Hi folks
Thanks for input , yes Tom you have to be near dead before you get anything. I am of an age (57) that I can draw my frozen pension and if I pack in work can claim the one I pay for now, but my frozen one gives me next to nothing BUT if
I pass away before I reach Retirement age it pays my estate £29 K 😀 so am gonna leave it and see…[Read more]

Hi Dia

a winner as always just keep on top of the game
Big Hug;-)
love Jo

Well Done that Dai
But am sure you know that we all knew you could and would do it (am sure that makes sence?)

And as This Scunny Lad says Onwards and Upwards

Tom x

Hi Trish and Peter

Gosh I honestly hate the wait hate it even when I know am going to be Ok cos I fel greatbut the wait (for me) is always the worst.

Fingers crossed

Love Tom Onwards and Upwards xx

Hi Nicki

Dont forget when you read things online or in papers all MM patiants are differant so I would (and do) just concentrate on the good bits 😎
Stay well and strong.

Love Tom Onwards and Upwards xx

Hi Ann and Pete

All sounds good to me you two are doing well 😀 the need or wanting food will be lost for a time am afraid but it will come back (you should see my belly lol) , Its lonely in Isolation but all Pete will want to do is sleep (if he is like me)

Keep well its on a roll now

Love Tom Onwards and Upwards xxx

Excellent news Liz… I bet Kev feels much better just knowing that the treatment is working and working so well at that.8-)

I missed my second infusion of Cycle 2 and had to make do with just the one (infusions are set for Day 1 & Day 8… no swapping or changing, its either 1 & 8 or nothing). My light chains were at 525 when I came off…[Read more]

Thats More great news for us all 😀
Enjoy and long may it continue

Love Tom Onwards and Upwards xxx

Hi David
Hospital 500 yards,you lucky devil,no problems for you.blood test morning,phone you. Up,and pop over for injection .

Slim had 6 cycles which surprised me as,he had just completed 6 cycles of CDT,only to find after BMB the Myeloma had increased in bone. Marrow but was showing on Kapper Light Chains as in remission,that is why BMB for…[Read more]

As others have said Tom Great Blog, you can now class me as one of your Stalkers ha ha.

Well done and Keep well

Tom Onwards and upwards

Hi Dai

Well looks like your doing Ok
Am sure you will be Spot on for your next lot of treatment on Monday. But My fingers will be crossed just the same.

Tom Onwards and Fingers crossed Upwards 😀

Hi David

Sorry to read you got confirmation that the damn MM is on the move 🙁 Hope your MRI goes well.

Vasbyte and of Course Onwards and Upward

Tom x

Hi Keith
That I did (sorry consultant) yes i thought you were left and not getting the info. (am a silly billy) 😀

Hope your PP's are soon sorted

Tom Onwards and upwards x

Hi Sue,

As Maureen said, you did everything you could for Michael and although you must have felt helpless these last few weeks you and your daughters were there for him and you were there until the end.

Now it is your time. Time to allow the shock and the loss, time to grieve and time to grow into whatever you want to be. It won't be…[Read more]

Hi Maureen and Ian

Aww I bet you miss him, lets hope its just for a short stay and Physio soon get Ian as near up and running as they can.
Take Care and Give Ian My Regards and tell him we are rooting for him and of course you.

Love Tom Onwards and upwards xxxx

Hello Maureen

I hope all goes well and he is home with you soon
Love Jo

Hi David

Velcade is good although you have to go to hospital a lot more,Slim had less side effects,we did the hospital bit twice in one day two times a week,blood in the morning infusion afternoon,tablets once a month,you look forward to the week you do not take anything.
Lets hope MRI scan is clear,it's the damage it causes,I think is more…[Read more]

I too had heard very good reports so I asked a Doctor who was treating me in the Day Case Unit (for a suspected DVT) and he said that he personally had one and would recommend it… so I bought one. It arrived from Amazon and I tapped it and unwrapped it, eager to use it and, yes I know I am letting man-kind down, I read the instructions on the…[Read more]