Hi Jenny

Sounds good your Dad is moving along nicely.

Its a slow proccess all this treatment, good luck for your dad to pick up his appetite.

Take Care and Love to you all

Tom xx

Hi Wendy

Sorry to hear you have to join us 🙁
But its a great Gang on here and the under 50's I am in both and am 55 🙂

Have you sent your Email to Phil :::: phil.kelly2@btinternet.com

Or Scotty :::: c.scott@added-value.com,

And you will soon be in the Under 50's

Any Q's just ask

Tom "Onwards and Upwards"…

Hello Ron

welcome to the site I know you will find all the help and advise you need here, I did. I was diagnosed two years ago and one of the first treatments I had was seven units of blood as I was so anaemic this was partly due to the fact my kidneys had failed I continued to have two units every month for at least six months it really helped…[Read more]

Thanks Andy,

One reassured member.:-)

I realised that it was possibly/probably not this myeloma forum but the admin and Andy bits made me suspicious.

Dai.

Thankyou all for your good wishes they are very much appreciated. Sharon I can see why it was better for you to stay in as seven year olds cant get their heads around mummy not being able to do what she normally does and I think its hard for us mums to switch off too mums . I hope you get some relief soon and I can understand how frustrated you…[Read more]

Hi Ron thankyou for your kind words.How is Puline now? I hope she is feeling better please give her my best wishes love Bridget x

Hi Jean congratultions your new grandaughter is so beautiful and Madelyn is a lovely name . I hope you get to see her very soon I didnt really understand how special the relationship with your grandchildren is until the eldest was born and I was just as excited when the other 3 arrived . love Bridget x

Hello Jean
A new grandaughter how wonderful congratulations

Love Jo 😀

Hello Bridget

So glad to heard they have arrenged your RT treastment so quickly it must be so awful for you to be constantly in pain (all of you ) it must be much easier to cope without it, its a pity you cannot stay at Uch rather than travelling but I expect you may feel more confortable at home. fingers crossed for the revlimid I am sure you…[Read more]

Hello Michelle

hope mum is ok with the infusion I have had pamidrinate for the last eighteen months once a month it made my bones ache at first but after a while I have felt no effects at all I have mine over an hour and a half once a month hope your mum keeps well
Love JO:-D

Dear Gill now you have given me a massive fit of the giggles at the thought of your poor dog waddling back in !!Those evil Wills have a lot to answer for !!The real test for me will be tomorrow when my grandson is here as we normally cook lots of very fattenig goodies it will be a miracle if I can stop myself eating them , but not my fault if Will…[Read more]

Hi Lorraine blimey I will never moan about how long it takes for our benefits to go through again after reading your post Thank goodness you were granted it at the higher rate. Is the form more specific do you think ? Here the DLA questions stick to a limited criteria and dont always allow for illnesses that dont fit them My daughter has cystic…[Read more]

Dear Gaye and Sharon thankyou for putting my mind at rest Gaye I will have everything crossed for you to get your rt very soon . I was lucky in that I had a recent mri for them to go on which speeded things up Mind you I have always found UCH to be excellent at organising vital treatment It occured to me tonight that I am prepared to put up with…[Read more]

Hi I got one too and also assumed it was a site I joined ages ago .I havent responded nor will I Blooming nuisance why cant these people get a life!! Michelle I do hope your sons problem gets sorted very soon it must be so stressful for all of you love Bridget x

I agree Michelle, that's why I have posted it here… so that anyone who receives anything similar can avoid it until proven safe… although I imagine it is bogus.

Bogus emails are bad at anytime… but targeting a forum such as this?

Dai.

This is the email I received from admin at M UK. including the message from my mail blocker.

The following is an e-mail sent to you by an administrator of "Multiple
Myeloma Forums". If this message is spam, contains abusive or other
comments you find offensive please contact the webmaster of the board at
the following…[Read more]

Hi Michelle

I am on Zometa infusion every four weeks to help my iccle bones 🙂

Side effects? dont hink I have any Lol, but did feel like flu symptoms at the start but now nothing;-)

Honest all through this i wonder if i am getting real stuff as i seem to sail through it all:-D

(hope i aint speaking too soon lol)

My next one is…[Read more]

I wish you all the best for the trial, both of you.

You are an inspiration Gaye, whether you like it or not (but I suspect that you like it really 😉 )

You have been a rock for me since I joined this gang and I truly appreciate your selflessness in sharing, guiding and generally bucking up.

Whenever we are feeling :'-( you always offer…[Read more]

They say that Teignmouth is beautiful in the spring… why not book a few days – make a date and work towards it, as Tom says, one day at a time.

Do whatever feels right for you Roz – perhaps it is time for you to be self-centered, even selfish… in terms of what you want, where you go and what you do. Its allowed you know. 🙂

Dai.