Hi John,

I'm off out tonight to play at a local session – the first time in twenty odd months; feeling strangely nervous. :-S

Dai.

Hi John,

As a fellow muso I have been wondering about the logistics of putting on a concert – by mm'ers, carers, family and friends etc. as a promo/fundraiser. Any thoughts?

Dai.

Hi Nicki,

The Sam you know is still there, all this snapping and snarling is just a by-product of feeling so down and helpless, combined with his not really wanting you to see him like this.

Janet caught a cold just after my stem cells were returned and so I didn't get to see her (or anyone else for that matter) for twelve days. I missed…[Read more]

Hi Nicki both of you must be exhausted and no wonder you both feel down but it wont be long before Sam is on the up again and you can get some normality back .Do you have a close friend or family to spend some time with while Sam is in hospital , it would be god for you to have someone give you some tlc Sorry I cant be any help about the painful…[Read more]

Hi Fran good luck for next week However difficult it is , and you may sail throgh without any problems, it is definitely worth it ! Your positive attitude shines out so I am sure that strength will get you through it Be careful not to overrdo tings once you get home , taking the time to recover is really important and it isnt that long in the…[Read more]

Hi Roberta, glad you made it – I hope we don't lose any friends in the move across to beta.

Dai.

Well I've done my bit. Didn't really want to as I find the whole exercise of relying on benefits both demeaning and humiliating but needs must (claiming and campaigning). I hope this survey helps show just how much out of tune the benefits system is in relation to mm patients.:-0

Dai.

Hi Fiona I just want to wish your mum good luck for next week and life will seem much better without that awful pain The wedding is a wonderful thing to look forward to for all of you , your mum must be very proud of her daughters David is so right about the emotional see-saw that goes with treatment and on top of that chemo leaves you so tired ,…[Read more]

Hi Lorraine glad you made it and good to see you on fb too love Bridget x

Hi John the GCSF injections are growth hormones , the same ones used to encourage stem cell prodution before harvesting As for Bendamustine I am afraid I dont know another name for it , in fact I dont know a lot about it at all really. Tina has replied to your post , she and Patrick are much more knowledgeable than I am and I an sure she will be…[Read more]

Hi Mike yes I think dex is the culprit but I think having velcade as well has made it worse Bridget

Good one John this made me laugh out loud a good start to the day thankyou Shame I am useless at remembering jokes but I will rack my brains Hope you are having a good day love Bridget

Hi Jackie no wonder you are finding it difficult anybody would Its hard to give you an answer because myeloma is such an individual illness but a lot of us have ongoing pain due to bone damage .In my case I lost 2 vertebrae completely and had to have my spine stabilised with plates and rods , I have bone damage everywhere except my left arm…[Read more]

Hi John what a shame Cecilia is having problems with her blood counts, fingers crossed she will be able to have her next dose Often a short break does the trick .I had the same problem last year and I had GSCF injections in between doses which brought my bloods back up to a level where I could carry on with the treatment Its always good to hear…[Read more]

Hi Fiona I can understand how difficult it must be for you if your mum and dad dont want to talk about her myeloma, thats what this site is so good at , supporting you and your mum and dad if they want it so carry on posting please . Sometimes it takes a long while for the reality of living with an illness to become something manageable ,so give…[Read more]

Hi Kevin you have had a bad year lets hope its the last of it constipation is awful some one wrote on this site a few weeks ago about a home enima called Microalax have you tried that
Keep Well Jo

Hi Kevin
am well pleased you have escaped:-) and as they say easy does it 😀
Take care and hope its the last time you have to go in for many a year

Tom

Hi John
A warm welcome to the group, and hope you enjoy yourself in here:-D

And Joe, photo looks great 🙂

Tom xx