MeikeWhite

  • DaiCro replied to the topic First report post SCT in the forum General 15 years, 7 months ago

    Excellent news David. It sounds like you are good to go… wherever you like… within reason.:-)

    As the great, late Woody Guthrie used to say… 'Take it easy but take it'. 😎

    Dai.

  • brocho replied to the topic Radiotherapy in the forum Treatment 15 years, 7 months ago

    Dear Min thankyou I must admit to being a little nervous for no good reason . I think your point about the tumour throwing out myeloma cells is spot on especially as they areon our spine. Unfortunately I will have to travel to London each day , although its only 30 miles it can be a pain on the motorway, but I would rather come home each day than…[Read more]

  • Hi Michelle I am surprised this has not been offered to your mum before given that she has a lot of bone damage .I was on Parmidronate for over 3 years and it certainly helped with bone pain , I always knew when it was due The infusion is ok just means spending a couple of hours on a drip once a month , sometimes it can be a little painful for…[Read more]

  • brocho started the topic Radiotherapy. in the forum Treatment 15 years, 7 months ago

    Well I am seriously inpressed by the speed which the lovely Prof Tobias at UCH has arranged my radiotherapy . I met the prof yesterday and he agreed rt was needed quickly and told me he expected it to be in 2 or 3 weeks So imagine my surprise when they phoned today to tell me the planning appointment is on Monday and its likely to start on…[Read more]

  • brocho replied to the topic WORRIED SISTER in the forum Newcomers 15 years, 7 months ago

    Hi sorry you are having to go through this its an awful time but things do get easier as you all learn to cope with myeloma and its treatment. There were times in the beginning when I refused to give in to tiredness etc and pushed myself to the limit I was trying to hang on to old life , as perhaps your brother is too , but eventually you learn to…[Read more]

  • brocho replied to the topic Pomalidomide in the forum General 15 years, 7 months ago

    Hi Keith I was on velcade recently and my platelets did drop quite significantly Its monitored via the pre-chemo blood test and if its too low you will need to be given platelets through your line It is normally given on the ward with dex on the day of treatment and the day after . I was recently changed to Zometa after having Prmidronate for over…[Read more]

  • Sorry Gaye but now you have set me off giggling too !! The thought of prancing sylph like through the fields ( in Luton ???) is just too much to bear I will give up all thoughts of Wills as he is so fickle as to marry a young , beautiful ,rich girl ( cant think what he sees in her ) I now have a new plan to feed Jeff all the goodies then I can…[Read more]

  • brocho replied to the topic Pomalidomide in the forum General 15 years, 7 months ago

    Hi Tina so sorry to hear Patrick has had to come off Bendamustine .Heres hoping Pomalidomide does the trick for him and Gaye too , they are the trailblazers Love to you both and heres hoping this will be a good year for you both Bridget x

  • tom replied to the topic I'M HOME in the forum Treatment 15 years, 7 months ago

    And a Warm Welcome Home from icle ole Me Shirl, and Trish you know you are a "Star" 😎

    Is anybody gonna post a photo of one of the Famous hats or has one been posted and i missed it:-S

    Well Done again you two

    Tom xxx

  • tom replied to the topic Yesterday Michaels funeral in the forum General 15 years, 7 months ago

    Hi Roz

    One day at a time is the only way to do it.

    And you know We think of you everyday 😀 and wish you well

    Another one of Tom's "Cyberhugs" on its way WWwwwwOOoooooSSSsssHHHHhh there you are you got it

    Love and Hugs

    Tom xxx

  • Hi Amelie

    Sorry to hear about Johns flu and hope he soon gets over it, as they all say the Dr is the best one to contact and in the mean time drink plenty of water.

    Love Tom xx

  • tom replied to the topic First report post SCT in the forum General 15 years, 7 months ago

    Way To Go David 😉

    And long may it continue to be An "Onward and Upwards" way (not sure who says it though 😎 )

    As for the Cycling well its too much for me give me the Car or walking anyday 😛 i seem to be too wobly on a bike these days :-/

    Enjoy it all as it comes along and most of all have fun 😎

    Tom

  • Hi Min thats brilliant those devices work really well for a lot of people My trouble is that apart from when I had pneumonia a couple of times I still enjoy smoking!! Having said that Jeff gave up last year and surprised even himself so I am sure there will be a day when I say enough is enough as I do often think about it . The thought of…[Read more]

  • brocho replied to the topic I'M HOME in the forum Treatment 15 years, 7 months ago

    Hi Shirley I am so glad you are home it feels great after a long spell in hospital Just take it easy and it wont be too long before you are able to dance the night away If you fancy one of my hats just e-mail me your address on bridget.rochfort@btinternet.com. I never had a wig , because I am so untidy it would have been wonky more often than…[Read more]

  • Dear Enormous Nettie (bet you arent really!!) If I had to endure snow and cold for as long as you have this year I would be eating even more so I think you definitely have the best reason . I am sure our Wills will be back at the first sign of the spring ( suitably tanned and trim of course!!) I am afraid to take the covers off the mirrors and…[Read more]

  • Hi Min those pesky chocolates are a pain when they sit there tempting us , so its really not our fault Like you I havent had to worry about dieting for a long while because I am a smoker, still !! Thats a chllenge for another day for me but your will power is impressive . I suppose half the country is feeling stuffed to the gills too so I am going…[Read more]

  • brocho replied to the topic First report post SCT in the forum General 15 years, 7 months ago

    Hi David great news its always good to hear things have worked out well There will be no stopping you now —Tour de France??? Dont overdo it though rest when your body tells you to love Bridget x

  • Has anybody seen my willpower please ? Last seen about 3 months ago Description —- little grumpy thing that stops me eating chocolate biscuits , ice cream , bacon sarnies and roast potatoes As I am now the size of a mother whale and I cant even blame dex I am desperate to find it !! I tried looking under the sofa cushions but all I found was a…[Read more]

  • brocho replied to the topic Disability in the forum Off topic 15 years, 7 months ago

    Hi Sean sorry to hear you have to have more treatment so soon after your sct. I agree information gathering is probably the best step to take I would find out who your local Macmillan Benefits Advisor is through the hospital They are brilliant at negotiating all the forms etc and would be able to advise you about registering as disabled It really…[Read more]

  • tom replied to the topic hair already? in the forum General 15 years, 7 months ago

    Well Done David 😀

    Mine was an age before it came back, but never ever missed the shaving bit just the rest of my body hair and eyebrowse (lord did i look strange lol)

    Happy Growth 😀

    Tom

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