Hi TEBEBE

i hope you get on well with the CDT I did ok on it I think the days that you are down are probably due to the DEX it has a bad effect on me that way
Good Luck and keep well
love Jo x

Dear Joe

well done at university I am sure your dad is with you and so very proud I think its wonderful that you are still running and raising money its eople like you that raise awareness that will bring MM to the fore keep up the good work i echo Jean post your just giving page
Love Jo x

Hi Joe

Well done and i wish you luck with it all and yes your Dad will be with you all the way.

Tom x

You and your Dad seem to be doing great Guns Daniel, am not sure if I could have done it the way your are doing it at such a young age, well done young Man, and give your dad my regards.

Stay well and strong

Tom "Onwards and Upwards" x

Hey Carryanne

Pull up a chair and get those Cosesy Slippers on as its great in here 😀
Am sorry you had to come on in but you will (like I did) find it a great help with your treatment and Moods as you travel the road to remission.

Some dont get any side effects to speak of and just sail through it 😀 , take one day at a time and rest…[Read more]

Congratulations To the Crowther Family 😀 May I ask you to pass on Our Best Dai to you and yours.

Now aint this a great thread 😀 Any more pending births Due 😎

All you New Gramps amd Grams enjoy 😀

Tom Granddad of Six 😎

Hi Pat and Jean,

Yes we are both overjoyed although Ross is the product of myself and my first wife, Shelley. Fortunately we have always had a good relationship since our divorce back in 1997 and more recently, since my diagnosis in 2008 we have become friends again… Shelley is very supportive and she and Janet and Shelley's 80 year old Mum…[Read more]

Hi Vanessa,

I completely understand that you are mad and sad by turn and that you want Stewart to have the very best chance of a successful SCT. His frontline treatment was CDT, a tried and trusted treatment and it has got him into the safety zone… PP's @ 14 is doable although I fully appreciate that 10, 7, 3 or 0 would make you happier. As…[Read more]

Hi Dan,

When I relapsed from my SCT I was also given Velcade. Although they don't say as much Velcade is a primer for a 2nd SCT… Unfortunately I and several others here didn't create enough Stem Cells to provide the opportunity for a 2nd SCT so the Velcade was given as a stand-alone treatment.

My relapse also showed a secondary tumour on…[Read more]

Hello Mavis
thanks for your thoughts I hope you are keeping well and still in remission
Love Jo x

Hello Carryanne

so sorry you have had to join I was diagnose jan 2009 and had CDT this gave me 3yrs 6mths remission I did not have a stem cell as my kidneys were badly damaged CDT was ok for me a few numb toes but no pain the only down side was from the DEX a bit hyper and not much sleep while taking it I was 61 and 1/2 when i diagnosed it was…[Read more]

And then there were three…

Ethan James Crowther – born at 9:46am this morning to my son Ross and Daughter-in-Law Kelly. 😀

Ross kept me informed of progress throughout the night (I didn't mind being woken in the slightest… he was excited but nervous as well because Kelly had a hard time with Owen two years ago.:-0

So, good news…[Read more]

Hi Sal,

I remember your initial post and I wondered then if your Dad would be able to withstand the rigours of MM treatment given his history and the two heart attacks while on treatment,

I am sorry that your Dad had to suffer the bad luck of contracting this awful disease at his age and after fighting to stay ahead of his heart problems……[Read more]

Hi Babs
Thats a fair distance to travel when you feel a we bit weary 🙁

Yes this site is a Godsend for us all MM'ers and Those great people that look after us when we aint too good 😀
Hope your doing well on your treatment

Love Tom "Onwards and Upwards" xx

Congratulations to you too Pat
we only have one grandson but he is the love of our lifes just as i am sure your little granddaughter will be for you:-) hope you are getting on well with the VCD
LovE jO X

Hello Jean and Frank

what wonderful news a little boy something to celebrate at last
Much Love jo jo 🙂 >:-) 😉

hello John
i have regular infusions of pamidronate once a month no real side effects a bit achey at first but after that no bother
I hope she does well this medicine may help keep MM at bay for a bit
Regards Jo

This sounds like good news Dia

keep it up this might be the one to give you a bit of drug free remission
Had three days in hospital this week Geoff took me into A&E 5 o'colck in the morning with a temp of 39 3 days on IV anti B's bad chest infection started with a cold and got worse a lot better now I usually get a winter cold but was probably…[Read more]

hi Stevo
CDT was ok for me had a bit of PN in my feet two outer toes on each foot went very numb but not painful so i could live with that and at night it gave me a good four hours sleep even on the DEX time, doesn't suit everyone but it did me
Keep well;-)
Love Jo x

Hi John

I had four weely infusions of Zometa for just over two years, at the start I got Flue symptoms nothing too bad, its just that I was pleased when they finnished as my veins were getting harder to use :-S
But that also worked for me.
Good Luck

Tom Onwards and Upwards