Hi Sue

I hope you are feeling at peace with yourself and when you go to bed have a good nights sleep,you did your best for Michael,no one can ask more.

My best wishes to you and your girls,I am sure Michael was very proud of you all.Love Eve

My Dear Sue

I am so sorry for your loss as your loss is now our loss.

Please Take Strenth on the Good Times and push this Myeloma to the back of your mind.

Although its very sad when Michael passed away he is in no pain now and I hope you all feel better with Michael passing away at home.

I wish I lived near you Sue as am sure you need…[Read more]

Thank you all for your replies and your support.

I finally got through to the senior lead nurse today who told me that my lead nurse (Jenny) was off for the rest of the week but she offered to go through my bloods results:

HGB 10.8 (from 11.8 but still good)
WBC 3.0 (from 3.4)
Neuts 0.8 (from 0,77)

So very little movement with my…[Read more]

And good health to you my friend.

I can feel your frustration Keith… at least your consultant is trying to trace the reason for your non-production of platelets, so let's hope that one of the avenues of exploration is fruitful.

What are/were your PP's at the last reading? As you say, if you can see some evidence of reduction then you…[Read more]

Hi Jean and frank

Good Luck with it all
It will be worth it in the end the results far way out the bad bits, let Frank determine how his body feels each day and go with the flow.

Love and hugs to you both xxx
Onwards and upwards xxx

went in wrong place so here it is again Lol

Tom

RE: Got call at las

20-02-2013 at 9:16 PM

Jean sent you a PM xxx

Jean sent you a PM 🙂 xxx

Hi Marina

Sorry you are in this situation ,but it will help you with future dealings if you end up in A&E again.

I can tell you during the fourth cycle of CDT my husband was admitted to ITU and was in hospital for 23 days they stopped the chemo ,said that came secondary to Pnuemonia ,all together he was 6weeks no treatment ,then went back…[Read more]

Hi Keith
If one thing My Friend you are a fighter keep it going Keith and as for the Dr at your hospital not being contactable ?? well I must be very fortunate as I can get hold of my Dr at hospital and if he is busy he phoned me back.
Stay strong Keith and hope you have a better time with it as I know you deserve it.

Fingers crossed Tom…[Read more]

Hi Lorry

Well let me tell you I was told I had "Chemo Brain" after my SCT ?? asked the Q's when i had your problem :-/ and was told Chemo Brain :-0 now I had my SCT in December 2009 am now drug free and in remission or platued whatever??: Age 57 (born 1955) I was told it will recover ?? am still waiting Lol 😛 :-S
Hope your soon…[Read more]

Hi Lorry

You do not say how old you are!!!

Slim has a chemo head,it has taken him along time to get back doing crosswords,which he use to be very good at,I did speak to a trial nurse,who said in a polite way he may never get back to the person he was,one year on I would agree.

No one would pick up on it as it is just the odd thing for…[Read more]

Hi Marina
Sorry you had to join after your Husband diagnosis with MM you have come to the correct place.

I am sorry you two have had a bit of a rough time with it of late and sorry I cant help you this time but am sure some one will pop along and give you the Good advice you need.

Tom Onwards and upwards x

Hey Rock and Roll Hey Rock and Roll 😀

Hey Vicki and Colin

A Well Done a very Well Done, you dont need me to tell you how good it feels now do you 😀

Now I will have a Drink of beer for you both tonight, Great news well done you two.

From one Onwards and upwards to another Onwards and Upwards xxxx
Am well chuffed 🙂 x

Hi Keith

Just picked up on your posting,if it is any help I know the can get platelets which are more comparable with you,plus injections that help,but I do no know what they are!!!!

You can always tell when the news is not good the nurses keep looking at there shoes just in case there not shiny enough,and doctors avoid the eye…[Read more]

Vicky and Colin

This is we're you say to your self yes it was worth it,you just have to wait until his hair comes back curly.Eve

Hi Nicki

So sorry to hear the news,I suppose everyone waits for it all to come back,I have tried to define my f
Feelings from the very start,there is th Myeloma to get it under control,then the feeling of being in a waiting period kicks in,health wise my general health took a battering as Slims got better,we both feel the myeloma will catch…[Read more]

Dear Vcki and Colin

Celebrations all the way wonderful news long may it last;-)
Love Jo

Hi Sue,

The decision not to move Michael to the hospice has sealed the deal… he will pass at home and his family will be there at the end. I know how difficult it has been for you for the past few months but I am sure that this is the way that Michael would have chosen… it would certainly be my choice… no, it is my choice. I want to go…[Read more]

Dear Sue

How I feel for you all at this difficult time, I send you all a Cyber hug and i hope that helps, its no good me saying you must rest as you need to keep your strenth up as am sure you cant sleep.

Will you do it again I say yes as though we have not met I know you are a very strong lady, stay strong throu out this difficult…[Read more]

Hello Jean and Frank

the long wait over at last will keep in touch thinking about you all the time GOOD LUCK:-)
lOVE jo x