eve replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hi Tom
Well I think you should try again,and if you are refused appeal,you are supposed to fill the form in and put you worse day down!!!
Tom what can they only NO so you have nothing to loose,all this money you are paying for a pension you might not see.as for the small private pension,if you explain the circumstances and the fact you will…[Read more]
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 9 months ago
Hi Ann and Pete
Awww Pete you are having it a bit rough I hope you soon turn the corner and feel better, it wont be long now am sure keep the fluids flowing and I asked to have the drip put back in when i was too ill to drink/eat at least i was getting something in and just ate Jelly and ice cream for days.
As you say Bloods are looking Good so…[Read more]
tom replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hi Sarah
No I go on now and again and Twitter lol, but most of my posts are on Face Book 🙂
Yes Sarah I looked at it in 2009 just after I had my SCT Done and was still going to see Consultant every week and being segregated in a room of my own, had some one help me fill it all in and got nowt 🙁 so av given up the ghost re claiming it as to…[Read more]
tom replied to the topic Sam has relapsed. in the forum General 11 years, 9 months ago
Morning Nicki and Sam
Yes we had same at ours when I was Dexed hoover out and doing it at strange times of the day, but to be fair i had days when I came off the dex and had to do the living/dinning room in two sittings lol, I was just too shattered to be pushing the darn hoover he he.
You could tell your workmates and Sam can make extra money…[Read more]
tom replied to the topic 1st relaspe in the forum Newcomers 11 years, 9 months ago
Hi Paul
Sorry to hear "Arnie" Kicked the doors in and moved in ? but am sure he will be kicked out again, Hey I remember that MoonFace it aint a good look is it ha ha but it soon goes take it from me.
I am in remission and Drug Free and I hope you are sonn the same.
Stay Well and Good Luck
Tom Onwards and Upwards
eve replied to the topic Last Chance Saloon in the forum Treatment 11 years, 9 months ago
Hi Keith
Well they are working hard on you,so at this present hospital seems the place for you,how is your wife managing with all this,she must be very worried about you.??
Once they find the infection,they should be able to treat it,as for going commando style, what was the nurse doing ,I do not think that's the answer Keith,I no Slim…[Read more]
eve replied to the topic Bed Sore in the forum Related conditions 11 years, 9 months ago
Hi Maureen
How are things going,Ian must be feeling low,if he is anything like my husband he will not be voicing his fears,because he will be worried about you,plus the Dex confuse s them,when Slim was like that for some reason he got it into his head,that I wanted to stop coming,I was just getting so worn out, I would ring him in the…[Read more]
tom replied to the topic Last Chance Saloon in the forum Treatment 11 years, 9 months ago
Morning Kieth
Its no problem your posts help us all and for I am gratfull but still fingers crossed they get to the Bottom of your infection.
As for the Ice Baths well I for one would stay away from it Lol.
I remember one of our Grandkids haveing a fever and I took him to the Dr's and he told me not to mop him down with cold flannel or…[Read more]
eve replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 9 months ago
Hi Ann and Peter
He is having a hard time,when Slim was like that,the nurses said as long as he was on a drip and trying to get fluid down not to worry about food,I would suggest old clothiers that can be thrown away,it is an emotional time for them,as there not use to being so helpless .
It will soon be over,cold milk seemed to help…[Read more]
DaiCro replied to the topic Bad news in the forum Off topic 11 years, 9 months ago
Hi David,
After reading your post about your sneaky wife I got Janet at 11.59pm last night.
I blamed you. 😉
Dai.
DaiCro replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 9 months ago
Hi Sue,
I am so glad that the funeral went well… a time where you have to share your grieving with wider family and friends. But now it is your grief, yours and your daughters and inevitably and eventually yours alone.
I suppose relief is a genuine reaction, I am sure that Janet will feel relieved when I go… not of my going but of the…[Read more]
DaiCro replied to the topic Bendamustine Experiences in the forum Treatment 11 years, 9 months ago
Hi Terry,
The conditions caused by your Plasmacytomas sounds interesting but nothing I have ever heard of before on here. I think they are doing the right thing by keeping your treatment going while they try to sort out the other problems with RT and the like… because it doesn't sound as if those problems are being caused by the Bendamustine…[Read more]
tom replied to the topic Last Chance Saloon in the forum Treatment 11 years, 9 months ago
Hi Keith
I dont kn ow what yopu have/are going through my friend as i havn't been in that position I can just wish you luck and keep those prayers going for you.
You have the strenth in you you just need a bit of a break to get yourself stronger, lets hope next week brings some good news for you M8.
Tom Onwards and Upwards
BADGER replied to the topic Bad news in the forum Off topic 11 years, 9 months ago
Sneaky or what! so she can still surprise you it must be love
Love Jo
BADGER replied to the topic Good response to Velcade in the forum Treatment 11 years, 9 months ago
Hi Ozzy
thats really good news I am on velcade at the moment i hope i get the same effect i have just had 3 cycles just about to start the fourth
good luck for the rest of the treatments
Love Jo
BADGER replied to the topic New to this in the forum Newcomers 11 years, 9 months ago
hello Jane
welcome I know its not a place you would want to join but you will get so much help and support when I was first diagnosed in jan 2009 I was lost didnt know where to turn for help advice and support until i found this site marvellous:-) I hope it helps you too good luck with the treatment I had CDT and it gave me 3 1/2 years remission…[Read more]
tom replied to the topic New to this in the forum Newcomers 11 years, 9 months ago
Hey Jane you are allready settled in then Girl 🙂 thats good news, Moan graon and shout rant and rave in here its good for the soul Lol.
And Trust me your "wicked sense of humour" will do us all some good and help you on the road to remission.
Take Care and Catch you soon
Tom Onwards and upwards xx
tom replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Give over Helen I just might just might Blush ha ha.
Love Tom Onwards and Upwards xxx
tom replied to the topic Good-bye Michael in the forum End of Life and Grief 11 years, 9 months ago
Dear Sue
I am pleased it went well and Charlotte was very brave to get up and do that.
I am sending you all Cyber Hugs and I hope those hugs help you in some small way, Stay Strong and remember the Good times Prior to this MM.
Love and Hugs to you all
Tom Xxxx
tom replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hey Helen
You know its no problem we like you are here to help as and when its needed 😉
Am a big believer enjoy Today as we dont know what Tomorrow might not bring, and i was used to say that before MM bit my iccle ass (as if little lol)
If you or anyone one wants a Longer chat my Email is t.lappin1@ntlworld.com your all free to use it…[Read more]