Hi Keith

Hows you doing today? Hope your doing Ok

Tom Onwards and Upwards x

Well Done Ozzy thats the way to roll and long may it continue.8-)
Enjoy your Break am sure you all deserve it 😎

Tom Onwards and Upwards x

Hi Louise and you very young and fit Dad 😎

I had CTD and that worked for me in 2009 leading up to SCT in December 2009 and I sit here In remission and Drug Free 😀 and that proves all the bad stuff is worth it 😉
Unlike our Friend Dai I only had three Bags 😛 and was also fitted with the multi in the groin, am sure that way is better…[Read more]

Your welcome Ann and how is Pete today ? am sure his mouth is still not good but it will given time. am sure he wont feel like eating yet by now? that also will come back am pleased to say.

Love to you Both

Tom Onwards and Upwards xx

Hi Jean and Frank

Its a bugger when they tell you fibs I prefer the truth up front and straight, I might not like it but if its the truth there is nothing i can do about it.

I can tell you Jean not to worry but you will so al say worry but dont wast time worrying too much Frank will be OK 😀 .

Dai
It must be an MM thing as as and when…[Read more]

Hi Jane
A warm welcome from Iccle ole me, this place is a comfy warm and soothing place, pull up a chair and put some comfy slippers on as you are now on the long road to remission and i hope its a smooth one.

I am 57 and had my CTD in 2009 leading up to a SCT in December 2009 and am now in remission and drug free 😀
Ask away but dont…[Read more]

Lmao David its great to see Life just rolls on with a great Big Laugh well done and you two keep it up.
Ps Well Spotted Tina I also wondered what Lol (might have been Dex lol)

Tom Onwards and Upwards x

Hi Trish

Well tell Peter Good Luck from me please and I hope it runs a smooth course and is gentle on him.

Stay well Peter

Tom Onwards and Upwards x

Hi Jean,

After all Frank has had to put up with and his reluctance to go ahead with the SCT in the first place you can hardly deny him a rounded 'I told you so'!

As Tom said, we have a wonderful NHS as long as it's weekdays. My record with infections are always just before or during the week-end and I know that I'm in for a torrid time with…[Read more]

Hi Ann & Pete,

I'm really sorry that Pete has been caught up in one of the side-effects to such a degree… I know it's not much comfort but there have been plenty before you with similar problems but they all got past this stage and then had a relatively smooth passage for the rest of their SCT's… I hope it's the same for Pete.

I remember…[Read more]

Hi Louise,

It took 5 days on the harvester plus 2 injections of Plerixafor (sp) to get 2.1 M of Stem Cells which resulted in my having 14 (fourteen) bags of Stem Cells returned… I have been reliably informed that that was a worlds record. 😉 😎

I must say that while it was a lengthy process over 2 days it was not uncomfortable in any…[Read more]

Excellent news Ozzy, as David said that's a fair drop and puts you firmly in the zone. 😎

Best of luck with the 2nd SCT… have they given you a date yet?

Dai.

Hi Keith,

I was neutropenic for 10 days recently and I know that it's a bit of a bugger when you are fighting without much support from your body. My neuts came back up to 1.49 just in time to have my treatment this Tuesday with another planned for next Tuesday… as long as my neuts stay at 1.0 or more.

I do hope your BMB points to a way…[Read more]

Hi Maureen

I use to just draw the curtains and get on with it,I cannot tell you how many times I went in ai 8am and he had been ringing for a commode,I use to go out to the sluice room disinfect the commode help him,then took it out cleaned and disinfected it again,then a nurse would pop her head round and ask what he wanted half a hour…[Read more]

Hi Jane
Nice to hear from you,take it your under fifty to introduce your self on there,people might miss it,you might like to go to newcomers,people are more likely to see it.

Helps if you tell a bit about yourself as some actually meet in hospitals and might be of use to you if you are worried about anything. Eve

Hi Keith
You sound a bit down,let's not think about what the doctor said,lets just think I am going to jump the hurdle, if its any help to you when Slim was being taken to ITU a young doctor,said we're taking you to ITU I cannot promise you will not die,he had not even asked,luckly he cannot remember .

They do not know everything Keith,what…[Read more]

Aww bless, w know its going to happen but it's still hard, mouthwash I can tell you you can't use too much.
Pete will lose weight for some time due to not being able to eat, plenty of ice cream and ice pops did well for me during this time.

Love Tom Onwards and Upwards xxxx

Hi Dai

It's great when one can get the vein first time, we had one Mature Nurse who used to crack it every time but she told me it was because she used to work on a baby ward and some time she had to get one in on the head of the poor child.

And as for the cats whisker am sure we would all be happy with that if it went in first time ha ha,…[Read more]

Hi Vicki,Trish and of course Peter

Sorry it's a relapse situation but am sure the veil adze will kick it into touch.

Stay well and keep us posted

Love Tom Onwards and Upwards xxxx

Hi Helen

I thought something might be up,as no postings,I find I miss things if I do not look in daily

I am sorry,are you not tempted to start treatment while its low !!! The reason I ask this is the was an article about people who had CDT then Velcade having better remission time might not mean anything though.
It,s a strange place to be…[Read more]