Hi Rebecca

Are you on dialysis ?..,

I can only tell you about my husband he was admitted with AKF,as he progressed his kidneys regenerated,never went on dialysis!!!!!when it came to his SCT they took on board the knowledge of his kidneys,and he had a lower dose of chemo,but enough to do the job.

There are people on here who have had SCT…[Read more]

Hi Ann and pete
I have never been on "Morphine" but i know folk who have and still are 🙁 and the morphine itself gives problems but its needed, Pete will get better soon use Ice cream and Yogurt (i coudn't do the latter 🙁 ) it will soon get better 😎

Jean and Frank

Well I know how Frank feels re the food 🙁 I also stuggled to eat…[Read more]

Hey Ted
My you are avin a two and fro arn't you :-/
As for the chest problem I think all us MM folk have that I do ?:-/
I wonder what they mea about "The Immune system" being effected?? are they saying that us MM'ers cant have an operation as we might have a comprimised Immune system??
Dont let them shrug you off ted get in and ask away…[Read more]

Hi Dan

Well you are doing a great Job for such a Young man and am sure evry one is proud of the way you cope, but as others have said ask for help and use it you need space and time away from all of this MM stuff every now and then.

Such a lot to do and sitting exams also wow I am proud of you as well 😎 but ask and take the help as much…[Read more]

Hi Dai

Am pleased to read your Temp is dropping, I think its a MM thing ?? I get hot high ish temp every now and again but feel well in myself 😀 and am on Nothing and all bloods are good he tells me Lol.

Stay fit and be Cool Dai 😎
Tom Onwards and upwards x

Hey Jean

Frank sounds like me (but not the footy lol) I never used to ask I just let them get on with it 🙂 if My Mans Happy am Happy

Let frank sleep its going good Honest.

Love to you both

Tom an Elaine Onwards and Upwards xxx

Brilliant news Jean

keep us posted with Franks progress
Love and a Hug
From Jo x

Hi Tom & Eve,

I took 2 paracetamol yesterday afternoon once I had got down to 37.7 through drinking for Wales and my temperature was down to normal within 3 hours. I was soaked through with sweat so the paracetamol had done its job. It has remained stable and I am feeling much better. Still sweating buckets but it is DexDay tm so nothing new…[Read more]

Hi Dan,

You need to speak to a MacMillan nurse regarding putting in a claim for DLA (Disability Living Allowance). DLA is separate to any earnings, pensions or savings etc., and your Dad will most certainly qualify. He will also qualify for the mobility component as well, which means a new car (changed every three years) so if you haven't…[Read more]

Hi Daniel

You have been doing all this while sitting exams!!, Dan you are taking on to much do you intend to do uni???,you do have to gather you're family round and make desist ions ,I am surprised they let your dad out of hospital,without more surpport .

Although you dad is cheerful he must be worried, this problem is not going to go…[Read more]

Hi Jean

Do not worry about him not phoneing,he will feel all his energy has been zapped out of him,sounds if things are going as planned,Slim use to sleep,on waking he was so apologetic ,I arrived he slept then just as I was leaving he woke,get a good book,they still want you there when they wake up. Love Eve

Hi Helen and Garry

Your both welcome, the sickness and trots was with me for a couple of months post SCT so not too much of a problem as long as you drink plenty Garry ???????????????????????? it will work out .

Stay well not be long now ????

Tom Onwards and Upwards x

Hi Daniel

Yes you are going to need a lot of surpport ,you are a bit young to be taking all this and even with the best will in the world, it is to much,have you a social worker??? Are you claiming the maximin allowances?… If not see a mac millan nurse,if you ring them up they will visit at home,she should be able to help with forms,it…[Read more]

Hi Everybody

It is interesting how people differ when given. Zometa Slim started on it 2 years ago the same time he started treatment ,but now because we see consultant every. 2 months the Zometa is now given every 2 months,we were told as time goes by it is less effective . He has never had any flu symptoms, to make things easier we have…[Read more]

Hi Dai

Good Luck with this one 😀 and am plesed the net found you albeit Late :-S , I went on Zometa in 2010 after my 100 day BMB after Sct and had them for two years.

As for the Fatigue well I have sort of starting to put mine down::

1) being less active since diagnosis

2) Just plain old getting Older :-S Lol

Dai its Ok to…[Read more]

Hi John and Dai

John you have been on Zometa for a fair bit?, I was only on it for two years in 2010 after my SCT in 2009 and was told thats enough ?

Dai yes i had flu symptoms for a few of the sessions it soon went, But i also would keep an eye out for your temp as it has been a bit of a problem for you.

Hope your all Ok

Tom Onwards…[Read more]

Hi Jet Well done and good Luck 😀 and if you need something for your slide show to make people realy Laugh go on my Face book and nick some photos of me Lol.

All The best and am sure you will do a cracking job

Love Tom Onwards and Upwards xx

Hi All.

I had my first Zometa infusion yesterday and today I have had a borderline high temperature (38.20) which I have sort of brought under control (keeping at about 37.70 at the moment) with a couple of paracetamol. Being neutropenic I don't want to ring in unless it gets to 38.60 or above because City Hospital is nothing if not thorough…[Read more]

Thanks all,

I had Infusion 2 this afternoon, followed by a fix of Zometa… my first ever. My consultant said I had slipped through the net and that I should have been on Zometa for a year or so! Well there you go. 😀 :-0 Every 4 weeks from now on which will fit in with the Bendamustine treatment, so no extra journeys for the time being at…[Read more]

Hi Vicki and Colin
Am pleased you get a smile from my posts and that makes me Happy ????and it's just common old nuts am afraid ????

Love Tom Onwards and Upwards xx