to Barts must be exhausting I could have Zometa at my local hospital bit to be honest its been a long while since I had any…[Read more]

Hi Min sorry to hear Peter hasnt had a good start to his treatment , fingers crossed tomorrow will be better. I hope your sciatica is gone for good , I had it many years ago and it is terrible love Bridget x

Hi Jenny

It must be a great relief to have your Dad in the Hospice, and even more now you know how good it is and the Nurses are great as it will take a bit of pressure of you and your Family.

As for Counseling I would say go for it, I was one that said "Oh I can Cope" and yes I can but and its a big BUT, when I had a chat with one and I was…[Read more]

Oh Gaye

Am I pleased you have "Come out of the Closet" 😀

I must say am not like you he he, Me when I was told back in Jan 09 and asked "How Long" and was told 5 years I turned to my young bride Elaine and said well we can do that cant we 😀 , and was i pleased when she said YES 😎

I also like others will talk the hind legs (and any…[Read more]

Well Done that Bridget 😀

As the saying goes "Thats the way to do it"
Now I hear you say "Time to sleep" well do it when you want and for as long as you want8-)

Sounds like you do have a good team, good luck with the Rev and Dex :-S
I know you will cope with that also, need to cuss and shout well feel free Bridget.

Love and…[Read more]

Hello Gaye

foot massage sounds great glad it relaxed you had one once by a chinese accupuncturist it started of ok then he sharted on the pressure points and soon had me writhing in agony no relaxation there then, felt ok after.
I know what you mean about taking DEX i found it went down better with a small glass of milk if anything can make…[Read more]

Gaye
this was so well put when I was first diagnosed I did not want to speak or see anyone I was afraid of the shutters coming down in peoples eyes when the word cancer is spoken I joined this site and it was my saviour it made me realise i was not alone I then found out my true friends and they let me know in no uncertain terms it made no…[Read more]

Hi Jo lovely to see you at last !!! Doesnt it feel great when you conquer technology? Dont worry about the moon face it irons out the wrinkles !! love Bridget x

Hi everyone well thats my radiotherapy finished !! I have been zapped for five days and it was only on the third that I found a button-through dress to spare my dignity !! As some of you warned I am exhausted , this morning was the hardest I just sat still for hours when I should have been getting ready , so tomorrow morning is a pj one !!In a…[Read more]

Hi Min hope Peter does well on Revlimid and will be watching out for your posts as I start mine in a couple of weeks too It would be nice if they only send me to sleep at night my little power naps are taking over my days as it is so if Revlimid makes me any more dozy I might not even manage to drink a cuppa!! Lucky Peter I am going to be on 20…[Read more]

Dear Gaye I am glad you got week one out of the way without any problems apart from those pesky dex!! The foot massage sounds wonderful too a bit of pampering is just the thing when you feel lousy . I hope they get that back pain sorted very soon and you can dance the night away or run the marathon if you want !! love Bridget x

Dear Gaye how beautifully put Thankyou for sharing with us To a certain extent I am still in denial for a lot of the time too . It was over a year before I even looked at this site In the beginning , like you , I coped by dealing with it on a daily basis and trying to organise everyone else in the family ,as usual. As time has gone on I have…[Read more]