Hi Ron sorry your wife is feeling rotten ,once the treatment starts to kick in she will feel better Anaemia is very common in myeloma, especially when first diagnosed.I didnt have any negative reaction to the transfusions and it certainly made me feel better. Its all so confusing in the beginning so you have come to the right place to ask…[Read more]

Roz,

Be guided by your feelings… as long as they are not those of guilt and obligation. You owe us nothing to feel guilty about and there is no obligation on you to keep on visiting this forum… especially if it causes you pain or hurt in any way.

But remember this dear Roz. We never knew Michael… we knew nothing about him whatsoever,…[Read more]

Happy New Year Shirl

And my are you an "Onwards and Upwards" Girl or what 😀

If thats not the way to do it then i dont know what is, way to go girl 🙂

Keep up the happy posts

Tom xx

Dear Roz

I and Elaine will be thinking of you on Friday:-(

And you say and post when you can and when you want and with whatever you need to say, you are part of our extended family

So when your ready so are we.

Love and Hugs to you all xxxx

Tom xx

Hi Shirley great to hear you are doing so well not long now till you are home . I know whatyou mean about losing curls though I was upset when mine went last year and when it came back with no curls!! But life would be very boring if our hair stayed the same !! love Bridget x

Dear Roz as David has said you are more than welcome here, you are one of us after all , you have been through every step with Michael. I am sure your experience will be invaluable if you feel able to continue sharing . Celebrate Michaels life and the love you shared on Friday and remember when things get tough he is always with you .love Bridget x

My pleasure was to stroke my guitars, even though I needed Janet to pick one up for me and place it in my lap. I was too weak to play but it felt good to hold it.

My SCT was in March, I was stroking/holding my guitars my the end of April. I first successfully picked one up and played it at the end of May.

And I haven't stopped since. :-)…[Read more]

Your poem speaks volumes Roz. When is the service? We will all be thinking of you.

Dai. xxx

So Moving Roz, think it is I that needs the "Cyber Hug"

Love and hugs to you all

Tom xxx

Happy new year David and to all the friends in this group may it be a happy and healthy one for you and all your loved ones
Jo:-)

Hi Gill as you know I am also anti-Dex it is a horrible drug ,by far the worst !!So I am glad you have your Stephen back and long may it last!! I am enjoying not being on dex too ,now I just want my body to return to its normal shape Hope you had a good xmas and heres to a very happy and healthy new year love Bridget x

Hi David I know exactly what you mean My tractor moment was doing the washing believe it or not !!It gave me so much pleasure to do an ordinary task myself and the I knew I was home love Bridget x

Dear Roz the poem is so beautiful and moved me to tears too You will do Michael proud My thoughts are with you and Rachel and Lauren love Bridget x

Hi John I would like to say welcome too.
I have just joined the site and everyone is extremely helpful and supportive. I too hope you keep those levels low for years.

Kay x

Hi Jonny

So sorry you have come across one Consultant that has no Bedside charsma (so to speak)
But like all us mere Mortals you either have it or you aint and your man bless him aint got it.

Mine is great I even chat to him in the middle of the shpping centre when he is out shopping 😀

As for me if mine was abrupt or rude he would…[Read more]

Hi John

A warm welcome to this warmhearted group,sorry you had to join, but you will get some great support on here when you need it, and at strange times in the night (Dex)

Lets hope the two monthly watch lasts for years 🙂

Tom "Onwards and Upwards"

Happy New Year David, and all my On line Friends 😀

Hope this year is better than last year, and any treatment you/I might need cause little distress nor side effects 🙂

Tom

Hi Roz

It sounds like you are doing Ok so far with the difficult situation.

Did I get an Email from you? (i think i did)

Good Luck for the cremation.

Love and Hugs to you

Tom xxxx

Well I also completed the online form, as i was am one of those that would need it.

Happy New Year to you too David and to all who grace this board. I truly hope that this next year is much better for you than the last, however good that was… or wasn't.:-)

Much love.

Dai.