Hi Jean and Frank

Well that's a blooming bugger, I have said many a time our NHS is the best (as long as its between Mon/Fri)
I bet you are both well pead off.
Stick with it and him upstairs ain't saying anything as he dunt know yet 😉 xxx

Love Tom Onwards and Upwards xxxx

Hi Mavis
Well am for that bit over 67 and am sure the big man will allow it haha.
Yes it is a bugger to be ill enough to claim it and to be fair I wouldn't want to be that ill.

Eve
Am sorry but if those daisies won't push themselves up they stay where they are lol (av never been a gardener) but am ok for a Onesie Party hehe .

Helen am…[Read more]

I'm glad that you two concur… a family argument might have made good drama but overall I'd rather settle for agreement. :-0

I'm sorry that the relapse was confirmed but the medics are on the ball with the Velcade starting right away. I seem to recall that the best results for Velcade occur in the first couple of Cycles… then it settles…[Read more]

Hi Megan

Thanks for your message, how is your husband doing now?

The timings you have given make more sense 🙂 Maybe we misunderstood mum?

It's reassuring to hear you say Phil's appetite wasn't hugely affected, dad will normally eat anything, but the CDT really put him off certain things and it changed sometimes daily what he could or…[Read more]

Just a quick update…..hope you dont mind mum 🙂

We went to see the Consulatant yesterday, and he confirmed the myeloma cells are active again, PP count was 18 so it is on the rise.

He was a bit cagey about giving exact results from Bone marrow biopsy, just said that they visually assess it as well as doing actual counts and he said they…[Read more]

Hi Tom,

My veins are a nightmare to find, you can see the nurses in the Day Case suddenly finding themselves very busy with other things when I am shown to a chair. 😀

There is a Chinese male nurse called Jeff who is 'bigged up' by the other nurses and he usually accepts the challenge and finds a way in… yesterday it was Liz, the first…[Read more]

Hi Everyone

Mavis you are allowed to be cantankerous when you are over 65 I cannot wait,I am practising now,what,s this about Helen which Helen is out of remission.????

When I said about chances of Tom not reaching 67 I was talking about betting odds,would you not call it a sure bet,but saying that 2 years ago when Slims Myeloma was in…[Read more]

Hi Jean And Frank,

I will not tell you not to worry,because you will,but if you are unsure of anything ask the nurses or if you think about something once you come home,ask on here,there are enough people on here,who have all gone down that path.

Remember Jean,after about six days,old clothes you can throw away,tell him not to get…[Read more]

Hi Tom

We have it in for shelted accommodation as we decided the same thing,Slim surprised me,as it was his surges ten ,we found the council did not want to know own you own property you do not get many points,so the more you have worked and looked after yourself the less you get, a friend suggested Sanctury Housing,they do not mind if you…[Read more]

Hi Jean and Frank

Well Done its here 😀 yep uts scary :-S its not a walk in the park BUT it is a Doable, Trust me i have done it yes i was scared but it had to be done 😛

Just get Frank to use the moth wash more often than it says on the bottle (I used two botlles in three days) and it worked for me little mouth problems after that not…[Read more]

Hi Babs
Yes it looks a minefield to try and get something. Trouble is I am fortunate enough to be fit (ish) but to be fair I am tired and get a wee bit weary at times? but hey ho Onwards and upwards.

As for using a trolly when shopping I love to take the grandkids as i can push the trolly and love to take them for a walk with the dog cos i can…[Read more]

Hi Maureen

You must find it hard with working,have a word with husband,and tell him to make sure they turn him over,and ask can the physo massage his pressure points,or when you go in give him a massage,it,s good for circulation plus relaxing and in general will make him feel better.

When Slim was in hospital an I pad with Skype on it…[Read more]

Hi Dai

Pleased the connected you up first time as its a devil if and when they collapse as used to happen to me when i was having Zometa evey four weeks was pleased when it was finished 😀

The Link http://www.youtube.com/watch?v=MdxsqeGS-Ms is and was worth a look it made me Laugh well done you two.

Tom Onwards and upwards 😎

Hi All,

Just got back from the Day Case Unit where I had infusion 1 of Cycle 3… infusion 2 to follow next Tuesday. Everything went smoothly, the nurse found a vein and captured it first go… we all kept an eye on it, checking and double checking as the saline wash went through, not quite believing that it could have been that easy but it…[Read more]

Hi Folks Thanks for your Inputs 😀

David
Yes I can and do most of those But I dont do the Garden as much as My Body tells me its too much, cook clean and do a fair bit of dog walking as am sure thats what keeps me Mobil and less bone pain 😀

Dai
Yes the DLA is as I have found out More for Mobility, and from what I gather you need to be…[Read more]

Hi Sue

Well I was up at 5am this morning and I took 2 tablets,had to get up with frozen shoulder and bad leg,a cup of tea and a piece of toast,so I could take pain killers and I am only the carer. Lol, I have gone down hill,as Slim is getting better,I think the whole 2 years hit me in one go,so may be sleeping tablets are not the…[Read more]

Hi Tom

I do not know what you situation is Tom,Dai is right in what he says about the physical side of claiming,but they can not discriminate between physical and the mental ability of the person although they have tried for years,because they do not like paying for a person,eg with early dementia or mental issues.

Tom as you say your…[Read more]

Hi Tom,

I was advised by a MacMillan nurse to apply for DLA because of my limited mobility and extensive bone damage. I put in for it expecting to get the lower rate but they gave me the higher rate and a nice new car.8-)

From what I can tell the DLA is mostly a mobility based allowance… if you qualify they give you the full allowance…[Read more]

Hi Maureen

It makes me angry when I. Hear people having bed sores,the NHS have ripple beds and if he was given the nursing he should of had,a man of his age should not be in this position,I could under stand it if he was frail,as it is very hard to avoid bed sores.

I can only tell you all the time my husband was in hospital,I bed bathed him…[Read more]

Hi Sandie

I hope the MRI has good results for you 😉 as for Mum being Sickie
To be fair I only had the sickness when I had my SCT and it was for a couple of months
I was using Sick Tabs, keep going in that sweetie drawer am sure it is good for us lol.

Take care and love to you both

Tom Onwards and Upwards xx