hey no tracking am here :::::: tom.lappin.5

Aww I cant remember if i was cold and shivery? to be fair Jean but I do remember my room being cold all the time anyways 😀
But if Elaine (the young bride) woke me up for Football I would kill her (sorry Elaine xx lol) am sure you can tell I dont do footy 😛
Its started now Jean one day at a time dont worry too much just both Relax and let…[Read more]

Hi Sandie

Sorry your Mum is going through a rough time, I cant help on this one am afraid just wanted to send My Good Vibes.

Love Tom Onwards and upwards xx

Hi Eve
Yes you are correct and am sure you know i have heard the word NO many a time Lol
Yes and Pension people do give you more if you are ill and let them know.
6 til 2 is what i have done all my working life and prefer that shift more than the others 🙂

I will give it another think about it.

Many Thanks for all your Input's its been…[Read more]

Hi Dai

Baby steps is good if its working no need to rush it and cause more side effects?
As for you feeling Weak and Weary well I will be same on thursday but am putting it down to cold weather 🙁 roll on Spring 😎

Stay Steady

Love to you and janet

Tom Onwards and Upwards xx

Hi Helen and Garry

I was told that I should not have my dog and My Parrot (African Grey) and that was so as not to get in contact with the Poo from either 🙁 so Elaine took over cleaning Sam's Cage but in the end we gave him away to a lovely lady who says we can go and visit anytime we want (Both are well happy) still got dog cos Poo is…[Read more]

Hi Jean and Frank
Hope (am sure it will) SCT goes in nice and smooth 😀 dont forget when you see frank to mouthwash as much as he can.
Frank you will soon be dabbing with the soft loo rolls.

I was out on Day 16 go and beat that one Frank 🙂

Tom Onwards and Upwards x

Now Girls dont pick on the simple ones leave tom alone lol 😀
Eve My Friend you have a great sense of humour it brightens my bad days up to bloomin good uns 😀 and i am same see it say it I cant bite my tongue as it makes it bleed lol.

Jane trust me girl i have been called worse (aint i Eve Lol xx) its good to chat and for our sins Eve and…[Read more]

Hi Trish
The program was Saints and Scrounges I tend to have the TV on rather than the radio as I am deaf so need subtitles,I was not paying a great deal of attention I do not know what the lady claimed but she was showing dogs and they filmed her,she had said she could not walk more than 50 yards without pain,and her answer was she had dosed…[Read more]

Hi Tom
I just say it as I see it,and people should not ask questions if they do not want answers. I think coming from Liverpool is the reason people seem to be more blunt and take bad news and turn it into a lighter thing,it helps people to talk to you about it.
I do find my sense of humour does get me in to trouble down south,as I have aged,I…[Read more]

Hi Babs

Slim had a letter ages ago just a general letter from pensions office,he gets attendance allowance ,right in the middle of the letter it actually says you must inform them if you have a SCT or any other change. I am glad I looked through mail,what I do is quickly look at things,keep them,then when I have a pile if I am going to keep…[Read more]

I had my pre-Cycle 3 Mk 2 consult today and my bloods are down (except for my platelets which stay at 105) including my Neutrofils at 0.8 which means I am neutropenic… again. It seems that this will be the pattern while I am on Bendamustine but that's OK as long as I can continue.

The 20 day rest period between infusion 2 and the next…[Read more]

Hi Jane
Well you have met Eve now Tut Tut Tut your life will never be the same am pleased to tell you that young lady is that near the knuckle I have no skin on them and am on light Dutie's lol.
You add what you feel to end your posts.
Take Care and stay well

Love Tom Onwards and Upwards xxx

Hi Louise I have Lol real loud here as in one of my posts I asked your dad's name???:-S and just noticed the post is ::::Garry's SCT journey so I have now concluded your Dad's name is Garry 😛
Gosh am a silly billy lol xxx

Hi Louise

Well that smell differs with people My Eldest Son said it was a fish and chip smell and when he went home after the visit he phoned me and said he though the was still with me as he was in a Fish and Chip Shop lol.

Good Luck to your dad and remind him to mouth wash as often as he can

Tom Onwards and upwards xx

Hello Mango

arnie has also kicked in to me I also hate the moon face i am on the same regime as you about to start cycle 4 i just hope it works I was diagnosed in jan 2009 but was not well most of the year before
Good luck with the Velcade
Love Jo

Hi Jane

Welcome to the club, it's my husband with Myeloma and he is 2years down the line,nice to hear you have a sense of humour,I think it will hold you in good stead as your treatment progresses.

I have a sense of humour,sometimes near the mark,but I think if you did not laugh about something you would end up crying,as you get to know…[Read more]

Hi Jane
Sorry you are having a "Downer" you will have a few of those am sure :-S I do and i find (even as a mere male) that its better to cry in the shower :-0 , Yes i cry and yes i do it in shower its good for me so it might be good for you??
Its a rough rough road you are going down I have done that road and had a few bumpy bits but it has…[Read more]

Hi Sue

I know a number of people who are at different stages of mourning,this also includes my daughter and myself,for my first grandchild Matty who was 16.

There is no right or wrong way,just take it a day at a time,you will go through every emotion,but in the end you have to do it your way .No one can really help you,Ruth and I find…[Read more]