tom replied to the topic Still feeling good in the forum General 12 years, 6 months ago
Hey Janet
That's great news, am sure it will give hope to those due or just starting treatment .
Keep well and stay strong.
Love Tom Onwards and Upwards xxx
tom replied to the topic Need advice please in the forum General 12 years, 6 months ago
Hi Emma
Sorry the hospital are trying to throw your Mum out. But am sure they can't just throw your Mum out, they must have a duty of care as your Mum is in their care it should be their duty and am sure the wouldn't want the press to know that they are throwing a Terminally Ill Lady out of her bed when she has all these problems.
It must…[Read more]
BADGER replied to the topic In Out, In Out, Shake It All About in the forum General 12 years, 6 months ago
hi DIA
Who knows its all a mistery to me when i was admitted with temp of 39 my white cells were 12 Hb9.5 only had a cold to start with liquid paras and Iv ANTIb,S soon bought it down why it had not happened before when I have had a cold didnt happen on CDT so perhaps its the Velcade no explaination It happens was the reply no real clue as to…[Read more]
tom replied to the topic In Out, In Out, Shake It All About in the forum General 12 years, 6 months ago
Dai
You must love that Hospital Food :-0 , you I and the Dr's dont know why our Temp flys away all they do is try and treat it 😛 .
Lets Hope your soon Home with feet up awaiting our Summer to arrive :-S well a bit warmer anyways He he
Get better Dai and hope you stay well a lot longewr than you have been.
Tom Onwards and Upwards x
tom replied to the topic Spam on the forum in the forum Off topic 12 years, 6 months ago
Well said That Dai 😀 I never thought of that as i have normally just ignored them :-S , but your Idea will work 😎
Tom
DaiCro started the topic In Out, In Out, Shake It All About. in the forum General 12 years, 6 months ago
Woke up after a long doze on Sunday afternoon with a temp of 38.7… I hadn't had much to drink since breakfast so I guzzled liquids and came down to 37.5 before taking a couple of paracetamol. It hung around 37.5 all evening so I took another couple off paracetamol at 11pm before settling down. Woke at 7am with a temp of 39.3… so I phoned…[Read more]
DaiCro replied to the topic Spam on the forum in the forum Off topic 12 years, 6 months ago
Hi All,
I know these spam posts are a nuisance.but all we need to do is to go into a subject heading and bump up the previous message… Just write 'bump' and post.
A couple of bumps each from the first few on board and we will have our board back and it will look more welcoming as well.
Just an idea.
Dai.
eve replied to the topic Relapsing in the forum General 12 years, 6 months ago
Hi Wendy
How are things going,glad to see India is still on the cards,but I would recommend you go Vedge for your stay,they have some lovely dishes,if you Like vedge they have some lovely food.
Have you started Velcade yet,hard to keep in touch now as I try only to look in these days,looked in today and saw lots of blank spaces,wrong that…[Read more]
eve replied to the topic Croaky/husky voice on Dex in the forum Side-effects 12 years, 6 months ago
Hi Ozzy
Slim use to get grumpy on the dex,I would have given anything for him to shut up,so I can understand how Gayle feels. LOL
Soon be over,apart from that is the Velcade working for you hiccups were the worst thing,still is very loud and we can be any were,its 8 months since any chemo treatment and the last lot was for SCT,but those…[Read more]
eve replied to the topic Ian adn CTD in the forum Carers 12 years, 6 months ago
Hi Maureen
So glad things are looking up for Ian,lets hope it will not be to long before he can forget the wheelchair.
When Slim used a wheelchair it was hard to see how he would start walking normal again,but he did,it was the summer so it made it easier,I use to take him out very early to begin with,had extra weight because the dog wanted to…[Read more]
BADGER replied to the topic Relapsing in the forum General 12 years, 6 months ago
Hi Ozzie
I too am on Velcade had no real side effects but have been having it once a week for four weeks with a week off this regime might suit you better have had two weeks off because of chest infection temp of 39 two day in hospital but been good other wise perhaps your consultant will change you to once a week
Good Luck
Jo
tom replied to the topic Here We Go Again in the forum Treatment 12 years, 6 months ago
Hi Keith and Liz
Am sorry you have had a rough time Am sure I am not on my own wishing you both get a bit of a rest from the pain and tiredness.
Wish you well and hope the sun soon puts a warm glow to us all.
Love you all
Tom Onwards and Upwards xx
tom replied to the topic Update on kev in the forum Treatment 12 years, 6 months ago
Hi you all
Liz I know what you mean with these posts I also had a great big smile reading them 😀 , as for the walking after my SCT it was hard work and thanks to having. Charlie the yorkie he was the one that made me get up and out.
And as for the resting on the wall my neighbour lent me his shooting stick, lightweight and had a small seat…[Read more]
DaiCro replied to the topic Update on kev in the forum Treatment 12 years, 6 months ago
Hi Tom,
I have been a lifelong trade unionist… like my father before me. My Dad was 'Father Of The Chapel'… a leader of the print union the NGA. I was a Youth Delegate, Area Delegate, Branch Secretary and Area Executive Officer for the NUM… Chairperson then President of NATFHE (Further Education Union) and then Regional Officer for the…[Read more]
DaiCro replied to the topic started treatment in the forum Treatment 12 years, 6 months ago
Hi Tebebe,
As CDT was my first/Frontline treatment I didn't know what to expect by way of side-effects. It wasn't pleasant with almost exactly the same effects as you describe… but neither was it overwhelming or crippling. I persevered because I knew I had no choice and there was a very good chance that it was doing me some good. It was.…[Read more]
DaiCro replied to the topic Still running for Myeloma in the forum General 12 years, 6 months ago
Well done you Joe,
I remember your posts from last year and I remember how positive you were then. 🙂
I wish you the best of luck in your endeavours and you and I both know that your Dad will be whispering encouragement every step of every race. 😎
Regards
Dai.
tom replied to the topic Croaky/husky voice on Dex in the forum Side-effects 12 years, 6 months ago
Hey Ozzy
Never give that up, you might not be able to talk but you can write it down Lol.
Love to you and gail
Tom Onwards and Upwards x
tom replied to the topic Update on kev in the forum Treatment 12 years, 6 months ago
Hi you all
Well this board is all about doing well and getting Tired am up for that one Lol
Yes I clock on for 40 hours a week am pleased to say, but do I work??? I have to be Honest I just clock on, the company realy look after me as I went back to work on Light dutie's In May 2010 and that was for about three months but they kept me doing…[Read more]
BADGER replied to the topic new arrival in the forum Off topic 12 years, 6 months ago
Hello Pat
thanks for your thoughts I found the rush of love for my grandson as soon as he was born it was marvellous for Geoff as well because we were an all girl household before that even the cat was femail.
My hair has gone a bit sraggy as with you my hair is or was very thick not so at the moment so i am going as short as poss but i just…[Read more]
BADGER replied to the topic new arrival in the forum Off topic 12 years, 6 months ago
Hello Dia
ANother bit of good news Ethan James didnt want to wait I hope you will be able to see him soon love to you and Janet and the new little one
Love Jo xx