Hi Jean

All good news,it,s amazing the way time fly,s,will you have far to travel??.
I would take things in as needed if the room is small,found Slim would drink more out of his own mug.

Sorry have not Ben playing scrabble with you,using I pad as computer. Needs new battery,also have a frozen shoulder plus back problems so waiting on MRI…[Read more]

Hi Sue

My heart goes out to you,it must be hard on all the family Michael must be a very strong man,when this is all over you will look back and be glad Michael was at home,it must be the hardest thing you have ever done,try to rest .

I will be thinking about you and hoping,that Michael is at peace and you find your way through this…[Read more]

Morning Peter

Yep Early Days and you are doing good, Moth will soon get better as will your will to eat, My young Bride (Elaine gave me mine food on a small plate so as not to overface me so to speak (it worked am now back to being fat ha ha)

All the Best Peter now am off to work 😎

Hi Gina
Well I dont think you are getting what you and os your Mum Deserve?, its shocking to hear you only have such a short time with the Consultant, Now i am one of those that say "If the Dr Smiles am Happy" but I do know as and when I need to know anything nothing is too much bother from him or his team, am sure i am not the only one that has…[Read more]

Hi Chell

Well done just been and had a look at your "New" Facebook Page, now am going over to add you on my Twitter 🙂

Love Tom Onwards and upwards xxx

Hi Babs

Thanks and Yes I hope it gives strenth to others that have and are going through the same.
Stay well

Love tom Onwards and Upwards xx

Hi Sandie

Ha ha I know what you mean no exercise and too many Chocs 😀 I am a Devil for Nuts/crisps and sausage rolls lol, and i dont do Pilates, But I have Charlie our Yorkie to walk three four times a day 😎
Hope your both doing well.

Love Tom Onwards and Upwards xx

Hi Babs

Great News Girl, nest visit to Kings 2014 that is great news 😀
Keep up the Great work am as pleased as punch for you Both.

I have a Bus/Train pass but its only for me 🙁 the young bride (Elaine) has to pay lol.
Enjoy your Holls and stay well

Love Tom Onwards and upwrds xx

Hi Nicki and Sam

So sorry to hear about your breakdown, I do hope your getting some help with it? and that also means trying to get help for both of you its a hard slog going through it all and being a Carer (hate that word??) its harder than being the patient I have been both (now the MM'er)

Its rough that Sam has relapsed but I hear…[Read more]

Hi Gina

The choice of drugs after relapse can vary on the trials after CTD comes Velcade has your mum had it,you might be able to ask if this is available for your mum,it is having good results,but only seems available on trials.

Melphalan is given to kill the cells,people have it as part of SCT,, Chris are you on any other treatment…[Read more]

Hi Vicky and Colin

Slim was randermised for no treatment ,before he was unsure of taking it but we decided t wait and see what the computer came up with,no maintenance came up,ad at first we felt he was missing out,but it has worked out ok,we go every 2 months to see consultant mainly because the Myeoma no longer shows u n bloods or…[Read more]

Hi Maureen

I have not had an SCT I was diagnosed in jan 2009 With mm and renal failure kidneys still only working at 20% I chose not to go for SCT as the heavy chemo would have probably knocked my kidneys out completly didnt want to go on dialysis had CDT and got 3yrs 6 months remission have now started on velcade had three rounds of it so far…[Read more]

Hi Susannah,

How are things generally? Are you getting enough support… the right kind of support and how is Michael coping without treatment?

Have you managed to visit the hospice yet?

Keep in touch when you can. 🙂

Dai.

Bumpety Bump.

Hi Gina

I am like most I had mine prior to SCT so cant help.

Its a Shame and a disgrace that the consultant is on his own but that should not detract from the fact that without proper consultations and discussions a decision cant be made.
I would Email/Phone the Nurse on here as am sure you cant be forced into this with not knowing the…[Read more]

Hi Vicki and colin

Well as you know I cant add to this post as I have only had CDT then SCT (i say only ?? lol)
But want to wish you good luck with whatever you Both Choose, and to let you both know we are all behind you to help you get through it and achieve the Remission that we all crave.
As for the "Hangover" I honestly dont know what one…[Read more]

Hi Phil and Megan
Thank You its good all the way 😀 am pleased to say, and i washed the Car good and proper yesterday and am still fit today ha ha.

Hi Tina
Thanks it is good as you know when we get good news 😉 I have heard about long term Zometa, I came off mine after two years, but to be fair I was pleased as they found it harder to find…[Read more]

Hi Peter

Well you know you and i are 16 dayer's as i was in Castle Hill for 16 days and as they say the rest is history, Keep up the Good work and am sure your Man is gonna be happy for Many a year to come 😎

Hi Maureen
Its a great Day Today we have had three Grandchildren who after staying the nite are now out in the (cold) Sun waking…[Read more]

Great news Dia

just what we all need to hear a new drug working for you long may it last
lOVE jO X