Happry New Year David and all of you great people whom I count as friends May 2011 be a good one for us all love Bridget x

Happy new year, here is looking towards a good 2011.

Hi Gavin I missed your post originally but I see you have made your decision now Good luck with the chemo and trial In my experience the care you recieve when taking part in trials is excellentAs for your age being a factor David( Perkymite) has just had his sct at 68 and is doing very well so theres no reason to think age alone would mean…[Read more]

Hi Georgina I met Prof Tobias last year and was due to have radiotherapy then , but as I was taking part in the Myeloma X Trial and radiotherapy would have inhibited sem cell collection, it was postponed. Jane the specialist nurse is brilliant and I could have seen the Prof the day before xmas eve, I chose to wait as I had just come out of…[Read more]

Hi Scott
I just wanted to say hello too. I started as a smoulderer in April 2009. My para proteins started at 30 then fluctuated between 25 and 29 until September this year, when they suddenly went up to 32 and my haemaglobin went from 12 to 10. They have decided to start treatment in the new year and hopefully I will be on the Myeloma XI trial.…[Read more]

Hi Sarah
Thank you so much for your very positive message. I am very much a 'one day at a time' person, but I do have to be reminded frequently. I also do not like to ask for help and I have the habit of 'cutting off my nose to spite my face' especially with my partner who I can push away. I have such lovely friends and I will make sure I take…[Read more]

Hello David

We went to Ibiza last sept and insured throught a company called MIA throught the agent J D Travel its a company that specialises in insurance for very ill people even if they dont feel very ill just the related illness that people have.We went throught the terms and conditions and they seemed very fair you must hold an EHIC card…[Read more]

Hi Roz,Rachael and Lauren

Thinking of you all Today, and hope it goes as smooth as it can.

And not forgeting you Roz you must look after yourself in the comming days.

Love and Hugs to you all

Tom xxxx

Hi Keith
Sorry to hear bout your pain 🙁

Its a bit of a bugger really, me am not sure what bone pain is? do I have it? have I had it?or will I get it?

Me I think I have had pain most of my adult life what with pulling back bruised ribs pulled muscle's, and they tell me it Arthur-Rightus he he

Good Luck Keith 🙂

Tom

Hi Sarah good luck with your sct and I hope you get a very long remission too .I am also under UCH London and they are brilliant especially Dr Yong who is a very formidable woman but boy does she get things done !!love Bridget x

Hello Bridget

So glad you are feeling better never pleasant in hospital your heart must have sunk when they said the velcade didnt work but you need to get rid rid of that tumer first and be rid of pain then on to the next step Revlimid seems successful for most people but I am afraid it will probably be with DEX again but if it works which it…[Read more]

Thankyou so much Vicky and Georgina , it really helps a lot to have the support of my on-line friends. I have an appointment to meet Prof Tobias on the 12th Jan to discuss radiotherapy , at UCH, hopefully it wont be too long after that as it is very painful, Georgina please give your mum my best wishesand Vicky I hope you are taking it easy and…[Read more]

Dear Roz I am so glad you you and your daughter and grandaughter have each other , it will help each of you get tjrogh the next few days love Bridget x

Morning Gina and your Mum

Yes thank you had a great Poitive Christmas this year as last one was a tad low key as i had just had my SCT start of December.

And it worked so this year the Boat nay Boat's have been pushed out, av ate and drunk for England Lol,Lord knows what my Consultant will say when i get on the scales in Jan lol.

Hope…[Read more]

Roz i am so sorry to hear about Michael.
My thoughts are with you, i hope you are ok xxxx

I totally agree Tom. Hope you had a lovely positive christmas. here is to many more to come
Gina x

Hi Mari and Steve
Wonderfull News for you all, and it is the best Present any of us can have.

Last year I was not on top form what with having my SCT 3rd December so xmas for us was low key:-( BUT this year I am on top form and just to prove it I am posting two photo's one of last year and one this year to prove that the SCT works a treat 8-)…[Read more]

Dear Mari what winderful news I am so pleased for you both Heres to a very good new year love Bridget x

Hi Nettie thankyou I have really enjoyed this christmas , my eldest grandsons face on christmas morning is so awestruck it makes it all worthwhile!! How is Chloe doing, did you get to see them during the holiday?( If I have got her name wrong please forgive me) We still have quite a bit of snow and its very cold ,are you snowed under? It must…[Read more]

Thankyou Eva I am not really worrying about it at the minute , I tend to take things as they come after an initial panic As you say there are new combinations coming up all the time .I hope you had a good christmas , my children and grandchildren have just gone home and the quiet is lovely love Bridget x