tom replied to the topic Our Journey in the forum Newcomers 11 years, 8 months ago
Wow Wow And Bloomin WOW
What a venture you and yours have and are going through and I raise my hat to you all (I do wear one he he)
Your Story is inspirational 😎 and your strenth will carry you through the MM Journy Good Luck and Love the Post
Love Tom Onwards and Upwards xx
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 8 months ago
Hi Ann and pete
Well I wouldn't worry too much about the weight loss honest it comes back with a vengance lol, I went down to less than 70k and my normal wieght is 95 k so it was a big loss and trust me nip over and see my photo's on Face Book its well Back Lol.
Love Tom Onwards and Upwards xxx
eve replied to the topic Bone Marrow Biopsy in the forum General 11 years, 8 months ago
Hi Trish
Tell him not to rub site of injection,otherwise he will be full of bruises.
Slim had to inject himself for 8 months to prevent clots. Good luck with the Velcade. Eve
tom replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 8 months ago
Hi Jackie
I am so sorry to hear that Norman has passed away,and am sorry Norman left the site early as am sure we all could have helped you all through this difficult time you have and are going through.
Please take it or day at a time and we are all here for you.
Love and hugs Tom xxx
tom replied to the topic Sam has relapsed. in the forum General 11 years, 8 months ago
Thanks Nicki 😀 and a laugh is good for us all at anytime.com 😎
Enjoy the wet week end 🙂
Love Tom xxx
tom replied to the topic Elephant In The Room in the forum End of Life and Grief 11 years, 8 months ago
Hi all
Well I class myself as one of the lucky ones and yes i dont fear death but am not ready for it, do we as a Family talk about it YES we do but more of a FUN(if you can make it sound funny?) way so we can lesson the tension that having a terminal illness throws upon you.
I went to a Support group a fair few times but unfortunately we lost…[Read more]
tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hi Jean and Frank
Well aint your Hubby doing well 😀 am sure (but my mind has gone awo;?) Frank is doing better than I did at same time ? you will have to ask Elaine Jean am sure she will remember Lol. but all through it i was up showered and shaved (its all you have to do to be honest) and dressed it made me feel better when i fell asleep lol.…[Read more]
tom replied to the topic Tenterhooks in the forum General 11 years, 8 months ago
Aww Dai
Bless its hard aint it?
But I will tell you what I have done over the years including during and after SCT (but I dont advise anyone else to do it, worked for me 🙂 )
All my life I have took the kids when they are ill and cuddled them saying "Come on Give us a cuddle and Dad will take your poorly away" Now that worked for our…[Read more]
tom replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 8 months ago
Hi Sue and girls
I am pleased you and the girls have decided where to Scatter Michael's ashes, and Scarborough is a lovely place.
Will be thinking of you and the Girls on your special day.
Love and Hugs to you all
Tom xxxx
DaiCro started the topic Tenterhooks. in the forum General 11 years, 8 months ago
Janet had our Grandchildren all day on Tuesday due to a broken boiler at their school. Edith (nearly 5) had the sniffles and a cough and now so does Janet… and here I am neutropenic but finding it hard to avoid Janet. 🙁
She had them again this afternoon (both times at their house) and Alfie (nearly 7) got quite upset that he couldn't see…[Read more]
DaiCro replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Like Helen I did not want to see anyone (except Janet) during my SCT enforced stay… well I got my wish and it included Janet, who was there for the SC return (all 14 bags) but then came down with a nasty cold and recovered just in time to take me home. I was alone but not lonely as I invented my SCT Olympic games and kept in touch with all my…[Read more]
BADGER replied to the topic Kidney question plus SCT question in the forum Newcomers 11 years, 8 months ago
Hello Rebecca
I was diagnosed in jan 2009 with real failure and MM my kidneys were at about 20% and still are, managed to avoid dialysis but it always hangs over me I chose not to have an sct as I did not want to risk knocking my kidneys out altogether with the heavy chemo needed for the stem cell I got 3.6months remission from CDT and am now…[Read more]
DaiCro started the topic Elephant In The Room. in the forum End of Life and Grief 11 years, 8 months ago
The article below was written by Pat Killingsworth – a regular contributor to the American Myeloma Beacon. I read it and thought it worth sharing.
Although I know that some might find the article upsetting on the whole I feel that it is a subject worth discussing, or just accepting. Dai.
b]Pat's Place: It's Time To Stop Denying The…[Read more]
DaiCro replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 8 months ago
Scarborough is a beautiful sea-side town and because it meant something to your whole family I am sure that the weekend will be a bitter-sweet affair. Make sure all of you do get your pampering, preferably after your scattering of Michael's ashes. I have only ever visited Scarborough, never stayed but I have enjoyed several weeks at Whitby Folk…[Read more]
eve replied to the topic Kidney question plus SCT question in the forum Newcomers 11 years, 8 months ago
Hi Rebecca
You could have a look at back answers on this site,if you put in kidney in top right hand corner it should come up with something ,I think a fw people will reply to you who have had the same problem
My husbands kidneys regenerated,but he was still given a smaller dose of chemo for SCT. Enough to do the job,he does have to drink…[Read more]
eve replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise
I could tell you not to worry,but you will.its everything that everyone else has been through,make sure you take old clothes in,you just might want to through them away.Cold milk went down well with Slim,do not worry if dad does not eat,no use eating then being sick,things just do not have the same taste. They say a piece of pineapple…[Read more]
eve replied to the topic Dad and his secret in the forum Newcomers 11 years, 8 months ago
Hi Bev
Sorry to hear about you situation ,you do not say how old your father is or how old you are??.
It must be hard on you,but if your dad chooses not to tell you,there is no way you can find out!!!!
You could approach the situation by saying you have been on the Myeloma UK site,because some one you know has Myeloma and you found it…[Read more]
DaiCro replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 8 months ago
Thanks Tom… and you stay fit and relatively healthy for a long, long time to come my friend… believe me it does us good to know that at least one of the old guard is beating this bloody disease back down the field.
You and Elaine have both taken a battering these last few years and you deserve every good thing and every bit of luck that…[Read more]
DaiCro replied to the topic Last Chance Saloon in the forum Treatment 11 years, 8 months ago
Hi Keith,
Melphan I know of course, most of us remember it fondly 😉 but Prodeserone is only vaguely familiar, I know I have never encountered it… is it a type of Steroid/Dex's big sister?
With being Bence Jones I deal in Kappa Light Chains and I'm not very good at equating them with PPs but I do understand that 84 is quite high… and…[Read more]
eve replied to the topic Curly Hair after SCT. in the forum Side-effects 11 years, 8 months ago
Hi Babs
Yep my husband has lovely locks plus from grey he went brown,I refuse to cut it
,in case they disappear ,he had straight hair before,I think it does go back to the way it was.:-S Eve